Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 it is ard to gt mentally used to a wheel chair. i have been in one for 12 years. i am embarrase when my husband has to push me. i do have an electric but sometimes i need manual. i do not like the looks either. peole see the outside . not what is on going on the inside. but i do get around in my wheel chair and this is what is important. me. not what others think of me. love ya cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 You’re so right, despite how it feels we gotta do what we gotta do… And truthfully, I think most of the time, people are just curious, not making any judgments or anything. I once had the cutest experience – my husband Greg was pushing me through a store and we came up to a little boy, about 2 yrs old. He was looking and looking at my feet, and then he looked up at me and said “Do they move?” (it was so innocent and precious). I said “Oh yes, I can move them” (and waved my feet around a bit for him) “but it hurts to walk on them.” He just said “Oh!” and moved on. His mom thanked me for my explanation – and looked relieved that I wasn’t offended – but I was tickled. I thought it was the cutest sweetest thing in the world. And it made me realize that adults are probably just wondering the same thing! Do they move? Why does she have to use a chair? I think it’s really quite innocent…I probably looked at people in wheelchairs too, before, b/c it was just something out of the ordinary (and I’m a big people-watcher to begin with). So I try to keep that in mind when I’m in my chair, and stop all my OWN judgmental voices from going off… Have a happy day! Aly RE: to allyson it is ard to gt mentally used to a wheel chair. i have been in one for 12 years. i am embarrase when my husband has to push me. i do have an electric but sometimes i need manual. i do not like the looks either. peole see the outside . not what is on going on the inside. but i do get around in my wheel chair and this is what is important. me. not what others think of me. love ya cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Hi Aly and Cathy! Wishing for both of you a good day! I read your posts and cannot help, but think of both of you, others, and myself, that have had to use wheelchairs in the past, or currently, and have to depend on others to help us get around! Being in this group, where RSD is the culprit of many of our health problems and is the cause of most of our pain, it is hard for many of us to accept what the RSD has done to us. Like many, the RSD has hit us at an early age, and has taken away our independence and quality of life. I, too, have had a very hard time dealing with all of it, and have had to swallow my pride many times. I guess, for myself, I have come to the realization, that I need to forget about my thinking of others and what they may think of me, or my disability. I now take each day as it comes, and get the most out of each day, that I can. I know that life will never be for me, what I had hoped for, but I still have my life, my family, and know that others have many more problems than I.Please take care, and my thoughts and prayers and support to go out to you and everyone else in the group. Hugs from me. ConnieAlyson Ritchie wrote: You’re so right, despite how it feels we gotta do what we gotta do… And truthfully, I think most of the time, people are just curious, not making any judgments or anything. I once had the cutest experience – my husband Greg was pushing me through a store and we came up to a little boy, about 2 yrs old. He was looking and looking at my feet, and then he looked up at me and said “Do they move?” (it was so innocent and precious). I said “Oh yes, I can move them” (and waved my feet around a bit for him) “but it hurts to walk on them.” He just said “Oh!” and moved on. His mom thanked me for my explanation – and looked relieved that I wasn’t offended – but I was tickled. I thought it was the cutest sweetest thing in the world. And it made me realize that adults are probably just wondering the same thing! Do they move? Why does she have to use a chair? I think it’s really quite innocent…I probably looked at people in wheelchairs too, before, b/c it was just something out of the ordinary (and I’m a big people-watcher to begin with). So I try to keep that in mind when I’m in my chair, and stop all my OWN judgmental voices from going off… Have a happy day! Aly -----Original Message-----From: fishthatsmiles@... Sent: Wednesday, February 23, 2005 6:51 AMTo: RSD-CRPSofAmerica Subject: RE: to allyson it is ard to gt mentally used to a wheel chair. i have been in one for12 years. i am embarrase when my husband has to push me. i do have anelectric but sometimes i need manual. i do not like the looks either.peole see the outside . not what is on going on the inside. but i doget around in my wheel chair and this is what is important. me. notwhat others think of me. love ya cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Hi Connie, How I hated reading that phrase “I know that life will never be for me, what I had hoped for…” – it’s so sad, isn’t it? Adjusting to a disability (full or partial) is incredibly difficult emotionally. But I think that like you said, we have to focus on what we DO have, and not on what we’d originally planned on having. We (everyone) make so many plans in life, based on the assumption that life will go just as we foresee it. The fact is none of us knows what life will really bring, and we often have no control over it. The only thing we have control over is how we deal with what comes, how we react to it. We can either be victims of the things that happen to us, or we can take the bull by the horns and create a new reality for ourselves. It’s hard to let go of those old dreams…but I think our current happiness depends on our ability to do so, don’t you? Sounds like that’s what you’ve done. Anyway. I think I’m preaching to the choir, I just got on a roll. Hope you do well today, and continue embrace the good in your new life without looking back Aly RE: to allyson it is ard to gt mentally used to a wheel chair. i have been in one for 12 years. i am embarrase when my husband has to push me. i do have an electric but sometimes i need manual. i do not like the looks either. peole see the outside . not what is on going on the inside. but i do get around in my wheel chair and this is what is important. me. not what others think of me. love ya cathy Community email addresses: Post message:RSD-CRPSofAmerica Shortcut URL to this page:http://groups.yahoo.com/group/RSD-CRPSofAmerica Community email addresses: Post message:RSD-CRPSofAmerica Shortcut URL to this page:http://groups.yahoo.com/group/RSD-CRPSofAmerica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 Hi Aly! Thanks for the reply! You sure are right, and thanks for the acknowledgement of what I, like many others have lost in life, because of this RSD, and everything else that goes with it. Wishing you the best of days - and hope your pain levels are at a tolerable level. Hugs to you, ConnieAlyson Ritchie wrote: Hi Connie, How I hated reading that phrase “I know that life will never be for me, what I had hoped for…” – it’s so sad, isn’t it? Adjusting to a disability (full or partial) is incredibly difficult emotionally. But I think that like you said, we have to focus on what we DO have, and not on what we’d originally planned on having. We (everyone) make so many plans in life, based on the assumption that life will go just as we foresee it. The fact is none of us knows what life will really bring, and we often have no control over it. The only thing we have control over is how we deal with what comes, how we react to it. We can either be victims of the things that happen to us, or we can take the bull by the horns and create a new reality for ourselves. It’s hard to let go of those old dreams…but I think our current happiness depends on our ability to do so, don’t you? Sounds like that’s what you’ve done. Anyway. I think I’m preaching to the choir, I just got on a roll. Hope you do well today, and continue embrace the good in your new life without looking back Aly -----Original Message-----From: Connie Field Sent: Wednesday, February 23, 2005 9:57 AMTo: RSD-CRPSofAmerica Subject: RE: to allyson Hi Aly and Cathy! Wishing for both of you a good day! I read your posts and cannot help, but think of both of you, others, and myself, that have had to use wheelchairs in the past, or currently, and have to depend on others to help us get around! Being in this group, where RSD is the culprit of many of our health problems and is the cause of most of our pain, it is hard for many of us to accept what the RSD has done to us. Like many, the RSD has hit us at an early age, and has taken away our independence and quality of life. I, too, have had a very hard time dealing with all of it, and have had to swallow my pride many times. I guess, for myself, I have come to the realization, that I need to forget about my thinking of others and what they may think of me, or my disability. I now take each day as it comes, and get the most out of each day, that I can. I know that life will never be for me, what I had hoped for, but I still have my life, my family, and know that others have many more problems than I.Please take care, and my thoughts and prayers and support to go out to you and everyone else in the group. Hugs from me. ConnieAlyson Ritchie wrote: You’re so right, despite how it feels we gotta do what we gotta do… And truthfully, I think most of the time, people are just curious, not making any judgments or anything. I once had the cutest experience – my husband Greg was pushing me through a store and we came up to a little boy, about 2 yrs old. He was looking and looking at my feet, and then he looked up at me and said “Do they move?” (it was so innocent and precious). I said “Oh yes, I can move them” (and waved my feet around a bit for him) “but it hurts to walk on them.” He just said “Oh!” and moved on. His mom thanked me for my explanation – and looked relieved that I wasn’t offended – but I was tickled. I thought it was the cutest sweetest thing in the world. And it made me realize that adults are probably just wondering the same thing! Do they move? Why does she have to use a chair? I think it’s really quite innocent…I probably looked at people in wheelchairs too, before, b/c it was just something out of the ordinary (and I’m a big people-watcher to begin with). So I try to keep that in mind when I’m in my chair, and stop all my OWN judgmental voices from going off… Have a happy day! Aly -----Original Message-----From: fishthatsmiles@... Sent: Wednesday, February 23, 2005 6:51 AMTo: RSD-CRPSofAmerica Subject: RE: to allyson it is ard to gt mentally used to a wheel chair. i have been in one for12 years. i am embarrase when my husband has to push me. i do have anelectric but sometimes i need manual. i do not like the looks either.peole see the outside . not what is on going on the inside. but i doget around in my wheel chair and this is what is important. me. notwhat others think of me. love ya cathy Quote Link to comment Share on other sites More sharing options...
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