Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 My youngest has a reverse cafe au lait patch under her arm . Diane whats a reverse cafe-au-lait ? Joyce M. -- NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 My youngest has a reverse cafe au lait patch under her arm . Diane whats a reverse cafe-au-lait ? Joyce M. -- NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 I have a reverse cafe aulait spot on thigh, been there since birth, its very white. the drs thought had tuberous schlerosis bc of it, i think .... joyce wrote: My youngest has a reverse cafe au lait patch under her arm . Diane whats a reverse cafe-au-lait ? Joyce M. -- NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 I have a reverse cafe aulait spot on thigh, been there since birth, its very white. the drs thought had tuberous schlerosis bc of it, i think .... joyce wrote: My youngest has a reverse cafe au lait patch under her arm . Diane whats a reverse cafe-au-lait ? Joyce M. -- NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 I thought tuberous schlerosis was FAT CHEEKS from blowing the TUBA ;-P. hmmmmmmmmm Cindy blowing on a tuba,,,,,,,, now theres a visual sure to get a smile :-)))))))))))) You smiling Cindy ? M NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 I thought tuberous schlerosis was FAT CHEEKS from blowing the TUBA ;-P. hmmmmmmmmm Cindy blowing on a tuba,,,,,,,, now theres a visual sure to get a smile :-)))))))))))) You smiling Cindy ? M NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 never played the tuba marcus :-) Marcus wrote: I thought tuberous schlerosis was FAT CHEEKS from blowing the TUBA ;-P. hmmmmmmmmm Cindy blowing on a tuba,,,,,,,, now theres a visual sure to get a smile :-))))))))))))You smiling Cindy ?M----- Original Message ----- From: Cindy I have a reverse cafe aulait spot on thigh, been there since birth, its very white. the drs thought had tuberous schlerosis bc of it, i think .... joyce wrote: My youngest has a reverse cafe au lait patch under her arm . Diane whats a reverse cafe-au-lait ? Joyce M. -- NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 never played the tuba marcus :-) Marcus wrote: I thought tuberous schlerosis was FAT CHEEKS from blowing the TUBA ;-P. hmmmmmmmmm Cindy blowing on a tuba,,,,,,,, now theres a visual sure to get a smile :-))))))))))))You smiling Cindy ?M----- Original Message ----- From: Cindy I have a reverse cafe aulait spot on thigh, been there since birth, its very white. the drs thought had tuberous schlerosis bc of it, i think .... joyce wrote: My youngest has a reverse cafe au lait patch under her arm . Diane whats a reverse cafe-au-lait ? Joyce M. -- NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Hi Joyce, Like Cindy said, it looks like a cafe au lait but the color is white . I haven't yet looked at the sites you mentioned. I'm going to make her a drs. appt. and have her checked out too. Thanks. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Hi Joyce, Like Cindy said, it looks like a cafe au lait but the color is white . I haven't yet looked at the sites you mentioned. I'm going to make her a drs. appt. and have her checked out too. Thanks. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 By God I did! I played the Tuba, Baritone and the Trumpet back in band in school. Mikey NF2 spontaneous kids Crew, I think I mentioned this before but I don't remember .... okay, here's the situation, I've got four kids, one with NF2 spontaneously. Is there anyone out there diagnosed with spontaneous NF2 and had a sibling also diagnosed sometime later. My youngest has a reverse cafe au lait patch under her arm and I'm concerned that this could be NF2. Diane Quote Link to comment Share on other sites More sharing options...
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