HELP!! Parent looking for answers!!!!

[Guest guest]

Hello,

I am the mother of an eleven year old boy, Logan, that has had

Hydrocephalus since birth. He has had three shunt revisions, seizures when he

was a toddler, but grew out of them (we thought), SVT of the heart that began

about three years ago, and a place on his brain that his Nero. Surge. has been

watching for the past three years (which he believes is a calcium build up).

Logan is the youngest of our five children and is very active and normal in

almost every way to see him. He ice skates, and even plays hockey since he was

four years old. He is presently in the 5th grade but has many learning

problems, he tests out to be at 1st grade level, even though he has been in

school since he was three. (Spec. Ed, Speech, Occupational Therapy)

Logan has a MRI each year to check his shunt and the spot on his brain to

make sure it does not get any larger. This year he was complaining of

headaches, numbness in his arms and legs, and vomiting so I passed this on to

his Nero. Surge. when he read the MRI. Expecting him to tell us he needed

another shunt revision he came back and informed us of the chiari (he had seen

it in the past years but since he was not having any symptoms he just noted the

malformation). Logan had the surgery done Nov. 14, 2002, the surgery went well,

but his recovery was not, his vomiting never stopped, his SVT's became more

often, and he began having small seizures that lasted about 30 sec. to 2 min.

His Ped. began test, (Reflux, EEG, and his Cardio. put him on a heart monitor

for 30 days to try to capture the SVT's) Due to all of these problems that have

gotten worst since the surgery Logan is being home-bound taught for school.

After reading all the messages on the group pages and listening to all the

doctors maybe this is just part of the recovery and we were taking it day by

day, until Wed., Dec. 18. Logan had been complaining of his heart most of the

day and we were taking EKG's with the monitor but not much different as any day.

About 2:00 in the afternoon my husband was lying with him watching T.V. when he

had a gran mal Seizure. After calling an ambulance and while he was in the ER

he had two SVT attacks (which his heart rate reached 280) they chose to admit

him to begin Heart and Seizure meds and take more test. We were released Fri.

only after he had not had any seizures of SVTs for 24 Hr.

The Questions my husband and myself have could this be due to the chiari,

is there anyone else out there that has had these problems, could these just be

other health problems Logan has and they just coincidentally chose to get worst

now since the surgery? We went for his following up with our Ped. his

cardiologist and neo. surge. after Christmas and the New Year, but they are

saying its just coincidence all these problems have started after the surgery.

Logan is also a walking time bomb, he gets so mad at just any small thing and

violent physical attacks not only on his brothers and sister but my husband and

myself, we are afraid he is really going to hurt some one or himself. PLEASE

HELP!! If anyone has had any of these happen after surgery we would love to

hear from you. We are getting very frustrated it seems Logan's health has

gotten worst since the surgery.

Thank you

for you time and any help.