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hey everyone i wanted to list the supplements my ASD daughter is taking

and get some opinions on if I am giving her enough or too much. She is 22

lbs and 23 months old.

Cod Liver Oil- 2500 IU per day

Nu thera w/p5p - 2 Caplets per day

Calcium w/Vitamin D- 999 mg of Calcium 174 IU Vitamin D A day

Zinc- 40 mg a day (Very low on hair test)

Grapefruit seed extract- 250 mg a day

Multi Enzyme Formula- 1 Capsule with each meal

Acidopholus- 1/2 teaspoon daily

I am going to be starting ALA pretty soon and know that I will need to

adjust her supplements. I saw in the index that andy recommends 25000 IU

cod liver oil. I dont know if i read that wrong or if i am really giving

way under what is supposed to be given. Also was thinking that she may need

my magnesium she gets 100mg A day with the Nu Thera. Her mag levels were

fine on the hair test but I understand she needs mag for her body to absorb

the calcium. Is this enough???

Also she is still doing the teeth grinding and tongue pulling. I upped her

zinc to 40 mg a day and havent seen any positive results. Should I go up

more. She registered really low for zinc on the hair test, but her

copper levels were good. Also I was reading about using ALA when you have

high sulfur. My daughter registered high in sulfur on the hair test. I

beleive she is getting it from the garlic she eats on her food, which is

the only way i can get her to eat. Will i need to stop the garlic while

using the ALA??? Ok last question. She registered barely over on lead

and I will probably have to use DMSA to chelate for the lead. Where do I

get a good form of DMSA without a prescription??? Thanks

rochelle

_________________________________________________________________

On the road to retirement? Check out MSN Life Events for advice on how to

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Liz,

May i just ask - could you elaborate on your pathways needing support? I'd

be poarticulalry interested in how you found this out as well as how you

resolved it.

Thanks

Stuart

>From: " " <Rabbitbrain@...>

>Reply-

>

>Subject: RE: [ ] Question about supplements

>Date: Thu, 7 Oct 2004 09:45:55 -0700

>

>The sulfur levels in my hair test was good to high so I thought

>I was fine in that area. I don't understand what it means but

>I recently found that one of my pathways needed support to

>begin feeling better. I don't think the sulfer levels in the test

>tells you much about the body's performance.

> Anybody comment please.

>

>My vitamin book says not to take zinc with coffee, brown bread,

> dairy produts, especially milk, cheese, or other high-calcium foods.

>Whole wheat flour has 6 times as much zinc as white flour.

>

>Liz D.

>

>

> > [Original Message]

> > From: Rywilli Willingham <rywilli24@...>

> > < >

> > Date: 10/7/2004 9:24:46 AM

> > Subject: [ ] Question about supplements

> >

> >

> > hey everyone i wanted to list the supplements my ASD daughter is

>taking

> > and get some opinions on if I am giving her enough or too much. She is

>22

> > lbs and 23 months old.

> >

> > Cod Liver Oil- 2500 IU per day

> >

> > Nu thera w/p5p - 2 Caplets per day

> >

> > Calcium w/Vitamin D- 999 mg of Calcium 174 IU Vitamin D A day

> >

> > Zinc- 40 mg a day (Very low on hair test)

> >

> > Grapefruit seed extract- 250 mg a day

> >

> > Multi Enzyme Formula- 1 Capsule with each meal

> >

> > Acidopholus- 1/2 teaspoon daily

> >

> >

> >

> > I am going to be starting ALA pretty soon and know that I will need to

> > adjust her supplements. I saw in the index that andy recommends 25000

>IU

> > cod liver oil. I dont know if i read that wrong or if i am really

>giving

> > way under what is supposed to be given. Also was thinking that she may

>need

> > my magnesium she gets 100mg A day with the Nu Thera. Her mag levels

>were

> > fine on the hair test but I understand she needs mag for her body to

>absorb

> > the calcium. Is this enough???

> >

> >

> > Also she is still doing the teeth grinding and tongue pulling. I upped

>her

> > zinc to 40 mg a day and havent seen any positive results. Should I go

>up

> > more. She registered really low for zinc on the hair test, but her

> > copper levels were good. Also I was reading about using ALA when you

>have

> > high sulfur. My daughter registered high in sulfur on the hair test. I

> > beleive she is getting it from the garlic she eats on her food, which

>is

> > the only way i can get her to eat. Will i need to stop the garlic while

> > using the ALA??? Ok last question. She registered barely over on

>lead

> > and I will probably have to use DMSA to chelate for the lead. Where do

>I

> > get a good form of DMSA without a prescription??? Thanks

> >

> > rochelle

> >

> > _________________________________________________________________

> > On the road to retirement? Check out MSN Life Events for advice on how

>to

> > get there! http://lifeevents.msn.com/category.aspx?cid=Retirement

> >

> >

> >

> >

> > =======================================================

> >

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  • 4 months later...

10-4 on the yeast. We don't rule that out.

Figure this out...today, we finished the round this morning and all

supplements were the same as we've done every day with the exception

of probiotics and digestive enzymes which were left out on purpose.

The redness or red rash is completely gone. He has had minimal

hyperness, and his stimming (finger-snapping and point-blank finger

staring) was greatly reduced too, but as always not gone entirely.

What that means is he got gluten and casein without enzymes and did

better. Maybe he just isn't tolerating the enzymes or we are past the

digestive enzymes requirement? The latter would be great!

We have considered the thought that it might be either chelator ALA

or DMSA causing some sort of sustained-use allergy, but that doesn't

make sense because the redness seems to stick around long after the

round has ended.

Taking the probiotics and the enzymes out seems to have improved

pretty rapidly.

> >

> > Ona tip we ordered Life Extension 6 hour time release Melatonin.

> Each

> > capsule is 3mg. Our son doesn't swallow capsules and I'd like to

> > avoid the Heimlich maneuver whenever I can. Is it ok to break

open

> a

> > capsule for oral consumption or will this compromise the time-

> release

> > effectiveness? We want to use the time-release because he has

been

> > waking at odd hours of the night then only getting a catnap

before

> he

> > goes to kindergarten in the morning.

> >

> > We have forty rounds of ALA/DMSA completed in the AM.

> >

> > We are seeing some facial redness or perhaps allergic-driven

rashes

> > and lately have been seeing behavior regressions while on round.

> > Behavior regressions are mostly hyperactivity and stimming. Both

> the

> > rashes and stimming seem to be related to when we supplement

> > probiotics, and the hyperness seems to be related to when we sit

> down

> > and eat. Just a few minutes after we give him his digestive

enzyme

> he

> > eats a little then hops up from the table and dances away. Is it

> > possible that we are over-loading probiotics at this point?

> >

> > What's typical around round forty? What can we expect ahead of

us?

> > Looking back we see progress, but we all seem to be hitting a

> barrier

> > now.

> >

> > Any experienced thoughts are appreciated.

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..

>

> What is the probiotic that you use?

> >

We have used a lot of different brands rotating every two weeks.

Currently we are using Kirkman's Pro Culture Gold and Multi-Flora

Spectrum rotating them with Kirkman's Acidolphilus, and Jarrow Jarro-

dophilus every two weeks at a total level of one hundred billion

spaced out through the day.

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Do the Kirkman's still have sorbitol and/or inulin? Yeast feeders

for . You might try Custom Probiotics. No connection with him.

As a matter of fact, the guy there hates me and I am afraid to order

from him anymore. Long story....

was using aout 250b a day(Kirkmans), but his yeast was still

raging. He had no good bacteria and a potentially pathogenic

bacteria had moved in that needed to be under control.

Good luck.

>

> .

> >

> > What is the probiotic that you use?

> > >

>

> We have used a lot of different brands rotating every two weeks.

>

> Currently we are using Kirkman's Pro Culture Gold and Multi-Flora

> Spectrum rotating them with Kirkman's Acidolphilus, and Jarrow

Jarro-

> dophilus every two weeks at a total level of one hundred billion

> spaced out through the day.

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>

> Ona tip we ordered Life Extension 6 hour time release Melatonin.

Each

> capsule is 3mg. Our son doesn't swallow capsules and I'd like to

> avoid the Heimlich maneuver whenever I can. Is it ok to break open

a > capsule for oral consumption or will this compromise the time-

release > effectiveness?

-- I think you might get away with it. The way a capsule dissolves,

all the contents are released almost at once, so the time-release

properties must be related to the contents of the capsule, not the

cap itself. a tablet could be different as it would disolve more

slowly.

>We want to use the time-release because he has been

> waking at odd hours of the night then only getting a catnap before

he

> goes to kindergarten in the morning.

-- the melatonin may not help this if it it yeast-related

> We have forty rounds of ALA/DMSA completed in the AM.

>

> We are seeing some facial redness or perhaps allergic-driven

rashes

> and lately have been seeing behavior regressions while on round.

> Behavior regressions are mostly hyperactivity and stimming. Both

the

> rashes and stimming seem to be related to when we supplement

> probiotics, and the hyperness seems to be related to when we sit

down

> and eat. Just a few minutes after we give him his digestive enzyme

he

> eats a little then hops up from the table and dances away.

-- We are only at round 28, but I thinkk what is happening here is

depletion of pantethine and biotin, which compete with ALA for the

saem pathways. This depletion can least to hyperacctiity and yeast

problems. Load pantethine and biotin before and after rounds and

maybe between doses.

Steve

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> What that means is he got gluten and casein without enzymes and did

> better. Maybe he just isn't tolerating the enzymes or we are past the

> digestive enzymes requirement? The latter would be great!

My son will regress when he no longer needs a supplement. I remember

when I removed enzymes and he improved. Maybe your son is currently

there!

Dana

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Steve,

We will keep those two in mind, but for now we will see how well he does without

probos and enzymes for a while. If we keep those two out and the redness rash

comes back on the next chelation round we will take a hard look at biotin and

pantethine.

[ ] Re: Question about supplements

>

> Ona tip we ordered Life Extension 6 hour time release Melatonin.

Each

> capsule is 3mg. Our son doesn't swallow capsules and I'd like to

> avoid the Heimlich maneuver whenever I can. Is it ok to break open

a > capsule for oral consumption or will this compromise the time-

release > effectiveness?

-- I think you might get away with it. The way a capsule dissolves,

all the contents are released almost at once, so the time-release

properties must be related to the contents of the capsule, not the

cap itself. a tablet could be different as it would disolve more

slowly.

>We want to use the time-release because he has been

> waking at odd hours of the night then only getting a catnap before

he

> goes to kindergarten in the morning.

-- the melatonin may not help this if it it yeast-related

> We have forty rounds of ALA/DMSA completed in the AM.

>

> We are seeing some facial redness or perhaps allergic-driven

rashes

> and lately have been seeing behavior regressions while on round.

> Behavior regressions are mostly hyperactivity and stimming. Both

the

> rashes and stimming seem to be related to when we supplement

> probiotics, and the hyperness seems to be related to when we sit

down

> and eat. Just a few minutes after we give him his digestive enzyme

he

> eats a little then hops up from the table and dances away.

-- We are only at round 28, but I thinkk what is happening here is

depletion of pantethine and biotin, which compete with ALA for the

saem pathways. This depletion can least to hyperacctiity and yeast

problems. Load pantethine and biotin before and after rounds and

maybe between doses.

Steve

=======================================================

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I think they do contain sorbitol.

He had ice cream last evening and later slept like a babbb...youngster all

night. He hopped up in bed, looked at his fingers like he was about to start

stimming then calmly put his hand down and fell right asleep.

[ ] Re: Question about supplements

Do the Kirkman's still have sorbitol and/or inulin? Yeast feeders

for . You might try Custom Probiotics. No connection with him.

As a matter of fact, the guy there hates me and I am afraid to order

from him anymore. Long story....

was using aout 250b a day(Kirkmans), but his yeast was still

raging. He had no good bacteria and a potentially pathogenic

bacteria had moved in that needed to be under control.

Good luck.

>

> .

> >

> > What is the probiotic that you use?

> > >

>

> We have used a lot of different brands rotating every two weeks.

>

> Currently we are using Kirkman's Pro Culture Gold and Multi-Flora

> Spectrum rotating them with Kirkman's Acidolphilus, and Jarrow

Jarro-

> dophilus every two weeks at a total level of one hundred billion

> spaced out through the day.

=======================================================

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He did very well without probiotics and digestive enzymes yesterday. His redness

went away and there was some stimming, but the hyperness wasn't there any more

than NT. We'll see how well he fares today.

[ ] Re: Question about supplements

> What that means is he got gluten and casein without enzymes and did

> better. Maybe he just isn't tolerating the enzymes or we are past the

> digestive enzymes requirement? The latter would be great!

My son will regress when he no longer needs a supplement. I remember

when I removed enzymes and he improved. Maybe your son is currently

there!

Dana

=======================================================

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