under and over active and ill!

[Guest guest]

HI (posted this on adrenal board but thought someone her may be able

to help)

I had been doing quite well and getting stronger after being very ill

for

last 6 years with underactive thyroid. Still not able to work but

felt i was getting bit stronger. was originally on armour then

changed to cytomel as had a coversion prob. I started taking isocort

(with my

cytomel) and then changed to hydrocortisone in Oct but at the moment

I feel so awful.

I think the steroids helped in that they gave me more reserve when i

was able to do stuff and so i could keep going longer, they have also

helped with anxiety and blood sugar levels, but they seem to have

messed up my thyroid tablets. The idea of going on the steroids was

because I felt I was still undercactive but any increase in dose and

i quickly went overactive and couldent tolerate it. So Dr Peatfield

felt that the recepters wernt opened and so a lot of the cytomel was

remaining in the blood stream.

But the steroids seem to ahve made this prob worse in that I feel

very underactive (and blood tests tsh was 4.4 which is high for me)

and feel very ill again and just unbearable exhausted so I raise the

dose but know in matter of days I will go overactive (never used to

happen so quickly) and have to cut back. I just cant get a 'balance'

on the medication and so alwasy feel under and over active and just

awful.

Does anyone know anything about this or can offer any advise as what

to do as im lost and feel im just hanging in there but dont know what

to do for the best. If I could just get the thyroid med to go into

the cells I think i would feel so well.

thanks

Carly xx

[Guest guest]

In a message dated 1/25/2005 12:40:07 PM Eastern Standard Time, usns@...

writes:

> Instead, what seems like a

> conversion problem can actually be " thyroid resistance " . And to

> combat thyroid resistance, you need quite a lot of Armour

janie...

and how does his affect bloodwork...would one have over the range levels in

both t4 and t3?

cindi

[Guest guest]

Hi Carly. You know, not too long ago I did some armchair research

on " conversion problems " and discovered that conversion problems are

either quite rare, or are only temporary. Instead, what seems like a

conversion problem can actually be " thyroid resistance " . And to

combat thyroid resistance, you need quite a lot of Armour......and

then some add Cytomel when their Armour is at 5-6 grains or higher.

So.....tell us. How much Armour were you on before you switched to

Cytomel only? The problem with being on Cytomel only is that you

miss out on all the rest that Armour gives you--which is exactly

what your own thyroid would be giving you!

Also, have you ever done the 24 hour saliva adrenal test to confirm

an adrenal problem??

Janie

>

> HI (posted this on adrenal board but thought someone her may be

able

> to help)

> I had been doing quite well and getting stronger after being very

ill

> for

> last 6 years with underactive thyroid. Still not able to work but

> felt i was getting bit stronger. was originally on armour then

> changed to cytomel as had a coversion prob. I started taking

isocort

> (with my

> cytomel) and then changed to hydrocortisone in Oct but at the

moment

> I feel so awful.

>

> I think the steroids helped in that they gave me more reserve when

i

> was able to do stuff and so i could keep going longer, they have

also

> helped with anxiety and blood sugar levels, but they seem to have

> messed up my thyroid tablets. The idea of going on the steroids was

> because I felt I was still undercactive but any increase in dose

and

> i quickly went overactive and couldent tolerate it. So Dr Peatfield

> felt that the recepters wernt opened and so a lot of the cytomel

was

> remaining in the blood stream.

>

> But the steroids seem to ahve made this prob worse in that I feel

> very underactive (and blood tests tsh was 4.4 which is high for me)

> and feel very ill again and just unbearable exhausted so I raise

the

> dose but know in matter of days I will go overactive (never used to

> happen so quickly) and have to cut back. I just cant get

a 'balance'

> on the medication and so alwasy feel under and over active and just

> awful.

>

> Does anyone know anything about this or can offer any advise as

what

> to do as im lost and feel im just hanging in there but dont know

what

> to do for the best. If I could just get the thyroid med to go into

> the cells I think i would feel so well.

> thanks

> Carly xx

[Guest guest]

Yes. But the clue is a combination of over the range free T3, no

sign of hyper AND you STILL feel like crap -----and you have fine

adrenal output and fine Ferritin. And I believe has had a

free T3 over the range, yet she still felt like poop. That's why she

added Cytomel to her large amount of Armour. Janie

>

> janie...

> and how does his affect bloodwork...would one have over the range

levels in

> both t4 and t3?

> cindi

[Guest guest]

>>And I believe has had a

free T3 over the range, yet she still felt like poop. That's why she

added Cytomel to her large amount of Armour. <<

nope... I added in Cytomel as even on 4.5 grains Armour, my T3 was low still. My

Free T4 was low normal, but the Free T3 was under normal range still.

*Artistic Grooming * Hurricane, WV

Fat cat? Diabetes? Listowner for overweight or hypothyroid cats

http://groups.yahoo.com/group/hypokitties/

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[Guest guest]

HI

Thanks for the reply. The prob has always been that I am very

sensitive to high doses and just cant tolerate them,I even have to

take my dose with food else I get overactive symptoms strongly. I was

only on about 1 and half grain armour I think but i tried so many

times to increase but couldent as I went overactive? dont get it? It

seems that its not getting into the cells so its just toxic in the

blood stream causing the overactive symptoms.

Yes I had the adrenal test which showed low cortisol.

be interested to hear any further opinions.

thanks

>

> Hi Carly. You know, not too long ago I did some armchair research

> on " conversion problems " and discovered that conversion problems

are

> either quite rare, or are only temporary. Instead, what seems like

a

> conversion problem can actually be " thyroid resistance " . And to

> combat thyroid resistance, you need quite a lot of Armour......and

> then some add Cytomel when their Armour is at 5-6 grains or higher.

>

> So.....tell us. How much Armour were you on before you switched to

> Cytomel only? The problem with being on Cytomel only is that you

> miss out on all the rest that Armour gives you--which is exactly

> what your own thyroid would be giving you!

>

> Also, have you ever done the 24 hour saliva adrenal test to confirm

> an adrenal problem??

>

> Janie

>

> >

> > HI (posted this on adrenal board but thought someone her may be

> able

> > to help)

> > I had been doing quite well and getting stronger after being very

> ill

> > for

> > last 6 years with underactive thyroid. Still not able to work but

> > felt i was getting bit stronger. was originally on armour then

> > changed to cytomel as had a coversion prob. I started taking

> isocort

> > (with my

> > cytomel) and then changed to hydrocortisone in Oct but at the

> moment

> > I feel so awful.

> >

> > I think the steroids helped in that they gave me more reserve

when

> i

> > was able to do stuff and so i could keep going longer, they have

> also

> > helped with anxiety and blood sugar levels, but they seem to have

> > messed up my thyroid tablets. The idea of going on the steroids

was

> > because I felt I was still undercactive but any increase in dose

> and

> > i quickly went overactive and couldent tolerate it. So Dr

Peatfield

> > felt that the recepters wernt opened and so a lot of the cytomel

> was

> > remaining in the blood stream.

> >

> > But the steroids seem to ahve made this prob worse in that I feel

> > very underactive (and blood tests tsh was 4.4 which is high for

me)

> > and feel very ill again and just unbearable exhausted so I raise

> the

> > dose but know in matter of days I will go overactive (never used

to

> > happen so quickly) and have to cut back. I just cant get

> a 'balance'

> > on the medication and so alwasy feel under and over active and

just

> > awful.

> >

> > Does anyone know anything about this or can offer any advise as

> what

> > to do as im lost and feel im just hanging in there but dont know

> what

> > to do for the best. If I could just get the thyroid med to go into

> > the cells I think i would feel so well.

> > thanks

> > Carly xx

[Guest guest]

HI

Thanks for the reply. The prob has always been that I am very

sensitive to high doses and just cant tolerate them,I even have to

take my dose with food else I get overactive symptoms strongly. I was

only on about 1 and half grain armour I think but i tried so many

times to increase but couldent as I went overactive? dont get it? It

seems that its not getting into the cells so its just toxic in the

blood stream causing the overactive symptoms.

Yes I had the adrenal test which showed low cortisol.

be interested to hear any further opinions.

thanks

>

> Hi Carly. You know, not too long ago I did some armchair research

> on " conversion problems " and discovered that conversion problems

are

> either quite rare, or are only temporary. Instead, what seems like

a

> conversion problem can actually be " thyroid resistance " . And to

> combat thyroid resistance, you need quite a lot of Armour......and

> then some add Cytomel when their Armour is at 5-6 grains or higher.

>

> So.....tell us. How much Armour were you on before you switched to

> Cytomel only? The problem with being on Cytomel only is that you

> miss out on all the rest that Armour gives you--which is exactly

> what your own thyroid would be giving you!

>

> Also, have you ever done the 24 hour saliva adrenal test to confirm

> an adrenal problem??

>

> Janie

>

> >

> > HI (posted this on adrenal board but thought someone her may be

> able

> > to help)

> > I had been doing quite well and getting stronger after being very

> ill

> > for

> > last 6 years with underactive thyroid. Still not able to work but

> > felt i was getting bit stronger. was originally on armour then

> > changed to cytomel as had a coversion prob. I started taking

> isocort

> > (with my

> > cytomel) and then changed to hydrocortisone in Oct but at the

> moment

> > I feel so awful.

> >

> > I think the steroids helped in that they gave me more reserve

when

> i

> > was able to do stuff and so i could keep going longer, they have

> also

> > helped with anxiety and blood sugar levels, but they seem to have

> > messed up my thyroid tablets. The idea of going on the steroids

was

> > because I felt I was still undercactive but any increase in dose

> and

> > i quickly went overactive and couldent tolerate it. So Dr

Peatfield

> > felt that the recepters wernt opened and so a lot of the cytomel

> was

> > remaining in the blood stream.

> >

> > But the steroids seem to ahve made this prob worse in that I feel

> > very underactive (and blood tests tsh was 4.4 which is high for

me)

> > and feel very ill again and just unbearable exhausted so I raise

> the

> > dose but know in matter of days I will go overactive (never used

to

> > happen so quickly) and have to cut back. I just cant get

> a 'balance'

> > on the medication and so alwasy feel under and over active and

just

> > awful.

> >

> > Does anyone know anything about this or can offer any advise as

> what

> > to do as im lost and feel im just hanging in there but dont know

> what

> > to do for the best. If I could just get the thyroid med to go into

> > the cells I think i would feel so well.

> > thanks

> > Carly xx

[Guest guest]

OK. There are two reasons to go overactive on as low as dose as 1

1/2 grains---adrenals, which you have confirmed by labs, and low

Ferritin. Have you tested your Ferritin? Ideally, you want it to be

between 60 - 80 at the minimum. I can be as low as the 40's and not

have problems with my Armour, but if it gets lower, BAM--I get

problems. I keep my Ferritin around 88, currently.

When low cortisol is confirmed, you need to be on 20 mgs daily to

help the adrenals recover, and to prevent the thyroid from building

too high in your body. Have you been on 20 mgs?

Some folks who have severe problems either stop their thyroid for a

week, or reduce it greatly.......take the 20 mgs daily (and spread

out during the day), then resume the thyroid, but in VERY small

doses and small raises. Tish posted a great idea recently--namely,

any time you raise your dose of Armour, even the smallest amount,

also raise that 20 mgs of cortisol to, let's say 30 mgs, for a few

days to help with that raise, then drop back down to the 20 mgs.

Janie

>

> HI

> Thanks for the reply. The prob has always been that I am very

> sensitive to high doses and just cant tolerate them,I even have to

> take my dose with food else I get overactive symptoms strongly. I

was

> only on about 1 and half grain armour I think but i tried so many

> times to increase but couldent as I went overactive? dont get it?

It

> seems that its not getting into the cells so its just toxic in the

> blood stream causing the overactive symptoms.

> Yes I had the adrenal test which showed low cortisol.

> be interested to hear any further opinions.

> thanks

>

>

[Guest guest]

---

HI

Thanks for the reply. Its reassuring to know that other people have

had similar problems and there is hope that I can get this sorted.

My ferritin level is 59? I dont even know what it is and what to do

to increase it?

I am on 17.5 cortisol at the moment. Does taking more allow you to

raise cytomel dose then?

I am actually waiting to hear from a highly reccommended south

african doctor at the moment who had requested a load of blood tests

so first im just gonna see what he makes of things and what he

suggests but i'll keep your advise about raising the cortisol to 30mg

when i raise the cytomel in mind.

Thanks again

Carly xx

In NaturalThyroidHormones , " loboshe "

wrote:

>

> OK. There are two reasons to go overactive on as low as dose as 1

> 1/2 grains---adrenals, which you have confirmed by labs, and low

> Ferritin. Have you tested your Ferritin? Ideally, you want it to be

> between 60 - 80 at the minimum. I can be as low as the 40's and not

> have problems with my Armour, but if it gets lower, BAM--I get

> problems. I keep my Ferritin around 88, currently.

>

> When low cortisol is confirmed, you need to be on 20 mgs daily to

> help the adrenals recover, and to prevent the thyroid from building

> too high in your body. Have you been on 20 mgs?

>

> Some folks who have severe problems either stop their thyroid for a

> week, or reduce it greatly.......take the 20 mgs daily (and spread

> out during the day), then resume the thyroid, but in VERY small

> doses and small raises. Tish posted a great idea recently--namely,

> any time you raise your dose of Armour, even the smallest amount,

> also raise that 20 mgs of cortisol to, let's say 30 mgs, for a few

> days to help with that raise, then drop back down to the 20 mgs.

>

> Janie

> >

> > HI

> > Thanks for the reply. The prob has always been that I am very

> > sensitive to high doses and just cant tolerate them,I even have

to

> > take my dose with food else I get overactive symptoms strongly. I

> was

> > only on about 1 and half grain armour I think but i tried so many

> > times to increase but couldent as I went overactive? dont get it?

> It

> > seems that its not getting into the cells so its just toxic in

the

> > blood stream causing the overactive symptoms.

> > Yes I had the adrenal test which showed low cortisol.

> > be interested to hear any further opinions.

> > thanks

> >

> >