Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Hello, Ok. So I finally talked with the director of transportation from Longwood (NY) about my son not having an epipen on the bus and the whole " the bus comes early, doesn't beep the horn, and leaves " problem. She was very nice, but isn't into solving problems quickly. I guess when it's not YOUR kid being unprotected it doesn't seem urgent. She said they are having a committee meeting in 2 weeks and will talk about it. She said this problem is becoming more popular because there are so many kids who need epipens now. I guess they are just waiting for a kid to die before actually doing something. I thought we could get my son on a mini-bus with the one really allergic kid who has his own bus- but guess what? he's not allergic to peanuts. OMG. So, i told the director that I would be writing a letter and would like a response in writing (basically so when something happens i have proof that they were aware of the danger and did nothing) And maybe it will force them to take it seriously. When my son was tested for a peanut allergy (and other foods) his count was over 100. To put it in perspective- 5 to 10 is a severe allergy, above that can be deadly- my kid was over 100. Has anyone written a letter or this stuff into an IEP? Can you email me directly? I was doing some research and found this- http://www.drgreene.com/21_1154.html > Once you have educated yourself on emergency care, it is vital that you > educate any other adult who will be caring for your child. These adults should > know CPR and should have a kit. In a chilling study from s Hopkins > University, thirteen children with life-threatening nut allergies were > followed and six of them died. All six of these children had ingested nuts > while at their various schools. They immediately went to their school nurses > who told them to lie down and see if they felt better. Each of them did feel > better and went back to class -- and died. Speak with your child's teachers, > principal, and school nurse in person. Any adult taking care of your child > should be given a written note that indicates your child has a > life-threatening allergy. I need to call my local allergy support group- i remember seeing them somewhere. thanks, christine@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Yes, you need to get in touch with your local allergy group and also PUSH to get a 504 plan written up for his peanut allergy issues. It does impact his education in that with any reaction, he would either be hospitalized or be dead, and thus, not able to participate in his classroom education. Sounds silly but this is the way you have to look at it. They will try to convince you that you don't need one, or that he's not eligible for it, however, if you don't manage to get it written into either his IEP or a 504 plan, then you will have a hard time dealing with them legally if they do not do something that they " said " they would do. That is, if it is the 504 or in the IEP then they are legally bound to follow it. With just a gentleman's agreement between you and them, if they don't follow through, then you don't really have much of a leg to stand on in court. GET IT ON THE IEP OR GET THEM TO WRITE A 504 Plan. W > Hello, > > Ok. So I finally talked with the director of transportation from Longwood > (NY) about my son not having an epipen on the bus and the whole " the bus > comes early, doesn't beep the horn, and leaves " problem. > > She was very nice, but isn't into solving problems quickly. I guess when > it's not YOUR kid being unprotected it doesn't seem urgent. She said they > are having a committee meeting in 2 weeks and will talk about it. She said > this problem is becoming more popular because there are so many kids who > need epipens now. I guess they are just waiting for a kid to die before > actually doing something. > > I thought we could get my son on a mini-bus with the one really allergic kid > who has his own bus- but guess what? he's not allergic to peanuts. OMG. > > So, i told the director that I would be writing a letter and would like a > response in writing (basically so when something happens i have proof that > they were aware of the danger and did nothing) > And maybe it will force them to take it seriously. When my son was tested > for a peanut allergy (and other foods) his count was over 100. > To put it in perspective- 5 to 10 is a severe allergy, above that can be > deadly- my kid was over 100. > > Has anyone written a letter or this stuff into an IEP? Can you email me > directly? > > I was doing some research and found this- > > http://www.drgreene.com/21_1154.html > > Once you have educated yourself on emergency care, it is vital that you > > educate any other adult who will be caring for your child. These adults should > > know CPR and should have a kit. In a chilling study from s Hopkins > > University, thirteen children with life-threatening nut allergies were > > followed and six of them died. All six of these children had ingested nuts > > while at their various schools. They immediately went to their school nurses > > who told them to lie down and see if they felt better. Each of them did feel > > better and went back to class -- and died. Speak with your child's teachers, > > principal, and school nurse in person. Any adult taking care of your child > > should be given a written note that indicates your child has a > > life-threatening allergy. > > I need to call my local allergy support group- i remember seeing them > somewhere. > > thanks, > > christine@l... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Yes, insist that it be written into the IEP. You might also consider writing a letter and having the doctor who did the allergy testing sign it. Hassle, but they sometimes take it more seriously. S --- On Wed 12/01, christine@... < <tt> Hello,<BR> <BR> Ok. So I finally talked with the director of transportation from Longwood<BR> (NY) about my son not having an epipen on the bus and the whole " the bus<BR> comes early, doesn't beep the horn, and leaves " problem.<BR> <BR> She was very nice, but isn't into solving problems quickly. I guess when<BR> it's not YOUR kid being unprotected it doesn't seem urgent. She said they<BR> are having a committee meeting in 2 weeks and will talk about it. She said<BR> this problem is becoming more popular because there are so many kids who<BR> need epipens now. I guess they are just waiting for a kid to die before<BR> actually doing something.<BR> <BR> I thought we could get my son on a mini-bus with the one really allergic kid<BR> who has his own bus- but guess what? he's not allergic to peanuts. OMG.<BR> <BR> So, i told the director that I would be writing a letter and would like a<BR> response in writing (basically so when something happens i have proof that<BR> they were aware of the danger and did nothing)<BR> And maybe it will force them to take it seriously. When my son was tested<BR> for a peanut allergy (and other foods) his count was over 100.<BR> To put it in perspective- 5 to 10 is a severe allergy, above that can be<BR> deadly- my kid was over 100.<BR> <BR> Has anyone written a letter or this stuff into an IEP? Can you email me<BR> directly?<BR> <BR> I was doing some research and found this-<BR> <BR> <a href= " http://www.drgreene.com/21_1154.html " >http://www.drgreene.com/21_1154.html\ </a><BR> > Once you have educated yourself on emergency care, it is vital that you<BR> > educate any other adult who will be caring for your child. These adults should<BR> > know CPR and should have a kit. In a chilling study from s Hopkins<BR> > University, thirteen children with life-threatening nut allergies were<BR> > followed and six of them died. All six of these children had ingested nuts<BR> > while at their various schools. They immediately went to their school nurses<BR> > who told them to lie down and see if they felt better. Each of them did feel<BR> > better and went back to class -- and died. Speak with your child's teachers,<BR> > principal, and school nurse in person. Any adult taking care of your child<BR> > should be given a written note that indicates your child has a<BR> > life-threatening allergy.<BR> <BR> I need to call my local allergy support group- i remember seeing them<BR> somewhere.<BR> <BR> thanks,<BR> <BR> christine@...<BR> <BR> </tt> <br><br> <tt> =======================================================<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 > She was very nice, but isn't into solving problems quickly. I guess when > it's not YOUR kid being unprotected it doesn't seem urgent. She said they > are having a committee meeting in 2 weeks and will talk about it. If you request, in writing, an emergency IEP meeting, they will have to talk about it earlier. > So, i told the director that I would be writing a letter and would like a > response in writing (basically so when something happens i have proof that > they were aware of the danger and did nothing) Consider a letter that states something similar to the following -- " Dear [name], This letter is to inform you that I am removing my child from school attendance until his health and safety are adequately addressed. I choose to take this action now, rather than wait until the later time you stated, when he may have died in the interim. This letter is also my formal request for an emergency IEP meeting. " The letter will protect you from truancy charges, and the fact that you remove your child from school will hit them in their budget, which usually gets their attention. Good luck. Dana Quote Link to comment Share on other sites More sharing options...
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