Re: what's it like elsewhere???

[Guest guest]

Oh ,,, I'm sure glad my ancestors were TRANSPORTED to OZ a few

hundred years back. ;-) A few hereditary chain scars sound like a picnic

compared to the health care in the UK

Marcus from OZ

----- Original Message -----

>

> Hi all,

> I would welcome opinions on whether or not my experiences are common in

> other countries or whether this is an England NHS phenomenon.

>

> I have what I am sure are excellent surgeons. However, I seem plagued by

an

> inadequate infrastructure and have experienced appalling aftercare.

>

> I had my 1st AN out in 97-operation went very well. The hospital though

was

> truely awful. I had no basic nursing care such as help bathing, eating,

> walking and washing after the operation and had relayed on a cleaner

> sneaking in yoghurts so I had something to eat when I couldn't swallow. I

> heard about a male NF2 patient was in the same hosptial and again his

> experience was terrible with urine bottles left unemptied and spilt urine

> left on the floor.

>

[Guest guest]

Guess we just don't know how lucky we are until you hear something like this.

We have had appts when my daughter or husband go for MRI's in the a.m. and then hand carry the hard copies to the neuro or surgeon for an appt the same day

Elaine

[Guest guest]

In all my mri years I get an MRI then see the dr in next week or whenever I

make the appt, he gets the report and films in a few days. I dont know what

england has but i wud not like any kind of managed health care however many in

canada do quite well, just gotta become a pro and learn how to work the system

to your best advantage I guess.

wrote:

> It should NOT take two months just to read your MRI NO WAY. You could

> be on a slab for all they know. As for mine they were sent to a busy clinic

> and it was 500 miles from me the dlivery the passing around from Dr to Dr

> and the snail mail wow and there was the answer in two weeks. We are not in

> England but somthing sounds fishy. Like the film was lost or put on a

> shlf???????????????//// HUM What a joke.

> BEANS

> what's it like elsewhere???

>

> >

> > Hi all,

> > I would welcome opinions on whether or not my experiences are common in

> > other countries or whether this is an England NHS phenomenon.

> >

> > I have what I am sure are excellent surgeons. However, I seem plagued by

> an

> > inadequate infrastructure and have experienced appalling aftercare.

> >

> > I had my 1st AN out in 97-operation went very well. The hospital though

> was

> > truely awful. I had no basic nursing care such as help bathing, eating,

> > walking and washing after the operation and had relayed on a cleaner

> > sneaking in yoghurts so I had something to eat when I couldn't swallow. I

> > heard about a male NF2 patient was in the same hosptial and again his

> > experience was terrible with urine bottles left unemptied and spilt urine

> > left on the floor.

> >

> > In March I had my regular MRI scan to moniter my meninginomas. I was told

> by

> > phone and later it was confirmed by letter that there had been no change

> in

> > their growth. I then went for a routine appointment in November and

> another

> > surgeon said that they had grown signifently enough for me to have a scan

> in

> > 6 months time.

> > I went home somewhat shell shocked checked my letter and demanded and on

> the

> > fourth time of phoning get a very angry appointment with the surgeon that

> > said they had grown. In fact they had both grown by a third in a year-they

> > are not huge both 2cm. He agreed that there had been a misunderstanding

> and

> > ofcourse he meant 6 months after march (a time that had already passed)

> but

> > said he'd put me in for a MRI straight away and predicted that surgery

> would

> > then follow. He said the scan would take 2 months to process.

> > I was OK with this mistakes happen however unfortunately 2 months has

> passed

> > and when I phoned today to find out when the scan was-he forgot to book

> > one!!!

> > At the moment I am in goodish health-I know that I may not always be in a

> > position to make a fuss-check letters, scans, chase results ect.

> > And for the hospital I am dreading the aftercare as much as the operation.

> > I was thinking about going private. I then thought if I've got to pay

> > perhaps another country might be better?

> > The thought of being dependent on this system when I'm not this strong is

> > scary.

> > any thoughts

> >

> >

> >

> > _________________________________________________________________

> > MSN 8 with e-mail virus protection service: 2 months FREE*

> > http://join.msn.com/?page=features/virus

> >

> >

> >

[Guest guest]

It should NOT take two months just to read your MRI NO WAY. You could

be on a slab for all they know. As for mine they were sent to a busy clinic

and it was 500 miles from me the dlivery the passing around from Dr to Dr

and the snail mail wow and there was the answer in two weeks. We are not in

England but somthing sounds fishy. Like the film was lost or put on a

shlf???????????????//// HUM What a joke.

BEANS

what's it like elsewhere???

>

> Hi all,

> I would welcome opinions on whether or not my experiences are common in

> other countries or whether this is an England NHS phenomenon.

>

> I have what I am sure are excellent surgeons. However, I seem plagued by

an

> inadequate infrastructure and have experienced appalling aftercare.

>

> I had my 1st AN out in 97-operation went very well. The hospital though

was

> truely awful. I had no basic nursing care such as help bathing, eating,

> walking and washing after the operation and had relayed on a cleaner

> sneaking in yoghurts so I had something to eat when I couldn't swallow. I

> heard about a male NF2 patient was in the same hosptial and again his

> experience was terrible with urine bottles left unemptied and spilt urine

> left on the floor.

>

> In March I had my regular MRI scan to moniter my meninginomas. I was told

by

> phone and later it was confirmed by letter that there had been no change

in

> their growth. I then went for a routine appointment in November and

another

> surgeon said that they had grown signifently enough for me to have a scan

in

> 6 months time.

> I went home somewhat shell shocked checked my letter and demanded and on

the

> fourth time of phoning get a very angry appointment with the surgeon that

> said they had grown. In fact they had both grown by a third in a year-they

> are not huge both 2cm. He agreed that there had been a misunderstanding

and

> ofcourse he meant 6 months after march (a time that had already passed)

but

> said he'd put me in for a MRI straight away and predicted that surgery

would

> then follow. He said the scan would take 2 months to process.

> I was OK with this mistakes happen however unfortunately 2 months has

passed

> and when I phoned today to find out when the scan was-he forgot to book

> one!!!

> At the moment I am in goodish health-I know that I may not always be in a

> position to make a fuss-check letters, scans, chase results ect.

> And for the hospital I am dreading the aftercare as much as the operation.

> I was thinking about going private. I then thought if I've got to pay

> perhaps another country might be better?

> The thought of being dependent on this system when I'm not this strong is

> scary.

> any thoughts

>

>

>

> _________________________________________________________________

> MSN 8 with e-mail virus protection service: 2 months FREE*

> http://join.msn.com/?page=features/virus

>

>

>

[Guest guest]

We live in Alberta Canada...my son had an MRI done in the middle of sept last year and we waited until the end of Nov to get his results...after constant calls and e-mails..i finally got thru and got an appointment.Our family doctor had had the written results a month before that but he has never read and MRI report before so he was no help. I was told the excuse was he was away on holiday and the office was being moved.Now he only see'e patients 1 day a week so who knows what will happen next.

RE: what's it like elsewhere???

Just about all my MRI's are like this. I have the MRI at 10am and see the Doctor about 3pm of the same day and he has all the results and the reading done

Pete

-----Original Message-----From: powerful6@... Sent: Saturday, January 18, 2003 8:17 AMTo: NF2_Crew Subject: Re: what's it like elsewhere??? Guess we just don't know how lucky we are until you hear something like this. We have had appts when my daughter or husband go for MRI's in the a.m. and then hand carry the hard copies to the neuro or surgeon for an appt the same day Elaine

[Guest guest]

Just about all my MRI's are like this. I have the MRI at 10am and see the Doctor about 3pm of the same day and he has all the results and the reading done

Pete

-----Original Message-----From: powerful6@... Sent: Saturday, January 18, 2003 8:17 AMTo: NF2_Crew Subject: Re: what's it like elsewhere??? Guess we just don't know how lucky we are until you hear something like this. We have had appts when my daughter or husband go for MRI's in the a.m. and then hand carry the hard copies to the neuro or surgeon for an appt the same day Elaine

[Guest guest]

We live in Newfoundland, Canada and we only have one MRI machine so we have to wait anywhere from 1 1/2 years to 2 years for an appointment then you have to call and keep being persistent for the results or else they are either lost or not read at all. we had to fly to Los Angeles for surgery on his AN and i asked the doctor to arrange MRI there so it was done the same day. I guess money talks in some places. we are unfortunate as to have not enough MRI machines but we are lucky to have a provincial health care plan, you just have to do the research and bugging yourself....wanda

PJL wrote:

We live in Alberta Canada...my son had an MRI done in the middle of sept last year and we waited until the end of Nov to get his results...after constant calls and e-mails..i finally got thru and got an appointment.Our family doctor had had the written results a month before that but he has never read and MRI report before so he was no help. I was told the excuse was he was away on holiday and the office was being moved.Now he only see'e patients 1 day a week so who knows what will happen next.

RE: what's it like elsewhere???

Just about all my MRI's are like this. I have the MRI at 10am and see the Doctor about 3pm of the same day and he has all the results and the reading done

Pete

-----Original Message-----From: powerful6@... Sent: Saturday, January 18, 2003 8:17 AMTo: NF2_Crew Subject: Re: what's it like elsewhere??? Guess we just don't know how lucky we are until you hear something like this. We have had appts when my daughter or husband go for MRI's in the a.m. and then hand carry the hard copies to the neuro or surgeon for an appt the same day Elaine

[Guest guest]

With all due respect, with what I am hearing about the lag time, etc I think we do not want to see socialized medicine? Marie

RE: what's it like elsewhere???

Just about all my MRI's are like this. I have the MRI at 10am and see the Doctor about 3pm of the same day and he has all the results and the reading done

Pete

-----Original Message-----From: powerful6@... Sent: Saturday, January 18, 2003 8:17 AMTo: NF2_Crew Subject: Re: what's it like elsewhere??? Guess we just don't know how lucky we are until you hear something like this. We have had appts when my daughter or husband go for MRI's in the a.m. and then hand carry the hard copies to the neuro or surgeon for an appt the same day Elaine

[Guest guest]

That is sad wanda,. I have a dozen places I could, mri's on

every corner, radiology labs, hospitals, diagnosic centers, universities,

one mri machine really??????????

wanda pike wrote:

We live in Newfoundland, Canada and we only have one MRI machine so

we have to wait anywhere from 1 1/2 years to 2 years for an appointment

then you have to call and keep being persistent for the results or else

they are either lost or not read at all. we had to fly to Los Angeles

for surgery on his AN and i asked the doctor to arrange MRI there so it

was done the same day. I guess money talks in some places. we are

unfortunate as to have not enough MRI machines but we are lucky to have

a provincial health care plan, you just have to do the research and bugging

yourself....wanda

PJL wrote:

We

live in Alberta Canada...my son had an MRI done in the middle of sept last

year and we waited until the end of Nov to get his results...after constant

calls and e-mails..i finally got thru and got an appointment.Our family

doctor had had the written results a month before that but he has never

read and MRI report before so he was no help. I was told the excuse was

he was away on holiday and the office was being moved.Now he only see'e

patients 1 day a week so who knows what will happen next.

Re: what's

it like elsewhere???

Guess we just don't know

how lucky we are until you hear something like this.

We have had appts when my daughter or husband go for MRI's in the a.m.

and then hand carry the hard copies to the neuro or surgeon for an appt

the same day

& nb! sp;

Elaine

[Guest guest]

Can't agree more!!

[Guest guest]

Subject: Re: what's it like elsewhere???

Wanda, was an ABI implant involved in this surgery?

Sheryn

______________

we had to fly to Los Angeles for surgery on his AN and i asked the doctor to arrange MRI there so it was done the same day. an appt the same day