Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 I would like to talk to anyone who has a child with Chiari. I have Chiari and my 10-year-old has just been diagnosed. I have an appointment for her in NYwith Dr. B and Dr. Milhorat. I would like to know of other pediatric neurosurgeons who are considered experts at these malformations. Also, I would like to hear from anyone who has had a cyst in the brain. My daughter's MRI reports says ACM 1 with 7 mm herniation, kinking of the cervical medullary junction, and superior migration of the odontoid process, which I understand. However, she also has a leptomeningeal cyst in relation to ambein cistern on the right side at the level of the mid brain. I never had a cyst and have no experience or knowledge of what this means. Can these cysts rupture? Do they disappear with surgery? I am terrified at the though of her going through what I just went through. Any information is greatly appreciated. Take Care and Thanks Terri in MI Quote Link to comment Share on other sites More sharing options...
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