Dawn

[Guest guest]

,

As I was telling Ginny tonight, if it was not for the support of all of you, I would either not be here or taken away in the white jacket! It is going to be hard, but going to let my attorney handle all of this for now! I am going to call him tomorrow to see if he did anything for me yet! Thanks so much for being there for me and LOL and Best Wishes Always!!!

DawnKM86@... wrote:

Dawn

Don't give them the benefit of upsetting you, etc. Have your atty take care of them.

Sending good thoughts and prayers for you to remain strong.

In a message dated 1/5/2005 3:50:02 PM Eastern Standard Time, RSD-CRPSofAmerica writes:

Date: Wed, 5 Jan 2005 05:47:54 -0800 (PST) Subject: Things are much worse!!!Well things got even worse and really wish I had a gun!!!!!!!!!!!!!!!!!!!!!!!!!!! I was just told by WC that my checks have now officially stopped!!!!! I guess because this is my second time canceling they are stopping all money being paid to me. They refused to speak to me because I have an attorney and would not even listen to what I had to say, so I just hung up the phone!!! Well I am done with all of them and don't care if I live in the sewer! I have had enough and just do not want to fight anymore!!

[Guest guest]

Dawn,

I see the neurologist on Friday and go from there. He also suggest capsaicin cream. Have you tried it. It takes awhile to become effective but well worth it I think for some of the pain issue's I have. It's a sunny day and I awoke late. Nice feeling. Do any of you guys have this symptom when you first wake up your avective part of RSD just tingles like. It's the weirdest feeling I have in the morn. It's like throbbing tingling. Really doesn't hurt much. When it stops I'm back to the same old feeling.

I want to accomplish so much today but know there is never enough time in the day. Frustrating sometimes.

Barbara, I agree with Dawn that about not trying to push yourself to hard to get back to work. Take time and it will work out the way it's suppose to. I know I fluctuated from wanting to go back and dreaming of the day. and finally realized and accepted my situation and try to make the most of it. I volunteer now so it satisfied my wanting to be productive much of the time.

Luv to all,

Laurie

[Guest guest]

Dawn,

I see the neurologist on Friday and go from there. He also suggest capsaicin cream. Have you tried it. It takes awhile to become effective but well worth it I think for some of the pain issue's I have. It's a sunny day and I awoke late. Nice feeling. Do any of you guys have this symptom when you first wake up your avective part of RSD just tingles like. It's the weirdest feeling I have in the morn. It's like throbbing tingling. Really doesn't hurt much. When it stops I'm back to the same old feeling.

I want to accomplish so much today but know there is never enough time in the day. Frustrating sometimes.

Barbara, I agree with Dawn that about not trying to push yourself to hard to get back to work. Take time and it will work out the way it's suppose to. I know I fluctuated from wanting to go back and dreaming of the day. and finally realized and accepted my situation and try to make the most of it. I volunteer now so it satisfied my wanting to be productive much of the time.

Luv to all,

Laurie

[Guest guest]

Ms.Dawn,

Sure hope those WC checks come soon. I think your mom knows the financial stains your going through right now and would be glad to help you out until the money comes in. Esp. pay the phone bill. One can't live without communication to the world.

Get some good rest and drink up those smoothies/ I'm going to grocery store tomorrow with my worker and get some stuff for them.

Take care luv.

Laurie

[Guest guest]

so glad to hear from you. about time you got those checks. yes everyone

thnks we are sick and meek. when the true us comes out they stand up ad

listen. i like t when someone say now i am tiried of all of this why

don't you just get up and go about your business.i could smack them

silly. if i cold stand i would. they are at my height to do some

serious damage so they better hush up or else. write when everyu can.

the squeky wheel gets the oil. stand up and fight for what is yous and

then say thankyou. this wil irrate them more than anything. love ya

cathy

[Guest guest]

the crooked people get the disability. the ones that need it never do.

isn't it funny when joan needed the meds she got them. in large

quantities. but ow tht she is clean the pain meds are bad for you. it

is like someone that quits smoking. the smoke and fine. but whenthey

quit the world is wrong. i smoked for many years. have quit for 4. i

do not put people down for smoloking. would lve to go back to it. i

still crave them. but couldnot breath. so where does the mother think

her daughter is right. bet me. she is wrong. i know. been there. did

tht love ya cathy

[Guest guest]

hello ,. as usual emily will live out of state. so if i am lucky i may

see her once a year. maybe even not that. do not know what will happen

to the parents. i kow what i would like to happen. i rerely get to

see my kds. maybe one day when they are grown they will want to visit.

ih well. sad day. hurt real bad in body and spirit. thanks for

caring. cathy

[Guest guest]

Cathy,

How many children other than your son, do you have? I think it is shameful that your children do not visit you, especially with all that you have been through and continue to go through! I really do not want you to think that I am putting down your family, but I do not understand how children can neglect there parents that raised and took care of them! I certainly know that they were given plenty of love by you and your husband, but do not understand why they are so ungrateful!!

Please do not get yourself more upset than you already are and know that everyone here is now part of your family and we love and care deeply about you! Please take care and know that you are in my thoughts and prayer's! LOL and Best Wishes to you and your husband!

Dawn

fishthatsmiles@... wrote:

hello ,. as usual emily will live out of state. so if i am lucky i maysee her once a year. maybe even not that. do not know what will happento the parents. i kow what i would like to happen. i rerely get tosee my kds. maybe one day when they are grown they will want to visit.ih well. sad day. hurt real bad in body and spirit. thanks forcaring. cathy

[Guest guest]

Cathy,

How many children other than your son, do you have? I think it is shameful that your children do not visit you, especially with all that you have been through and continue to go through! I really do not want you to think that I am putting down your family, but I do not understand how children can neglect there parents that raised and took care of them! I certainly know that they were given plenty of love by you and your husband, but do not understand why they are so ungrateful!!

Please do not get yourself more upset than you already are and know that everyone here is now part of your family and we love and care deeply about you! Please take care and know that you are in my thoughts and prayer's! LOL and Best Wishes to you and your husband!

Dawn

fishthatsmiles@... wrote:

hello ,. as usual emily will live out of state. so if i am lucky i maysee her once a year. maybe even not that. do not know what will happento the parents. i kow what i would like to happen. i rerely get tosee my kds. maybe one day when they are grown they will want to visit.ih well. sad day. hurt real bad in body and spirit. thanks forcaring. cathy

[Guest guest]

hello dawn. i have one son. lost 5 children early on. my body didn't

like carring children. so by 7th month lost the all. oh well. he

thinks i owe him everthing. so i will not talk to hm and this gets him

angry. he has nothing kind to say so i do not need him. thanks for

caring. love cahy

[Guest guest]

was this a type of seisure . can you call your doctor today and ask him

what is going on. i need to talk to you. look i private e mail box

love ya cathy

[Guest guest]

Cathy,

I do not know if it was a type of seizure or what it was! I just know that it scared me to death and do not want it to happen to me again! I was really scared and my Mom was ready to bring me to the ER! I am going to find out from my Neurologist and will call him in the morning. If you would like to talk to me privately you can write to me at ddottidew@.... I would like to talk if you want. Thanks and hope all is well with you today! I have to go and pick up meds for my MS today, because we are suppose to be hit with yet another blizard tomorrow and can get anywhere from 7 inches to over a foot! I really am getting sick of all this SNOW! Would someone else please take it! LOL and Best Wishes!

Dawn

fishthatsmiles@... wrote:

was this a type of seisure . can you call your doctor today and ask himwhat is going on. i need to talk to you. look i private e mail boxlove ya cathy

[Guest guest]

Barb,

Yes I am feeling better now, but very tired and feel I am forcing myself to stay awake, but do not want to sleep all day! I have to go and pick up meds for my MS and do not want to go to late.

I must say whatever happened to me last night was the scariest thing that has ever happened to me. Thank goodness it lasted only five minutes or so. I am going to call my neurologist tomorrow and let him know what exactly happened and let him figure it out. I just do not want it to happen when I am driving. That is what scares me the most! I am just hoping that it was a one time thing and it will not happen again. Well gotta go and try and get something done before that delightful snow hits again! Take Care and LOL!

Dawn

BARBARA TORREY wrote:

Dawn - I'm really sorry to hear about your mom;s neighbor, but also concerned about your own body's reaction. Having been in the ER last Saturday night myself with some similar symptoms and some different/additional, I'm wondering if you're having some odd med reaction. Also important to rule out possible underlying seizure disorder,...and bigger words...akathisia, dyskinesia, (which are just symptoms not an actual disorder) or restless legs syndrome (RLS, while not a serious issue at all, is very unpleasant and actually pretty common). Talk with your docs and try to be as exact as possible with them in describing the symptoms. Let's us know what they say. Have fun at NASCAR today...which I hope means that you're starting to feel a bit better. Hugs - Barbara

[Guest guest]

Dawn - Between the MS and the RSD and all of the needed meds, something funky could have been triggered off. Until your doc "clears" you, would you please consider not driving or at the very least, really cutting back on how far and how often you drive? My driving has been severely curtailed by my docs so I know that it ends up feeling like when we got grounded in high school (every other week here). They hit me in the heart when they mentioned the possibility of my hurting someone else on the road. Somehow, with all that was happening and my need to get to places, I had forgotten that one "little" aspect. Hugs - Barbaradawn lorenz wrote:

Barb,

Yes I am feeling better now, but very tired and feel I am forcing myself to stay awake, but do not want to sleep all day! I have to go and pick up meds for my MS and do not want to go to late.

I must say whatever happened to me last night was the scariest thing that has ever happened to me.

[Guest guest]

-------Original Message-------

I just do not want it to happen when I am driving. That is what scares me the most! I am just hoping that it was a one time thing and it will not happen again. Well gotta go and try and get something done before that delightful snow hits again! Take Care and LOL!

Dawn====================================================================================

Dawn,

if you are that scared that it will happen while you are driving,

then PLEASE DON"T DRIVE!!!! I know that it's hard

to not get behind the wheel of the car when you are so used to being

independant and being able to just jump in the car and go whenever

you want........but, just think about how your Mother would feel if it

did happen again while you was driving, and you wrecked your car,

and either ended up with critical injuries or possibly died. And then,

Think about the Guilt that you would have to carry with you for

the rest of your life if you accidently ran into someone else in another

vehicle, or if you ran into someone just walking across the road?

I seriously doubt if there is any way that you'd be able to live with

yourself if any of that happened.

My Doctor has never said to me that I can't drive again......only that I

can't drive if I am starting a new med for 2 weeks until I find out

how it affects me. BUT, instead, I have banned myself from driving

more than a few miles away, because between the muscle spasms, and

constantly wanting to fall asleep and lose my concentration, I'm scared

that I won't make it to where I need to.

Luckily, I do have Gene to drive me where I need to go.....but, most

of the time, I have to listen to him B**ch and moan and groan about

it every time. Sometimes, I do wonder if it would be better if I just

drove myself, instead of listening to him all the time..........and, when

I do get depressed enough that I don't care whether I live or die,

I tend to take off and drive myself where ever I want.

So, PLEASE promise that you'll stop driving any further than

absolute necessary, like only a couple of blocks that it takes to get to your

mom's house, or the nearest gas station/grocery store.

Tonia

**FzyWzy**

[Guest guest]

Dear Dawn.... - well, seizures - or the possibility of - and driving, are two things I do know about....alot. I've had them for 3.5 years and haven't driven for about the same amount of time - as soon as I realized that there was something not fully connected "upstairs" all the time, and before I got the seizure diagnosis. You certainly describe physical symptoms of a seizure....but it is the faculties of the brain that are most important to driving - and you also seem to have full recall during and after the 'event' itself....untypical of a seizure. Did you have any 'funny or weird or odd" feelings just before the movement started, or weird smell or taste or sound or sight? Also, during the time of the "movement" you experienced, was your state of mind, or conciousness altered in any way at all - other than being scared out of your wits by what was happening - in a logical way - was there any 'out of control' 'out of the ordinary'

thought pattern happening? They may seem like dumb questions, but they will help to determine if what you had was a seizure or not - if it does happen again, if you get to the ER as quickly as possible and let them know, and tell them you need to asertain if it was a seizure or not by way of EEG - an EEG done within a few hours of a seizure in most cases will produce tell tale signs that a seizure did in fact occur. I hope that this info helps you, and if you'd like to ask me any questions about any of this - please feel free....I've been around the park a few times with seizures.

I sure hope that it isn't....and I do hope that you stay safe in the meantime. It's nice to see you back to posting such upbeat and lively letters - hope too that you don't get much more snow - I think that God must have by now used up most of next years "snow crop" already! and he best not be growing any more.

Take care, and know that I'm here if you need me. Faye

BARBARA TORREY wrote:

Dawn - Between the MS and the RSD and all of the needed meds, something funky could have been triggered off. Until your doc "clears" you, would you please consider not driving or at the very least, really cutting back on how far and how often you drive? My driving has been severely curtailed by my docs so I know that it ends up feeling like when we got grounded in high school (every other week here). They hit me in the heart when they mentioned the possibility of my hurting someone else on the road. Somehow, with all that was happening and my need to get to places, I had forgotten that one "little" aspect. Hugs - Barbara

[Guest guest]

Faye,

I am extremely glad that you wrote to me, because some of the things you just asked me about, I forgot until you just mentioned them again. I went to my Mom's and was fine. I felt fine all day except my normal feeling of exhaustion! I had dinner with her and a few minutes after dinner I started to have this feeling like I was a little lightheaded but very, very shakey like I had not eaten in a very long time. I did not know what was happening and did not want to upset my mother, so I put the dog in the car and drove home without telling her or saying anything. As soon as I got in the house my hands started to shake a little and then my entire body was shaking uncontrollably! I got scared, called my Mom, and while talking to her it just stopped. Then this morning after I got out of the shower I was putting on some makeup and noticed that my legs started shaking like crazy, but nothing else and again it stopped on its own. When

I went to the pharmacy, my Mom drove because we were both scared that it could happed again and I am not going to drive until I go to the doctors. Anything you can tell me I would really appreciate, because I know nothing about seizures or muscle spasms in the body and this really scares me. Anyhow just one more thing.

I have to leave the group because of the email that I wrote the other day. Jo was offended by it and cannot say that I blame her, but I cannot appologize for something that I feel is true, so I sorta got the boot. So if you would like you can right me privately if you would like to. My email is ddottidew@... and would love to talk from time to time. Thanks so much for the help and the friendship. You are very good for this group and hope that you are hear for a very, very long time. It was so nice to have met you and hope that we are able to talk once in a while! Thankyou again for the information that you just gave me, I really appreciate it! LOL and Best Wishes!

Dawn

FAYE PAPPLE-MURRAY wrote:

Dear Dawn.... - well, seizures - or the possibility of - and driving, are two things I do know about....alot. I've had them for 3.5 years and haven't driven for about the same amount of time - as soon as I realized that there was something not fully connected "upstairs" all the time, and before I got the seizure diagnosis. You certainly describe physical symptoms of a seizure....but it is the faculties of the brain that are most important to driving - and you also seem to have full recall during and after the 'event' itself....untypical of a seizure. Did you have any 'funny or weird or odd" feelings just before the movement started, or weird smell or taste or sound or sight? Also, during the time of the "movement" you experienced, was your state of mind, or conciousness altered in any way at all - other than being scared out of your wits by what was happening - in a logical way - was there any 'out of control' 'out of the ordinary'

thought pattern happening? They may seem like dumb questions, but they will help to determine if what you had was a seizure or not - if it does happen again, if you get to the ER as quickly as possible and let them know, and tell them you need to asertain if it was a seizure or not by way of EEG - an EEG done within a few hours of a seizure in most cases will produce tell tale signs that a seizure did in fact occur. I hope that this info helps you, and if you'd like to ask me any questions about any of this - please feel free....I've been around the park a few times with seizures.

I sure hope that it isn't....and I do hope that you stay safe in the meantime. It's nice to see you back to posting such upbeat and lively letters - hope too that you don't get much more snow - I think that God must have by now used up most of next years "snow crop" already! and he best not be growing any more.

Take care, and know that I'm here if you need me. Faye

BARBARA TORREY wrote:

Dawn - Between the MS and the RSD and all of the needed meds, something funky could have been triggered off. Until your doc "clears" you, would you please consider not driving or at the very least, really cutting back on how far and how often you drive? My driving has been severely curtailed by my docs so I know that it ends up feeling like when we got grounded in high school (every other week here). They hit me in the heart when they mentioned the possibility of my hurting someone else on the road. Somehow, with all that was happening and my need to get to places, I had forgotten that one "little" aspect. Hugs - Barbara

[Guest guest]

got the boot. >

>Dawn, what do you mean you sort of got the boot? Jeez, I'm

confused. E-mail me at nannyshere@... if you want to talk about

it. I hope you don't leave the group! I care about you and worry

like a nanny does. Please write. God Bless, JanetM

[Guest guest]

To the Group: Re: Dawn

Just for the record.. I did NOT ask Dawn to leave.. Nor did I give her the

" BOOT " . In fact, I sent her a private email NOT because I was offended, but

feared others may be. I felt her email accused someone of talking behind

other's backs and didn't want anyone to worry that they were the ones being

talked about..

Me, I am going to practice what I preach and keep my " conversation " with Dawn

private.

Jo

[Guest guest]

Hi Dawn - This is just a quickie while my bath gets colder - I just wanted to say that I'm thinking of you, and when I get back from the doctors tonight I'm going to write you a letter. Keep your spirits up, remember we still have pool boys and cabana boys to hire for 2006. I really do so look forward to the day that I actually get to "clink" glasses with you. Where ever that may be - and you REALLY just don't know where that might be! Surprises are always just around the corner.... I'll talk to you soon, and in the mean time you be extra good to yourself - I'm really sorry that you're feeling so crappy right now. This "a different season every day" weather is for the toilet. Take care love fayedawn lorenz wrote:

Hi Everyone,

Just wanted to write quickly and wish everyone well. I have not posted the past two days, because feeling awful again.

[Guest guest]

OUCH!!!!!

-------Original Message-------

You wont believe it!! Last night I was eating an orange and lost part of a tooth! Well the way the tooth chipped it is rubbing against my tongue and now my left side of my face is swollen and I cannot eat or drink, because it has also caused my tongue to be swollen and cannot talk without the tooth rubbing my tongue. Dawn

[Guest guest]

OUCH!!!!!

-------Original Message-------

You wont believe it!! Last night I was eating an orange and lost part of a tooth! Well the way the tooth chipped it is rubbing against my tongue and now my left side of my face is swollen and I cannot eat or drink, because it has also caused my tongue to be swollen and cannot talk without the tooth rubbing my tongue. Dawn

[Guest guest]

when will you see the dentist. this sounds like it hurts real bad hope

you can get it fixed real fast and out of pain. cathy

[Guest guest]

how did you make out with the dentist and that broken tooth. cathy

[Guest guest]

Cathy,

I cannot go until Monday, but the tooth is feeling better. I just have a real sore spot on the left side of my mouth and eating soft foods for now. Hope all is well with you and just woke up to anoter 4 or so inches of snow!! It is so disgusting anymore and never seen this much!! At this point waiting for the four foot blizard!!!! They say today is going to be the last of it for a while, but we will just have to wait and see!!! Hope all again is well with you! Take Care and LOL!!!

Dawn

fishthatsmiles@... wrote:

how did you make out with the dentist and that broken tooth. cathy