Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Hello to all. My name is Lillith and I was just diagnosed with ACM type 1. I am 27 years old. Last month I started having pain in the back right side of my head, muscle spasm in the left eye, and facial tingling on the left side of my face by my mouth. I went to my PCP who ordered a MRI with and without contrast. I got in the very next day for the test. My doctor called me at home and told me to make an appointment to hear my test results. So I went in this past Friday and got the news. My PCP could not tell me anything about Chiari other then it was named after the doctor who discovered it. She told me to make an appointment with a neurologist and gave me some Flexeril for the spasms. If anyone on this list lives here in the Tampa Bay area and knows of a experienced neurologist please let me know. I did make an appointment with my mother's doctor but I do not know if that doctor is experienced in ACM and the appointment is not until Feb 5th. That's my story! I have spent the weekend online learning about ACM and I am glad to find this group! Sincerely, Lillith Holiday, Florida Quote Link to comment Share on other sites More sharing options...
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