Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Welcome ! I saw my grandmother and mother go through it too, and I now have a son. Hope you find everything you're looking for here! Olivia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Welcome . You've come to the right place. We're all here to answer your questions and give you the support you need. Feel free to jump in anytime. Doloras Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 Welcome BEANS New Member Eby > Name: jeremy eby > Location: oregon ohio > email: goblu68@aol > Relationship: Patient > > my name is jeremy and i have been diagnosed with nf2 since > 2001. i have had a meniginoma tumor removed in 1997 and just had > surgery on the same side to remove an acoustic nueroma. i also have an > acoustic nueroma on my left side. > i would like to join for many reasons. the two biggest reasons are > support and information. i am looking to have someone i can discuss how > i feel and what i am going through. sometimes it is hard to talk to > people in my family because i do not want them to worry. i think this > would make me deal with this disease a lot easier. i am also looking to > get involved in finding a cure. all the research i can get or activities > i can get involved in the better. this is a disease that has affected > my grandmother and mother. i soon would like to bring children into this > world myself and i want to educate myself. this organization will help > me do that as well. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 Welcome to the Crew ! Fred Getz -----Original Message----- From: Jennette Sent: Wednesday, March 05, 2003 11:27 PM To: NF2 Crew Subject: New Member Eby Name: jeremy eby Location: oregon ohio email: goblu68@aol Relationship: Patient my name is jeremy and i have been diagnosed with nf2 since 2001. i have had a meniginoma tumor removed in 1997 and just had surgery on the same side to remove an acoustic nueroma. i also have an acoustic nueroma on my left side. i would like to join for many reasons. the two biggest reasons are support and information. i am looking to have someone i can discuss how i feel and what i am going through. sometimes it is hard to talk to people in my family because i do not want them to worry. i think this would make me deal with this disease a lot easier. i am also looking to get involved in finding a cure. all the research i can get or activities i can get involved in the better. this is a disease that has affected my grandmother and mother. i soon would like to bring children into this world myself and i want to educate myself. this organization will help me do that as well. To unsubscribe from this group, send a blank email to: NF2_Crew-unsubscribe Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi , Where is Oregon, Ohio? I live in New Philadelphia, OHio, about 20 miles south of Canton. Where did you seek treatment for your tumors? I have had both ANs removed along with a meningioma. I am 2nd generation NF2. Sadly there is also a 3rd generation. There are several "Buckeyes" on board here. Blessings, ~<><~~~ "Dance as if no one were watching:sing as if no one were listening,and live every day as if it wereyour last." - Irish Proverb New Member Eby Name: jeremy ebyLocation: oregon ohioemail: goblu68@aolRelationship: Patient my name is jeremy and i have been diagnosed with nf2 since2001. i have had a meniginoma tumor removed in 1997 and just hadsurgery on the same side to remove an acoustic nueroma. i also have anacoustic nueroma on my left side. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 , Oregon OH is kinda ESE of Toledo OH., a suburb. My son lives there, he lives on Navarre in an apt complex, is that anywhere near you ? Mikey A, ville FL New Member Eby Name: jeremy ebyLocation: oregon ohioemail: goblu68@aolRelationship: Patient my name is jeremy and i have been diagnosed with nf2 since2001. i have had a meniginoma tumor removed in 1997 and just hadsurgery on the same side to remove an acoustic nueroma. i also have anacoustic nueroma on my left side. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 has been bouncing. I used the address he gave when adding, however whenever yahoo has tried sending to him, it bounces with " user unknown " . Perhaps the addy he typed had a typo... from now on I'll copy/paste directly from the header to make sure. He must be thinking we are ignoring him, I feel terrible. I wonder if he could be found in any directory on the web?! He gave me goblu68@... Do you aol'ers have a directory of users? Jennette jennette@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 We're always here for you . Doloras Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 , you are in Michigan, where? I am originally from Westland/Livonia area then I moved to Belleville until the RR finally moved me to Pittsburgh and then Florida. Mikey A, A former Michigan resident (38 years) New Member Eby > Name: jeremy > Location: eby > email: deeznutzz069@... > Relationship: Patient > Why I'd like to join: > MY NAME IS JEREMY AND I HAVE BEEN DIAGNOSED WITH NF2 TWO YEARS AGO. I > HAD A MENIGENOMA TUMOR REMOVED IN 1997, BUT AT THE TIME NF2 WAS NOT NOT > RECOGNIZED. IT WAS TWO YEARS LATER DURING A FOLLOW UP EXAM THAT I WAS > FIRST NOTIFIED I HAD ANOTHER TUMOR ON MY BRAIN STEM. THE DOCTORS BECAME > SUSPICIOUS AND DID MORE GENETIC TESTS. AT THAT TIME I WAS DIAGNOSED > WITH NF2 AND REFERRED TO AN EAR SPECIALIST IN MICHIGAN. HE DID AN MRI > THIS PAST AUGUST AND FOUND 2 ACOUSTIC NEUROMAS ON EACH SIDE. I JUST > RECENTLY IN JANUARY HAD MY FIRST SURGERY TO REMOVE ONE TUMOR ON THE > RIGHT SIDE. > > THE GOOD NEWS WAS THAT I PRESERVED MY HEARING, BUT LOST THE ABILITY TO > CONTROL THE RIGHT SIDE OF MY FACE. IT HAS BEEN A ROUGH COUPLE OF YEARS > DEALING WITH THE PHYSICAL AND MENTAL ASPECTS OF THIS DISEASE. THAT IS > WHY I AM LOOKING TO JOIN. I AM LOOKING FOR PEOPLE I CAN TALK TO AND MAKE > DEALING WITH THIS EASIER. I LOOK FORWARD TO HEARING FROM YOU. > > > > -JEREMY EBY > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 thank you guys for letting me join your group. i look forward to getting to know everyone and talking soon. jeremy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 hey, mike. i am actually from toledo, ohio. the specialist i seen is in farmington hills, mi. so, i do a lot of doctor visits up around that area. livonia is reaaly close. thanks for the email and i look forward to talking to you in the future. jeremy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Hi , welcome to the crew, Sheryn in Canada ___________ > MY NAME IS JEREMY AND I HAVE BEEN DIAGNOSED WITH NF2 TWO YEARS AGO............. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 and , -- my sister lives in Avon, on Jay . Where do you live? I'm originally fron Cleveland, now in stown, Ohio. My docs are at the Cleveland Clinic. Either of you guys go there? Marcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Welcome , Look forward to your posts, in the future. Bacher Avon, Ohio Jennette wrote: > Name: jeremy > Location: eby > email: deeznutzz069@... > Relationship: Patient > Why I'd like to join: > MY NAME IS JEREMY AND I HAVE BEEN DIAGNOSED WITH NF2 TWO YEARS AGO. I > HAD A MENIGENOMA TUMOR REMOVED IN 1997, BUT AT THE TIME NF2 WAS NOT NOT > RECOGNIZED. IT WAS TWO YEARS LATER DURING A FOLLOW UP EXAM THAT I WAS > FIRST NOTIFIED I HAD ANOTHER TUMOR ON MY BRAIN STEM. THE DOCTORS BECAME > SUSPICIOUS AND DID MORE GENETIC TESTS. AT THAT TIME I WAS DIAGNOSED > WITH NF2 AND REFERRED TO AN EAR SPECIALIST IN MICHIGAN. HE DID AN MRI > THIS PAST AUGUST AND FOUND 2 ACOUSTIC NEUROMAS ON EACH SIDE. I JUST > RECENTLY IN JANUARY HAD MY FIRST SURGERY TO REMOVE ONE TUMOR ON THE > RIGHT SIDE. > > THE GOOD NEWS WAS THAT I PRESERVED MY HEARING, BUT LOST THE ABILITY TO > CONTROL THE RIGHT SIDE OF MY FACE. IT HAS BEEN A ROUGH COUPLE OF YEARS > DEALING WITH THE PHYSICAL AND MENTAL ASPECTS OF THIS DISEASE. THAT IS > WHY I AM LOOKING TO JOIN. I AM LOOKING FOR PEOPLE I CAN TALK TO AND MAKE > DEALING WITH THIS EASIER. I LOOK FORWARD TO HEARING FROM YOU. > > -JEREMY EBY > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 hey marcy, oys jeremy. i thought about going to the cleveland clinic, but i am actua;;y closer to the doctors in detroit. do they have a pretty nice clinic? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 Marcy, I live on Sandy Lane which is right next to Jaycox. What is your sister's last name? How long has she lived in Avon? We don't go to Cleveland Clinic at this time but it's good to know there is someone good there if the need arises. Right now we are dealing with Dr. Brackmann in California for check-ups through MRI's. Marcy wrote: > and , > -- my sister lives in Avon, on Jay . Where do you > live? > I'm originally fron Cleveland, now in stown, Ohio. My docs > are at the Cleveland Clinic. Either of you guys go there? > Marcy > > Quote Link to comment Share on other sites More sharing options...
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