Re: New Member Kathy Drummond

[Guest guest]

Donna is swamped right now, as her husband has recently had surgery, etc.

Give her about a month, and then try her again. I would also recommend you

to NF Inc. with headquarters in land, near DC. How old is your

daughter? Marie

New Member Kathy Drummond

> My name is Kathy Drummond and I live in Yorktown Virginia. My email

> address is k.m.drummond@... (work) or kdrummond15@...

(home).

> My daughter was diagnosed with NF2 in Feb. 2003.

>

> I am interested in finding out as much information as I can about NF2. I

> have been searching the web and doing as much research as I can. One of

my

> Doctors gave me an excellent article written by Donna Getz. I emailed her

> but haven't heard back from her yet.

>

> Thank you

> Kathy

>

>

>

[Guest guest]

Hi Marie,

My daughter is 15. She had the AN (4cm in size) on her right side

removed on March 21st since the hearing in that ear was gone. Dr. Prass did

the surgery. He did a great job. They aren't going to touch the other side

unless she has further complications. She is losing her hearing in her left

ear faster then we had anticipated. We are taking sign language classes now

as a family.

The one problem she is having that nobody seems to be able to explain is the

foot drop she is experiencing. (left foot) The weird thing is she walked

fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

after surgery. It is getting a little better but for a 15 year old not being

able to walk right is a big deal. I have been reading several messages and

several people have mentioned that balance problems are common after AN

surgery.

Has anyone else experienced problems with foot drop and will it get better.

Thanks

Kathy

New Member Kathy Drummond

>

>

> > My name is Kathy Drummond and I live in Yorktown Virginia. My email

> > address is k.m.drummond@... (work) or kdrummond15@...

> (home).

> > My daughter was diagnosed with NF2 in Feb. 2003.

> >

> > I am interested in finding out as much information as I can about NF2. I

> > have been searching the web and doing as much research as I can. One of

> my

> > Doctors gave me an excellent article written by Donna Getz. I emailed

her

> > but haven't heard back from her yet.

> >

> > Thank you

> > Kathy

> >

> >

> >

[Guest guest]

Hi Kathy, have no experience wiht footdrop, sorry. but, I'll go out on a

limb here and say that I very much doubt an AN surgery would lead to

footdrop, spinal yes, AN surgery???????? I don't think so.

I think foot drop happens in Nf2, unassociated with surgery, although many

others would not agree... perhaps to do with schwann cell proliferation,

muscle/nerve degeneration...but that is just what I think...

but logically, if it is not associated with post-surgery nerve damage, I

think you could make foot drop improve....has anybody had any experience of

this??? worked on it??

on 14/5/03 5:50 PM, Kathy Drummond at kdrummond15@... wrote:

> Hi Marie,

> My daughter is 15. She had the AN (4cm in size) on her right side

> removed on March 21st since the hearing in that ear was gone. Dr. Prass did

> the surgery. He did a great job. They aren't going to touch the other side

> unless she has further complications. She is losing her hearing in her left

> ear faster then we had anticipated. We are taking sign language classes now

> as a family.

>

> The one problem she is having that nobody seems to be able to explain is the

> foot drop she is experiencing. (left foot) The weird thing is she walked

> fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

> after surgery. It is getting a little better but for a 15 year old not being

> able to walk right is a big deal. I have been reading several messages and

> several people have mentioned that balance problems are common after AN

> surgery.

>

> Has anyone else experienced problems with foot drop and will it get better.

> Thanks

> Kathy

> New Member Kathy Drummond

>>

>>

>>> My name is Kathy Drummond and I live in Yorktown Virginia. My email

>>> address is k.m.drummond@... (work) or kdrummond15@...

>> (home).

>>> My daughter was diagnosed with NF2 in Feb. 2003.

>>>

>>> I am interested in finding out as much information as I can about NF2. I

>>> have been searching the web and doing as much research as I can. One of

>> my

>>> Doctors gave me an excellent article written by Donna Getz. I emailed

> her

>>> but haven't heard back from her yet.

>>>

>>> Thank you

>>> Kathy

>>>

>>>

>>>

[Guest guest]

Yes, that happened to me at 15 too, my foot dropped 6 months after a surgery

that seemed to be unrelated to it,. I am 34 now, the foot just stayed the same

after a certain point, not better or worse.

Kathy Drummond wrote:

> Hi Marie,

> My daughter is 15. She had the AN (4cm in size) on her right side

> removed on March 21st since the hearing in that ear was gone. Dr. Prass did

> the surgery. He did a great job. They aren't going to touch the other side

> unless she has further complications. She is losing her hearing in her left

> ear faster then we had anticipated. We are taking sign language classes now

> as a family.

>

> The one problem she is having that nobody seems to be able to explain is the

> foot drop she is experiencing. (left foot) The weird thing is she walked

> fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

> after surgery. It is getting a little better but for a 15 year old not being

> able to walk right is a big deal. I have been reading several messages and

> several people have mentioned that balance problems are common after AN

> surgery.

>

> Has anyone else experienced problems with foot drop and will it get better.

> Thanks

> Kathy

> New Member Kathy Drummond

> >

> >

> > > My name is Kathy Drummond and I live in Yorktown Virginia. My email

> > > address is k.m.drummond@... (work) or kdrummond15@...

> > (home).

> > > My daughter was diagnosed with NF2 in Feb. 2003.

> > >

> > > I am interested in finding out as much information as I can about NF2. I

> > > have been searching the web and doing as much research as I can. One of

> > my

> > > Doctors gave me an excellent article written by Donna Getz. I emailed

> her

> > > but haven't heard back from her yet.

> > >

> > > Thank you

> > > Kathy

> > >

> > >

> > >

[Guest guest]

rosemary once that foot drops I dont think can get it back, just my opinion.

mine

dropped out of the blue too. the good news is I can walk without a foot drop

brace.

Rosemary Lee wrote:

> Hi Kathy, have no experience wiht footdrop, sorry. but, I'll go out on a

> limb here and say that I very much doubt an AN surgery would lead to

> footdrop, spinal yes, AN surgery???????? I don't think so.

>

> I think foot drop happens in Nf2, unassociated with surgery, although many

> others would not agree... perhaps to do with schwann cell proliferation,

> muscle/nerve degeneration...but that is just what I think...

>

> but logically, if it is not associated with post-surgery nerve damage, I

> think you could make foot drop improve....has anybody had any experience of

> this??? worked on it??

>

> on 14/5/03 5:50 PM, Kathy Drummond at kdrummond15@... wrote:

>

> > Hi Marie,

> > My daughter is 15. She had the AN (4cm in size) on her right side

> > removed on March 21st since the hearing in that ear was gone. Dr. Prass did

> > the surgery. He did a great job. They aren't going to touch the other side

> > unless she has further complications. She is losing her hearing in her left

> > ear faster then we had anticipated. We are taking sign language classes now

> > as a family.

> >

> > The one problem she is having that nobody seems to be able to explain is the

> > foot drop she is experiencing. (left foot) The weird thing is she walked

> > fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

> > after surgery. It is getting a little better but for a 15 year old not being

> > able to walk right is a big deal. I have been reading several messages and

> > several people have mentioned that balance problems are common after AN

> > surgery.

> >

> > Has anyone else experienced problems with foot drop and will it get better.

> > Thanks

> > Kathy

> > New Member Kathy Drummond

> >>

> >>

> >>> My name is Kathy Drummond and I live in Yorktown Virginia. My email

> >>> address is k.m.drummond@... (work) or kdrummond15@...

> >> (home).

> >>> My daughter was diagnosed with NF2 in Feb. 2003.

> >>>

> >>> I am interested in finding out as much information as I can about NF2. I

> >>> have been searching the web and doing as much research as I can. One of

> >> my

> >>> Doctors gave me an excellent article written by Donna Getz. I emailed

> > her

> >>> but haven't heard back from her yet.

> >>>

> >>> Thank you

> >>> Kathy

> >>>

> >>>

> >>>

[Guest guest]

really? ok, you know what is amazing, you do a pubmed search on

dropfoot/Nf2...not one paper.

on 14/5/03 8:05 PM, Cindy at cinnyd@... wrote:

> rosemary once that foot drops I dont think can get it back, just my opinion.

> mine

> dropped out of the blue too. the good news is I can walk without a foot drop

> brace.

>

> Rosemary Lee wrote:

>

>> Hi Kathy, have no experience wiht footdrop, sorry. but, I'll go out on a

>> limb here and say that I very much doubt an AN surgery would lead to

>> footdrop, spinal yes, AN surgery???????? I don't think so.

>>

>> I think foot drop happens in Nf2, unassociated with surgery, although many

>> others would not agree... perhaps to do with schwann cell proliferation,

>> muscle/nerve degeneration...but that is just what I think...

>>

>> but logically, if it is not associated with post-surgery nerve damage, I

>> think you could make foot drop improve....has anybody had any experience of

>> this??? worked on it??

>>

>> on 14/5/03 5:50 PM, Kathy Drummond at kdrummond15@... wrote:

>>

>>> Hi Marie,

>>> My daughter is 15. She had the AN (4cm in size) on her right side

>>> removed on March 21st since the hearing in that ear was gone. Dr. Prass did

>>> the surgery. He did a great job. They aren't going to touch the other side

>>> unless she has further complications. She is losing her hearing in her left

>>> ear faster then we had anticipated. We are taking sign language classes now

>>> as a family.

>>>

>>> The one problem she is having that nobody seems to be able to explain is the

>>> foot drop she is experiencing. (left foot) The weird thing is she walked

>>> fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

>>> after surgery. It is getting a little better but for a 15 year old not being

>>> able to walk right is a big deal. I have been reading several messages and

>>> several people have mentioned that balance problems are common after AN

>>> surgery.

>>>

>>> Has anyone else experienced problems with foot drop and will it get better.

>>> Thanks

>>> Kathy

>>> New Member Kathy Drummond

>>>>

>>>>

>>>>> My name is Kathy Drummond and I live in Yorktown Virginia. My email

>>>>> address is k.m.drummond@... (work) or kdrummond15@...

>>>> (home).

>>>>> My daughter was diagnosed with NF2 in Feb. 2003.

>>>>>

>>>>> I am interested in finding out as much information as I can about NF2. I

>>>>> have been searching the web and doing as much research as I can. One of

>>>> my

>>>>> Doctors gave me an excellent article written by Donna Getz. I emailed

>>> her

>>>>> but haven't heard back from her yet.

>>>>>

>>>>> Thank you

>>>>> Kathy

>>>>>

>>>>>

>>>>>

[Guest guest]

its so common too, without polling Id bet 95% here have foot drop. just a

guess. my

dr shrugged his shoulders yrs ago when I asked. interesting my GOOD foot is a

bit

not right too but its the opposite, hard to flex downward instead of upward, it

is

holding its own for now and I think actually compensates for the other.

Rosemary Lee wrote:

> really? ok, you know what is amazing, you do a pubmed search on

> dropfoot/Nf2...not one paper.

>

> on 14/5/03 8:05 PM, Cindy at cinnyd@... wrote:

>

> > rosemary once that foot drops I dont think can get it back, just my

opinion.

> > mine

> > dropped out of the blue too. the good news is I can walk without a foot

drop

> > brace.

> >

> > Rosemary Lee wrote:

> >

> >> Hi Kathy, have no experience wiht footdrop, sorry. but, I'll go out on a

> >> limb here and say that I very much doubt an AN surgery would lead to

> >> footdrop, spinal yes, AN surgery???????? I don't think so.

> >>

> >> I think foot drop happens in Nf2, unassociated with surgery, although many

> >> others would not agree... perhaps to do with schwann cell proliferation,

> >> muscle/nerve degeneration...but that is just what I think...

> >>

> >> but logically, if it is not associated with post-surgery nerve damage, I

> >> think you could make foot drop improve....has anybody had any experience

of

> >> this??? worked on it??

> >>

> >> on 14/5/03 5:50 PM, Kathy Drummond at kdrummond15@... wrote:

> >>

> >>> Hi Marie,

> >>> My daughter is 15. She had the AN (4cm in size) on her right side

> >>> removed on March 21st since the hearing in that ear was gone. Dr. Prass

did

> >>> the surgery. He did a great job. They aren't going to touch the other side

> >>> unless she has further complications. She is losing her hearing in her

left

> >>> ear faster then we had anticipated. We are taking sign language classes

now

> >>> as a family.

> >>>

> >>> The one problem she is having that nobody seems to be able to explain is

the

> >>> foot drop she is experiencing. (left foot) The weird thing is she walked

> >>> fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

> >>> after surgery. It is getting a little better but for a 15 year old not

being

> >>> able to walk right is a big deal. I have been reading several messages

and

> >>> several people have mentioned that balance problems are common after AN

> >>> surgery.

> >>>

> >>> Has anyone else experienced problems with foot drop and will it get

better.

> >>> Thanks

> >>> Kathy

> >>> New Member Kathy Drummond

> >>>>

> >>>>

> >>>>> My name is Kathy Drummond and I live in Yorktown Virginia. My email

> >>>>> address is k.m.drummond@... (work) or kdrummond15@...

> >>>> (home).

> >>>>> My daughter was diagnosed with NF2 in Feb. 2003.

> >>>>>

> >>>>> I am interested in finding out as much information as I can about NF2. I

> >>>>> have been searching the web and doing as much research as I can. One of

> >>>> my

> >>>>> Doctors gave me an excellent article written by Donna Getz. I emailed

> >>> her

> >>>>> but haven't heard back from her yet.

> >>>>>

> >>>>> Thank you

> >>>>> Kathy

> >>>>>

> >>>>>

> >>>>>

[Guest guest]

I have foot drop in my left foot. I see a chiropractor once every two

weeks. He adjusts me and I walk better. He works with my foot for a little

while also. It helps to spell the alphabet with your ankle. That sounds

funny but it strengthens the foot. I just had a baby so the weight gain all

in the front has made my drop foot worse. I am working on getting it better

slowly. Exercise helps a TON. There is one specific weight machine that

sits on your shoulders and you lift up with your feet. I don't know the

name of the machine but as long as I was working out at least three times a

week I walked better. During my pregnancy I was given an AFO - Drop Foot

Brace to wear so I would not fall. All it did really was make my foot more

weak because it held my foot up for me without me having to do any work.

Re: New Member Kathy Drummond

Hi Marie,

My daughter is 15. She had the AN (4cm in size) on her right side

removed on March 21st since the hearing in that ear was gone. Dr. Prass did

the surgery. He did a great job. They aren't going to touch the other side

unless she has further complications. She is losing her hearing in her left

ear faster then we had anticipated. We are taking sign language classes now

as a family.

The one problem she is having that nobody seems to be able to explain is the

foot drop she is experiencing. (left foot) The weird thing is she walked

fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

after surgery. It is getting a little better but for a 15 year old not being

able to walk right is a big deal. I have been reading several messages and

several people have mentioned that balance problems are common after AN

surgery.

Has anyone else experienced problems with foot drop and will it get better.

Thanks

Kathy

New Member Kathy Drummond

>

>

> > My name is Kathy Drummond and I live in Yorktown Virginia. My email

> > address is k.m.drummond@... (work) or kdrummond15@...

> (home).

> > My daughter was diagnosed with NF2 in Feb. 2003.

> >

> > I am interested in finding out as much information as I can about NF2. I

> > have been searching the web and doing as much research as I can. One of

> my

> > Doctors gave me an excellent article written by Donna Getz. I emailed

her

> > but haven't heard back from her yet.

> >

> > Thank you

> > Kathy

> >

> >

> >

[Guest guest]

Once again, I have to be the oddball

After my right AN removal (2nd AN) I had drop foot. They fitted me with an

brace which I hated but it helped some. There were times when I couldnt wear

the brace (such as skiing) and times when I just didnt wear the brace ,

and a year after the surgery, my drop foot was pretty well gone. I can move

the foot in any direction but I cannot wiggle the toes, so I still have

problems sometimes. But at least in my case, it was possible to regain a lot

of the strength in the drop foot.

Pete

Re: New Member Kathy Drummond

rosemary once that foot drops I dont think can get it back, just my

opinion. mine

dropped out of the blue too. the good news is I can walk without a foot

drop

brace.

Rosemary Lee wrote:

> Hi Kathy, have no experience wiht footdrop, sorry. but, I'll go out on a

> limb here and say that I very much doubt an AN surgery would lead to

> footdrop, spinal yes, AN surgery???????? I don't think so.

>

> I think foot drop happens in Nf2, unassociated with surgery, although many

> others would not agree... perhaps to do with schwann cell proliferation,

> muscle/nerve degeneration...but that is just what I think...

>

> but logically, if it is not associated with post-surgery nerve damage, I

> think you could make foot drop improve....has anybody had any experience

of

> this??? worked on it??

>

> on 14/5/03 5:50 PM, Kathy Drummond at kdrummond15@... wrote:

>

> > Hi Marie,

> > My daughter is 15. She had the AN (4cm in size) on her right

side

> > removed on March 21st since the hearing in that ear was gone. Dr. Prass

did

> > the surgery. He did a great job. They aren't going to touch the other

side

> > unless she has further complications. She is losing her hearing in her

left

> > ear faster then we had anticipated. We are taking sign language classes

now

> > as a family.

> >

> > The one problem she is having that nobody seems to be able to explain is

the

> > foot drop she is experiencing. (left foot) The weird thing is she

walked

> > fine right after surgery. The foot drop didn't appear until 2 to 3 weeks

> > after surgery. It is getting a little better but for a 15 year old not

being

> > able to walk right is a big deal. I have been reading several messages

and

> > several people have mentioned that balance problems are common after AN

> > surgery.

> >

> > Has anyone else experienced problems with foot drop and will it get

better.

> > Thanks

> > Kathy

> > New Member Kathy Drummond

> >>

> >>

> >>> My name is Kathy Drummond and I live in Yorktown Virginia. My email

> >>> address is k.m.drummond@... (work) or kdrummond15@...

> >> (home).

> >>> My daughter was diagnosed with NF2 in Feb. 2003.

> >>>

> >>> I am interested in finding out as much information as I can about NF2.

I

> >>> have been searching the web and doing as much research as I can. One

of

> >> my

> >>> Doctors gave me an excellent article written by Donna Getz. I emailed

> > her

> >>> but haven't heard back from her yet.

> >>>

> >>> Thank you

> >>> Kathy

> >>>

> >>>

> >>>

[Guest guest]

You need to ask this on the Crew; I do not have drop foot, but MANY people

do; some wear braces, others have done different things. There is a lot of

experience out there. Marie

New Member Kathy Drummond

> >

> >

> > > My name is Kathy Drummond and I live in Yorktown Virginia. My email

> > > address is k.m.drummond@... (work) or kdrummond15@...

> > (home).

> > > My daughter was diagnosed with NF2 in Feb. 2003.

> > >

> > > I am interested in finding out as much information as I can about NF2.

I

> > > have been searching the web and doing as much research as I can. One

of

> > my

> > > Doctors gave me an excellent article written by Donna Getz. I emailed

> her

> > > but haven't heard back from her yet.

> > >

> > > Thank you

> > > Kathy

> > >

> > >

> > >

[Guest guest]

on 14/5/03 11:14 PM, Brayman at pete@... wrote:

> After my right AN removal (2nd AN) I had drop foot.

another one, after an AN removal? soon after?

[Guest guest]

I had the leftt side done in 91 (2 surgeries, 2 weeks apart)

Right side was in 98 (1 surgery)

Pete

Re: New Member Kathy Drummond

on 14/5/03 11:14 PM, Brayman at pete@... wrote:

> After my right AN removal (2nd AN) I had drop foot.

another one, after an AN removal? soon after?