Re: Hi all...

[Guest guest]

Cliff - It's really good to see you back and posting. Have they given you a date yet for the final implantation. I'm just so gald to see that they've finally worked all of this out for you. Way too long, bud, way too long. BarbaraCliff Huber wrote:

Hey, everyone! I've obviously not been actively posting, but I've been reading the emails as I've been able and trying to keep up with everyone's lives. I've missed conversing with you and hope to have the time and energy to start up again soon. Welcome to all of the new folks who've joined in the last couple of months, you've found a caring home in this group.I just completed the trial period with my SCS and it went pretty well. In fact, I had it removed last Thursday and I'm having some really severe pain in my leg and the meds aren't doing the trick, so I think the SCS is probably going to be a good fit for me. When the trial unit was installed, I got 5 of the best nights of sleep that I've had in years. Usually, I sleep about 1 1/2 to 2 1/2 hours per night. With the SCS, I got a couple of 8 hour nights...unheard of in

most of our lives!!! Unfortunately, this also means that my brand of this disease is progressing to the point that the milder meds (Vicodin, Norco) aren't working. I even got my first disabled parking placard in the mail yesterday...let's jump in my car and go to the mall, we'll park up front...my treat! The placard's a good thing to have, but the reason for having it sucks (newcomers ask Dawn and Barbara about me and the whole sucking thing)...hmmm, was that humor? The disease apparantly hasn't gotten the best of me yet, nor will it get the best of you if we all stick together.Peace, love and pain relief!!!CliffWould love to talk to some of you...pop me a personal and I'll give you my cell number and you can call me!!! - C

[Guest guest]

Cliff,

So glad that your trial went well, and hope you can have your perm implant soon. 8 hrs. of sleep????? Oh my, sounds heavenly.

Handicapped placard, huh? Unfortunately, I've had handicapped plates for several years now. It can come in handy, though, especially at malls. We thought of making it a business during holiday seasons..

Keep your spirits up.. don't lose the sense of humor.. laughter is still the best medicine!

Hugs,

Jo

[Guest guest]

Cliff,

It is so good to hear from you, was just saying to Ginny last night, that a lot of people I love talking to have not been posting for a while! Glad to here that the SCS did you good, and you got some much needed sleep! I see your still sucking though and I am sure Barb will have some things to say to you about that! Listen I do not want to jump in the car, I want the nice comfortable and cushioned van with the tunes blasting and the motorcycle being towed right behind us, so we can go for a ride on the coast with the sun shining down on us and none of this 2 feet of snow to worry about! Unless of course you all want to get together and go snowmobiling!!! We can get a nice log cabin in the woods with a fire place and we can all get cozy and hang out together!

Well I am really glad that you are feeling better, but like you said I really wish we did not have to go through all of what we are to get there! Take care friend and please keep doing well! Let me know and I would be more than willing to exchange phone numbers. I would love to chat sometime! Take Care and LOL Always!!!

Dawn

Cliff Huber wrote:

Hey, everyone! I've obviously not been actively posting, but I've been reading the emails as I've been able and trying to keep up with everyone's lives. I've missed conversing with you and hope to have the time and energy to start up again soon. Welcome to all of the new folks who've joined in the last couple of months, you've found a caring home in this group.I just completed the trial period with my SCS and it went pretty well. In fact, I had it removed last Thursday and I'm having some really severe pain in my leg and the meds aren't doing the trick, so I think the SCS is probably going to be a good fit for me. When the trial unit was installed, I got 5 of the best nights of sleep that I've had in years. Usually, I sleep about 1 1/2 to 2 1/2 hours per night. With the SCS, I got a

couple of 8 hour nights...unheard of in most of our lives!!! Unfortunately, this also means that my brand of this disease is progressing to the point that the milder meds (Vicodin, Norco) aren't working. I even got my first disabled parking placard in the mail yesterday...let's jump in my car and go to the mall, we'll park up front...my treat! The placard's a good thing to have, but the reason for having it sucks (newcomers ask Dawn and Barbara about me and the whole sucking thing)...hmmm, was that humor? The disease apparantly hasn't gotten the best of me yet, nor will it get the best of you if we all stick together.Peace, love and pain relief!!!CliffWould love to talk to some of you...pop me a personal and I'll give you my cell number and you can call me!!! - C

[Guest guest]

CLiff, I have the SCS and I agree it is wonderful. My only problem is it takes

care of the legs but my RSD has progressed whole body and I want one for my

arms, etc. I did not have any problems with the implanted one and adjusting. In

fact, the discomfort was not even a problem b/c of the pain relief. Good Luck!

My only email at home is ducotedm@... but you could email at work and

it is ducote@... if you want to know more info. I will be glad to talk to

you. I am glad you are going to get some pain relief. Congratulations! Just

don't overdo like I tend to do now.

Debbie Ducote (Louisiana)

>

>

> Date: 2005/01/23 Sun AM 12:20:36 EST

> To: RSD-CRPSofAmerica

> Subject: Hi all...

>

>

Hey, everyone! I've obviously not been actively posting, but I've

been reading the emails as I've been able and trying to keep up with

everyone's lives. I've missed conversing with you and hope to have

the time and energy to start up again soon. Welcome to all of the

new folks who've joined in the last couple of months, you've found a

caring home in this group.

I just completed the trial period with my SCS and it went pretty

well. In fact, I had it removed last Thursday and I'm having some

really severe pain in my leg and the meds aren't doing the trick, so

I think the SCS is probably going to be a good fit for me. When the

trial unit was installed, I got 5 of the best nights of sleep that

I've had in years. Usually, I sleep about 1 1/2 to 2 1/2 hours per

night. With the SCS, I got a couple of 8 hour nights...unheard of

in most of our lives!!! Unfortunately, this also means that my

brand of this disease is progressing to the point that the milder

meds (Vicodin, Norco) aren't working. I even got my first disabled

parking placard in the mail yesterday...let's jump in my car and go

to the mall, we'll park up front...my treat! The placard's a good

thing to have, but the reason for having it sucks (newcomers ask

Dawn and Barbara about me and the whole sucking thing)...hmmm, was

that humor? The disease apparantly hasn't gotten the best of me

yet, nor will it get the best of you if we all stick together.

Peace, love and pain relief!!!

Cliff

Would love to talk to some of you...pop me a personal and I'll give

you my cell number and you can call me!!! - C

[Guest guest]

Deb - Why not go ahead and have one implanted for you legs as well? Even though the SCS wasn't a success for me, it would seem to make sense for you to go whole hog since it has worked so well for you. Barbaraducotedm@... wrote:

CLiff, I have the SCS and I agree it is wonderful. My only problem is it takes care of the legs but my RSD has progressed whole body and I want one for my arms, etc. I did not have any problems with the implanted one and adjusting. In fact, the discomfort was not even a problem b/c of the pain relief. Good Luck! My only email at home is ducotedm@... but you could email at work and it is ducote@... if you want to know more info. I will be glad to talk to you. I am glad you are going to get some pain relief. Congratulations! Just don't overdo like I tend to do now. Debbie Ducote (Louisiana)> > From: "Cliff Huber" > Date: 2005/01/23 Sun AM 12:20:36 EST> To: RSD-CRPSofAmerica > Subject: Hi all...> >

[Guest guest]

HI Cliff, nice to "meet" you! I'm Faye, appears to me you are a musician??? We could have lots to talk about - I used to own a rock and roll bar, and I used to open up bars for other people - all kinds. I also used to be one of the best lighting technicians for bands, that was my fave job. Still have the website for my old bar up, if you would like to see the equipment I used to run. What kind of music do you like? Also very happy to hear that you are close to getting to be "pain under control" -sorry it took so long. My email address is

flashinfaye@... if you want to email me personally. Best to you FayeCliff Huber wrote:

Hey, everyone! I've obviously not been actively posting, but I've been reading the emails as I've been able and trying to keep up with everyone's lives. I've missed conversing with you and hope to have the time and energy to start up again soon. Welcome to all of the new folks who've joined in the last couple of months, you've found a caring home in this group.I just completed the trial period with my SCS and it went pretty well. In fact, I had it removed last Thursday and I'm having some really severe pain in my leg and the meds aren't doing the trick, so I think the SCS is probably going to be a good fit for me. When the trial unit was installed, I got 5 of the best nights of sleep that I've had in years. Usually, I sleep about 1 1/2 to 2 1/2 hours per night. With the SCS, I got a

couple of 8 hour nights...unheard of in most of our lives!!! Unfortunately, this also means that my brand of this disease is progressing to the point that the milder meds (Vicodin, Norco) aren't working. I even got my first disabled parking placard in the mail yesterday...let's jump in my car and go to the mall, we'll park up front...my treat! The placard's a good thing to have, but the reason for having it sucks (newcomers ask Dawn and Barbara about me and the whole sucking thing)...hmmm, was that humor? The disease apparantly hasn't gotten the best of me yet, nor will it get the best of you if we all stick together.Peace, love and pain relief!!!CliffWould love to talk to some of you...pop me a personal and I'll give you my cell number and you can call me!!! - C

[Guest guest]

Cliff, Sorry to hear you are in so much pain right now. I am glad that the trial scs worked wonders for you...hope the real scs gives you as much relief. I am in a really bad flare up right now so can relate to the no sleeping and pain meds not working. I got my disabled parking placard in October of last year...sorry to say around here it seems like everyone has one and there are almost never parking places open so I can actually use it. When are you having the permanent scs placed? Hope you had a great weekend...we got 3 feet of snow and the snow drifts are about 6-7 feet high so I will definetly be snowed in for awhile. Am going to take pictures tomorrow and send them so any of you lucky people who have never seen snow can see what you are missing...lol... Hugs..GinnyCliff Huber wrote:

Hey, everyone! I've obviously not been actively posting, but I've been reading the emails as I've been able and trying to keep up with everyone's lives. I've missed conversing with you and hope to have the time and energy to start up again soon. Welcome to all of the new folks who've joined in the last couple of months, you've found a caring home in this group.I just completed the trial period with my SCS and it went pretty well. In fact, I had it removed last Thursday and I'm having some really severe pain in my leg and the meds aren't doing the trick, so I think the SCS is probably going to be a good fit for me. When the trial unit was installed, I got 5 of the best nights of sleep that I've had in years. Usually, I sleep about 1 1/2 to 2 1/2 hours per night. With the SCS, I got a

couple of 8 hour nights...unheard of in most of our lives!!! Unfortunately, this also means that my brand of this disease is progressing to the point that the milder meds (Vicodin, Norco) aren't working. I even got my first disabled parking placard in the mail yesterday...let's jump in my car and go to the mall, we'll park up front...my treat! The placard's a good thing to have, but the reason for having it sucks (newcomers ask Dawn and Barbara about me and the whole sucking thing)...hmmm, was that humor? The disease apparantly hasn't gotten the best of me yet, nor will it get the best of you if we all stick together.Peace, love and pain relief!!!CliffWould love to talk to some of you...pop me a personal and I'll give you my cell number and you can call me!!! - C

[Guest guest]

> HI Cliff, nice to " meet " you! I'm Faye, appears to me you are a

musician??? We could have lots to talk about - I used to own a rock

and roll bar, and I used to open up bars for other people - all

kinds.

Hi Faye! Nice to meet you too. Yeah, I'm a musician and that

translates to " Broke, tired and wierd " ...but reasonably happy. I

play jazz, rock, country and contemporary Christian. RSD has caused

occasional problems but hasn't kept me from playing gigs or getting

studio work...funny how weed will get one through a flareup...did I

just say that? I'm actually pretty lucky. I never did let RSD

cripple me, I kept using my affected leg, even when it hurt like

hell. So, the edema, redness and other associated ugliness of RSD

didn't hang around too long and I prolonged my " Stage 1 " for quite

some time. I'm sure I can handle whatever this disease can dish

out, mostly because I have no other choice. In the event that RSD

does do a big number on me, I can always switch to harmonica...it's

a light instrument and harmonica players traditionally don't dance

much.

You have a really interesting background with the rock bars and the

lighting stuff...where were you when I was really starving (tee

hee)??? What's the URL for your old bar site?

Keep in touch, I'll keep you posted on the SCS saga...

Come to California...it's nice here today...that goes for the rest

of you people who are buried in snow and tortured by the cold...I'll

leave the light on for you...don't step on the dogs on the way in.

Peace, love and pain relief!!!

Cliff

[Guest guest]

Hi Cliff - weed, agreed....my doctor has had me on that for the past 3 years with his blessing. Twice now he has told me to smoke more. Our laws up here are so different than in the States, I am much more blessed than you guys. I so loved my 'old life' I travelled, doing lighting. My bar was awesome, like a big family - we did lots of fundraisers, had the most incredible sound system - my fiance and I owned it worth a third of a million. Bands could record a CD live off the floor studio quality with a bar full of people. We used to have the bands sell tickets to their 'fans and friends' to take a bus to our bar and have dinner, get a copy of the CD that was made that night and a t-shirt. It cost $30. For me, as a bar owner - I didn't pay the band, had a bar full of people (sell 3 buses 150 people) from 9pm til 2am who didn't have to drive, I made a killing, usually locking the doors for capacity at 400 by 11pm or

so. My profit was $20 of the 30, plus what ever the bar made from the people on the bus for 5 hours of drinking time. The bands were happy because they now had a great CD for promo or selling that cost them nothing more than selling out 3 buses, which was pretty easy. Great promo as it was live, and bar owners liked that. The bar was an old warehouse, wooden everything 2 stories high, 12 inch beams supported the ceiling, about a hundred years old. Even a lot of the floor was wood.

Anyway - you can tell how much I miss it by how much I just went on about it..sorry about that. If you ever want some promotion ideas I'd be happy to give them to you. I have some great jello shooter recipes we made, great taste, huge profit. Not the vodka crap everybody else does.

My website for the bar is www.tjsingersol.4mg.com I think, if it's wrong let me know and I'll look it up again, the blonde Tricia is my oldest daughter.

My personal email is flashinfaye@... in case you want to banter on about music, bars, musicians, etc. I could go on for days and hours....and I'm sure the rest of the group would kill me...would that then be an RSD related death????????? haha bad sense of humour, not letting it go.

Great to meet you, talk to you soon, Best to you and yours, Faye

Cliff Huber wrote:

Hi Faye! Nice to meet you too. Yeah, I'm a musician and that translates to "Broke, tired and wierd"...but reasonably happy.

[Guest guest]

> Faye

Thats an awesome website!! Thanks for providing the link!

Hugs

Donna

> My website for the bar is www.tjsingersol.4mg.com I think, if it's

wrong let me know and I'll look it up again, the blonde Tricia is my

oldest daughter.

>