Re: my children FROM CATHERINE NOT MARIE DREW

[Guest guest]

HI VICKIE,

THE GRANDCHILDREN

THAT HAVE NF BELONG TO THE DAUGHTERS WITH NF 2 DAUGHTER REBECCA

CHANCEY (ON THE CREW) HAS A DAUGHTER HEATHER WHO WILL BE 21 NEXT

MONTH SHE HAS NF2 HAD BILATERAL AN'S REMOVED AT HEI WHEN SHE WAS 18 HER

HEARING WAS SAVED AND HER FACIAL NERVE TOO.

BECKY ALSO HAS

A SON JEFFREY , JUST TURNED 17 THE 2 OF APRIL HE ALSO HAD BILATERAL AN'S

REMOVED AT HEI WHEN HE WAS 15 THE HEARING WAS SAVED ON ONE SIDE BUT IS

DEAF ON THE OTHER SIDE HIS FACIAL NERVE WAS SAVED.

YOUNGEST

DAUGHTER CAROLYN(NOT ON CREW NOW TO BUSY WITH 3 CHILDREN) HER OLDEST IS

SON ANTHONY HE HAS NF2 HE HAD SURGERY AT HEI LAST OCTOBER JUST AFTER HIS

9th BIRTHDAY THE HEARING WAS SAVED. THE MRI SHOWED MULTIPLE TUMORS SO WE

DON'T KNOW WHAT WILL HAPPEN IN THE FUTURE.

CAROLYN ALSO

HAS 2 DAUGHTERS AGES 6 AND 4 THEY HAVE NOT BEEN TESTED.

NEXT TO THE

YOUNGEST DAUGHTER SARAH HAS 2 DAUGHTERS AGES 9 AND 6 NEITHER HAVE

BEEN TESTED BUT THE YOUNGEST HAS A CAFE LATE MARK CONFIRMED BY HER DOCTOR.

OF MY 3 DAUGHTERS WITH NF

SARAH HAS THE WORST SERIOUS CASE SHE HAD BILATERAL AN'S REMOVED AT HEI

HEARING SAVED ON BOTH SIDES. SHE ALSO HAD A MENGINNOMA HAS A SHUNT

AND A TITANIUM PLATE IN HER SKULL ALMOST LOST HER VISION FROM THIS TUMOR

SORRY FOR THE CONFUSION VICKIE.

MY COMPUTER USED TO BELONG

TO MARIE DREW FROM THE CREW AND UNTIL MY FRIEND GETS TIME TO WORK ON IT

MY EMAILS SAY THEY ARE FROM MARIE

CATHERINE

vjpcook@... wrote:

,

How does it happen that your grandchildren with NF2 belong to daughters

without NF2? I thought this disorder was direct mutation and

did not skip a

generation. Vicki

[Guest guest]

,

Thanks for that explanation. Wow! Your family has so much NF history and

future. My prayers, thoughts and wishes are with you. Love, Vicki

[Guest guest]

VICKIE,

IT WAS SO THOUGHTFUL OF YOU TO REPLY TO MY NOTE. I KNOW YOU HAVE YOUR

HANDS FULL TAKING CARE OF ANN.. YOU ARE AND ANN AND THE FAMILY ARE IN MY

PRAYERS ALL THE TIME

A BIG HUG

CATHERINE