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Hello ,

Wow. I am sorry you have been treated so shoddily by " professionals " . I do

not have Chiari, my six year old daughter had decompression surgery two

years ago. I only recently found how to register at wacma.

Anyway - has a very high pain tolerance. From what I've read so

far, that seems to be true of most Chiari patients. So for you to say you

are still in pain, that means it is probably off the charts!

In advocating for , these are the things I learned the hard

way........

Keep a copy of all medical summaries for yourself. You might need to sign a

form or something -- like when you release records for another doctor -- but

these copies are for yourself. I keep 's in a 3 ring notebook with

the most recent copies on top. Her records go with us to each appointment,

every specialist.

Hand carry any films, x-rays, MRI's, etc. to appointments requiring them.

These can get lost between busy offices.

Some specialists take an agonizingly long time to get into. Besides asking

to be put on the waiting list, I called every morning to see if there were

any cancellations.

Every doctor we see gets a picture of for their file. It helps me

to know they cannot look at her file without seeing her face. Maybe that's

silly -- but it helps me to know they see her as a person, and not simply

another interesting case.

I think you will find a wealth of support here as well as answers to some of

your questions. I still read everything I can get my hands on!

Best wishes from Oregon,

mom to , decompressed Aug. 2000, 13mm

New to group

> Hello, everyone. My name is , and I live in the Charlotte area

> of N.C.. I have lived here, on and off for about 2 years. I have

> been in pain for about 2.5 years with various diagnoses, and

> surgeries for a variety of problems. Last year, after ongoing pain

> that I was having, stepped up to a more serious level at the end of

> the summer, and I started having more severe headaches, and losing

> control of my hands and arms. I am a carpenter, and could no longer

> hold my tools, and began tripping and falling. I also had a sudden

> onset of vertigo, from relatively short heights.

>

> In September, my headaches were also accompanied by facial numbing.

> So I went to the hospital in California, where I was working at the

> time, and was diagnosed with a Chiaari malformation, and told to go

> home as it was serious, by a neurosurgeon out there.

>

> It took my Wife and I till March to actually have a neurosurgeon out

> here in NC rediagnose, and get the ball rolling. It turned out I also

> needed a discectomy with fusion, at c6-c7. I had the discectomy in

> march, and the decompression with duraplasty and fossa in may, almost

> six weeks to the day, after the neck surgery.

>

> What I thought, and according to the n-surgeon, would be the end of

> my problems with just a few months of post-op healing, turned out to

> be the beginning of the most terrible pain, and worst months of my

> life.

>

> We left the services of my surgeon in favor of a neurologist, when he

> would no longer address my constant and worsening pain, or answer our

> questions with anything but cursory and smug answers. His nurse told

> me to toughen up and bite the bullet as I did not have it as bad as

> some of their patients.

>

> My neurosurgeon is a man I neither trust, or would recommend to

> anyone. I know when someone is not in my corner, and this man treated

> both my wife and I like fodder.

>

> I don't know if I had a syrinx. My neurologist has me in for a sleep

> evaluation and that is about it. I am waiting to see a

> rheumotologist, as a number of specialists think I have a connective

> tisssue disorder, but after 7 months I have no diagnosis(having been

> biopsied for celiac disease, sjogrens syndrome, polyps in my mouth

> and intestinal tract and not an answer regarding my continuing pain

> in the lot.

>

> My pain has come back threefold in the pre-chiari surgery places, and

> now I have severe leg, feet, lower back pain, hip and pelvic pain. I

> also have swelling in my lower legs and feet, eye problems,etc.

>

> My life is a living hell of pain which up until a week and a half ago

> was left largely undertreated, even by a major pain clinic in the

> charlotte area. I had an Mri 8 weeks after the surgery and was told

> by my surgeeon that all was fine.

>

> I am no stranger to pain, and consider myself pretty tough. The last

> seven months have left me a physical wreck, with no end in sight.

>

> Three weeks ago during my biopsy for Sjogrens, they had my head in

> a " hanging off the OR table position " during the procedure, and I

> came home in such pain that I felt as though I had been on the rack.

>

> I'm so sorry for being so longwinded, but I've only recently become

> an advocate for my own health via the internet. Any reply will be

> greatly appreciated, and any help I can be is at your immediate

> disposal.

>

> Wishing you all healthier days

> / charlotte nc

>

>

>

>

> Help section: http://www.yahoogroups.com/help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> To Unsubscribe Yourself:

> chiari-unsubscribe

>

> WACMA Home: Http://www.wacma.com

>

> WACMA Online Group: http://groups.yahoo.com/group/chiari/

>

>

>

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  • 2 years later...

In a message dated 1/14/2005 9:56:50 PM Eastern Standard Time,

lgordon@... writes:

> Hi - I'm new to the group, but not to hypo. I was undiagnosed for 15 years

> and had a lot of damage done by not being medicated.

>

>

Scarlett,

welcome to the group. there are a couple of us here who went undiagnosed for

a decade or so...and so we can relate to the long term damage that can be

done. Keep us posted on how you're doing.

Cindi

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  • 8 months later...

I am stepmom to a 17 yo BP daughter, whose mom is also BP (undiagnosed). She

lives with us full-time. She's not as bad as some I've seen here on the board

although it's all relative. We each live in our own hellish world. :) What

works for us is LOTS of structure, clearly set out expectations and

consequences, and sticking to them. As parents, you absolutely cannot backslide

on them. You have to be a team with your spouse. Her dad and I are do that but

we cannot co-parent with her mom, due to her mom's own BP issues. Keep reading

SWOE and there is also a workbook. I've seen others on the board recommend

NAMI, if that's available in your area, and also Al-Anon, in terms of support

groups. Make sure you make time for your other child, and make sure you make

time for your spouse, as a couple, and you both make time for yourself. I know

it sounds absolutely impossible, and it might be at first. But you cannot let

the disease control you, nor your daughter's behavior control

you. Others will have advice -- there are contracts that can be entered into

although she's still a little young, at 15. Keep reading and posting here. We

will be a support group for you and I think you will find a lot of comfort just

in reading even if you don't post. You can learn so much just from reading!

Good luck!

Kelley C.

fireinthebelly_2000 fireinthebelly_2000@...> wrote:

HELP! I have a 15 yo daughter with BPD (recently diagnosed) and living

a life of hell. My household is a mess, my 16 yo son is rebelling with

the constant chaos and I have lost my entire support group. I am in

Tampa Bay, FL and we haven't any suppport groups. I am reading " Stop

Walking On Eggshells " and learning more each day. Will take any words

of wisdom.

People joining this list must read the guidelines and agree to them before

posting. Send questions or concerns to WelcomeToOz-owner . " Stop

Walking on Eggshells " , a primer for non-BPs, and " Hope for Parents: Helping Your

Borderline Son or Daughter Without Sacrificing Your Family Or Yourself " can be

ordered via 1-888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

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Let me start by saying that I truly know how you feel and I feel for you,

your family and your daughter. You have received some great advice here

and I just wanted to reiterate some of it. School, special ed, county

mental health. Here in California, these are crucial to helping deal with

and finance this diagnosis. Also, I feel it is fortunate (if I can even

use that word), that your daughter was diagnosed at her age. My daughter

was diagnosed at 15 (6 months ago), she is now 16 and it is less

overwhelming to know we have some time on our side. The school district is

obligated to provide an education for our daughter. She is currently in

residential treatment and as of last night's phone call - sounded

wonderful. Prior to her leaving she was cutting, using drugs, alcohol,

promiscuity, manipulating, raging . . . hospitalized. We knew that if

something drastic wasn't done we would not have her with us for long. We

couldn't treat her at home - things were way beyond that. We really feel

that she is in a good place. There are a lot of resources here on this

board - just ask. Wishing you and your family the best.

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you have received this communication in error, please

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  • 5 months later...
Guest guest

Hi Timi,

Sounds like your dau was molested. Was she? At what age? Did she

receive counselling?

The first thing a molested child learns, no matter the age, is sex is

power. And we all know the BPD child like to have lots of power. Seems

her need for sex has a power over you.

I would suspect more drugs than you mentioned. 'Whippets', nitrous

oxide, from the whipped cream cans now can be bought w/o the whipped

cream can and is used to enhance sexual climaxes. Also I would be

concerned about 'X' as in Ecstacy/ Extasy as it is known to deplete

saratonins by over releasing saratomins. This also enhance sexual

climaxes.

, blu_cricket

-- In WTOParentsOfBPs , " dextermagu "

wrote:

>................

> * In the past 4 months she has stolen my car in an attempt to not

> have police come to house. Been admitted for 72 hours at Pshyc

> ward, taken Meth at least 2 times, smoked pot at least 4 times, Has

> gotten into a physical fight with her sister, run away twice,

> addmtied she LOVES dirty sex, lied about taking pills to OD, been

> kicked out of 2 schools, stolen money from me, her sister, friends,

> classmates, shoplifting (not caught) and now the new one... Taken

> naked photos and posted them on a lesbian web site. Apparently she

> is now bi-sexual. The idea of being a drug dealer or Pole dancer

> has come up as career options. Keep in mind she has only just

> turned 16. To look at her, you see this amazingly beautiful and

> talented singer that use to get straight A's. The spark in her eyes

> is gone, and the smile has turned to scorn.............

> Thanks for reading.

> Timi

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Guest guest

,

She claims she was never molested, inappropriatly touched or abused in any

physical way. i have racked my brain to think if there ever was a time when

something seemed " off " or if she was ever acting out as a child, and can't come

up with anything.

Re: New to Group

Hi Timi,

Sounds like your dau was molested. Was she? At what age? Did she

receive counselling?

The first thing a molested child learns, no matter the age, is sex is

power. And we all know the BPD child like to have lots of power. Seems

her need for sex has a power over you.

I would suspect more drugs than you mentioned. 'Whippets', nitrous

oxide, from the whipped cream cans now can be bought w/o the whipped

cream can and is used to enhance sexual climaxes. Also I would be

concerned about 'X' as in Ecstacy/ Extasy as it is known to deplete

saratonins by over releasing saratomins. This also enhance sexual

climaxes.

, blu_cricket

-- In WTOParentsOfBPs , " dextermagu "

wrote:

>................

> * In the past 4 months she has stolen my car in an attempt to not

> have police come to house. Been admitted for 72 hours at Pshyc

> ward, taken Meth at least 2 times, smoked pot at least 4 times, Has

> gotten into a physical fight with her sister, run away twice,

> addmtied she LOVES dirty sex, lied about taking pills to OD, been

> kicked out of 2 schools, stolen money from me, her sister, friends,

> classmates, shoplifting (not caught) and now the new one... Taken

> naked photos and posted them on a lesbian web site. Apparently she

> is now bi-sexual. The idea of being a drug dealer or Pole dancer

> has come up as career options. Keep in mind she has only just

> turned 16. To look at her, you see this amazingly beautiful and

> talented singer that use to get straight A's. The spark in her eyes

> is gone, and the smile has turned to scorn.............

> Thanks for reading.

> Timi

Problems? Ask our friendly List Manager for help, @....

SEND HER ANY POSTS THAT CONCERN YOU; DO NOT RESPOND ONLINE.

Essential reading to help you feel better and understand the BP in your life

are:

. SWOE ( " Stop Walking on Eggshells " ) and the SWOE Workbook (for everyone)

. HOPE FOR PARENTS

Call 888-35-SHELL () to order your copies.

From Randi Kreger, Owner of BPDCentral and the WTO Online Community

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Guest guest

Timi,

At at early age, my daughter seemed to act like an " abused " child. To my

knowledge, she was not.

However, she had the strong sense of abandonment, and divorced parents who did

not/could not get along (dad has bp traits). This was hell for her.

I always felt she would improve once her dad and I were away from her. I feel

that was true. He lives clear cross country, right now we are in different

cities, but her choice, she will be moving back near us, not with us.

I think sometimes it's just the pain that they are in coming out. I used to say

a lot of " I am sorry you feel this way " s, or I am sorry you are hurting.

She has definitely calmed down, and the rages are few and far between.

My daughter rejected meds, too. They made her tired.

I think subconsciously she knows something is out of kilter, but will not truly

admit it to herself, or especially me. There is mental illness on both sides of

her family and I think she is in denial.

Carol

--------- Re: New to Group

>

>

> Hi Timi,

> Sounds like your dau was molested. Was she? At what age? Did she

> receive counselling?

>

> The first thing a molested child learns, no matter the age, is sex is

> power. And we all know the BPD child like to have lots of power. Seems

> her need for sex has a power over you.

>

> I would suspect more drugs than you mentioned. 'Whippets', nitrous

> oxide, from the whipped cream cans now can be bought w/o the whipped

> cream can and is used to enhance sexual climaxes. Also I would be

> concerned about 'X' as in Ecstacy/ Extasy as it is known to deplete

> saratonins by over releasing saratomins. This also enhance sexual

> climaxes.

>

> , blu_cricket

>

>

> -- In WTOParentsOfBPs , " dextermagu "

> wrote:

>

> >................

> > * In the past 4 months she has stolen my car in an attempt to not

> > have police come to house. Been admitted for 72 hours at Pshyc

> > ward, taken Meth at least 2 times, smoked pot at least 4 times, Has

> > gotten into a physical fight with her sister, run away twice,

> > addmtied she LOVES dirty sex, lied about taking pills to OD, been

> > kicked out of 2 schools, stolen money from me, her sister, friends,

> > classmates, shoplifting (not caught) and now the new one... Taken

> > naked photos and posted them on a lesbian web site. Apparently she

> > is now bi-sexual. The idea of being a drug dealer or Pole dancer

> > has come up as career options. Keep in mind she has only just

> > turned 16. To look at her, you see this amazingly beautiful and

> > talented singer that use to get straight A's. The spark in her eyes

> > is gone, and the smile has turned to scorn.............

>

> > Thanks for reading.

> > Timi

>

>

>

>

>

>

> Problems? Ask our friendly List Manager for help, @....

> SEND HER ANY POSTS THAT CONCERN YOU; DO NOT RESPOND ONLINE.

>

> Essential reading to help you feel better and understand the BP in your life

> are:

>

> . SWOE ( " Stop Walking on Eggshells " ) and the SWOE Workbook (for everyone)

> . HOPE FOR PARENTS

>

> Call 888-35-SHELL () to order your copies.

>

> From Randi Kreger, Owner of BPDCentral and the WTO Online Community

>

>

>

>

>

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  • 2 weeks later...
Guest guest

Dear ,

You've come to the right place. Your son has symptoms

almost everyone can identify with, and you've

obviously done everything you could possibly do for

him -- a definite characteristic of parents on this

list.

Have you read Stop Walking on Eggshells? It sounds as

though you are probably sacrificing much of your life

to try to keep him stable, and there have got to be

ways to make things easier for you. For example,

keeping him out of your house at least part of the

day, leaving him to deal with his own breakfast,

establishing consequences when he damages your

property and refuses to respect you or deal with you

in a calm way.

One plus is that he has his son to live for.

My daughter is another one who, when in a bad

condition, will not eat. Her last few months in

school it sounded as though she only ate when someone

took her out -- not the sort of behavior you want in a

young adult (she's 22). She's back at home, but

learning how to stay out of our space, not being so

demanding about meals and food, and so on. I don't

know how to describe it, she knows we care, but she

also knows we aren't going to put up with all her

tricks. Somehow we have convinced her that we will

not abandon her but we expect a certain degree of

behavior from her. We are careful not to demand more

than she is capable of, but enough so that we can

occupy the same space without killing each other. We

and some others on this list have used contracts or

written statements. Bpds can't keep things

straightened out in their minds and it is sometimes

helpful if they have the ground rules available for

reference. We started out asking her to wash the

bathtub and help with the cooking. Also to be out of

our bedroom by 10 p.m. When she said later that she

just couldn't promise to help with the housework, we

adjusted her jobs to doing her own things -- doing her

own laundry, cleaning up after her move home. We also

instituted non-cooking days when everyone takes care

of their own meals. One thing about being out of our

room: we initially said she had to be out by 10 (she

watched TV with us and then would be in and out

looking for things while we were trying to sleep) but

let her know she could come in and see us if she was

just too upset and couldn't stay by herself. She did

it a couple of times, but hardly at all anymore.

So we have ground rules that make it possible to

co-exist even though she still has almost all her bpd

issues still to deal with. She is in no way even close

to being able to function as an independent adult, but

she wants to be.

Apparently your son is not going to keep himself in

treatment. Is there any way that you and your husband

can get help? My husband and I have spent almost as

much time with psychiatrists as our daughter has, and

it (along with the people on this mailing list) has

kept us sane. We are in family therapy right now, but

that is because our daughter has decided she'll go

along with it.

Best of luck to you. Stay in touch and remember that

you have rights, too.

Deborah

--- gina244881 gina244881@...> wrote:

> My 24 year old son has BPD. As a teen he was severly

> depressed and

> started self medicating until he had a huge drug

> problem. Almost

> dying forced him into the hospital and gave him a

> chance for

> recovery. 5 years later, he is finally clean but now

> the mental

> health issues are becoming clearer. We sold our home

> and bought a

> house with a MIL aparment, knowing he cannot live on

> his own. He got

> married 2 years ago impulsively and that union is

> falling apart. He

> has a 1 year old son who he is co parenting with the

> mom. (With our

> supervision). He adores his son, a reason for him to

> live. The

> challenge is living with his BP behaviors. He

> constantly blames us

> for everything, sees himself as a victim, overreacts

> to the simplest

> thing, is sure we are deliberately sabatoging his

> happiness and

> disrespecting him. He rages and does damage to the

> house and

> anything in his path. If we did not put food in

> front of him, he

> would not eat then fall apart. (he got down to 120

> lb and he is 6 ft

> tall). Even though we bought a property specifically

> so he could

> individuate and have his own space, he is in our

> house 24/7. He

> hates to be alone.He has abandonment fears. He

> insists on the same

> routine of eating at a certain restaurant every

> morning. If we

> deviate, he is extremely anxiety ridden. He has a

> therapist but

> frequently cancels the appointments because " They

> don't do any good " .

> He refuses to take meds because he gained 80 pounds

> on Zyprexa and

> in his black and white thinking, all meds will cause

> him to gain

> weight. He is all or nothing. We have no leverage

> with him. He is

> self destructive and would live under a bush if

> threatened to kick

> him out. He has done so. Does this all sound

> familiar and how do you

> live with it?

>

>

>

>

>

>

>

__________________________________________________

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Guest guest

Dear

I think your son has you and your husband right, exactly where he wants you.

He is manipulating and controlling you to his advantage. Like Debbie

advises, I too, would advise some serious boundary setting with him. He NEEDS

to

get a job or if that is too anxiety ridden for him at the moment, then he

NEEDS to have many household chores assigned to him to compensate you for

allowing him to live rent free in your home. I asume you also feed him as

well??

Well, he is an adult and needs to be REQUIRED by you to act like one.

Until he realizes he has responsibilities as a member of your family, he

will never improve. He will develop some self esteem if he contributes on some

level to his own survival-------room and board. How on earth can a 24 yr old

feel anything but bad about himself when Mom and Dad are STILL taking care

of him? Perhaps you could find a chapter of ALANON and/or NAMI to help you to

set boundaries with him. Otherwise your life nor his will ever improve.

Jean

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Guest guest

No, he has never been able to work. He is industrious but can't meet the

demands of daily expectations ie start times etc. He becomes so

overwhelmed that he rages. They all live in the MIL but she is moving

out. He and my husband will care for the baby while mom is at work ie

their version of joint custody. I work full time so help out after work.

>

>

>

> Does your son work or go to school? Does his wife and the baby live

with

> him in your In Law apt?

>

> Jean

>

>

>

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Guest guest

I am so impressed with your boundary setting. Whenever we have tried to

ask him to help, he interprets it as us not wanting him around. He

twists things then he rages and threatens to leave. When he leaves, he

does self destructive things and it takes months to get him back to

something that resembles normal. He despairs so easily that we never

know what we are going to trigger. Our experiences with psychiatrists is

that they don't know too much about borderline. Everyone wants to

diagnose him as bipolar and put him on meds. All the meds did was make

him sleep 20 hours a day and gain 80 pounds.I can sure relate to the

coming into the bedroom. He used to walk in at any hour and flip on the

lights. At least now he knows better than to do that. I have read the

Eggshell book and will reread it. Has anyone really discerned the cause

of BP? Is it chemical, environmental, genetic? I am seeing less and less

of the sweet son I once knew. He has always had mental issues but I

could reach his core. Now it is so buried with anger, despair and self

hatred. He feels so powerless and such a failure that he projects all

his fears on us. We are pretty worn out and wonder what his future will

hold when we are gone.

....> wrote:

>

> Dear ,

>

> You've come to the right place. Your son has symptoms

> almost everyone can identify with, and you've

> obviously done everything you could possibly do for

> him -- a definite characteristic of parents on this

> list.

>

> Have you read Stop Walking on Eggshells? It sounds as

> though you are probably sacrificing much of your life

> to try to keep him stable, and there have got to be

> ways to make things easier for you. For example,

> keeping him out of your house at least part of the

> day, leaving him to deal with his own breakfast,

> establishing consequences when he damages your

> property and refuses to respect you or deal with you

> in a calm way.

>

> One plus is that he has his son to live for.

>

> My daughter is another one who, when in a bad

> condition, will not eat. Her last few months in

> school it sounded as though she only ate when someone

> took her out -- not the sort of behavior you want in a

> young adult (she's 22). She's back at home, but

> learning how to stay out of our space, not being so

> demanding about meals and food, and so on. I don't

> know how to describe it, she knows we care, but she

> also knows we aren't going to put up with all her

> tricks. Somehow we have convinced her that we will

> not abandon her but we expect a certain degree of

> behavior from her. We are careful not to demand more

> than she is capable of, but enough so that we can

> occupy the same space without killing each other. We

> and some others on this list have used contracts or

> written statements. Bpds can't keep things

> straightened out in their minds and it is sometimes

> helpful if they have the ground rules available for

> reference. We started out asking her to wash the

> bathtub and help with the cooking. Also to be out of

> our bedroom by 10 p.m. When she said later that she

> just couldn't promise to help with the housework, we

> adjusted her jobs to doing her own things -- doing her

> own laundry, cleaning up after her move home. We also

> instituted non-cooking days when everyone takes care

> of their own meals. One thing about being out of our

> room: we initially said she had to be out by 10 (she

> watched TV with us and then would be in and out

> looking for things while we were trying to sleep) but

> let her know she could come in and see us if she was

> just too upset and couldn't stay by herself. She did

> it a couple of times, but hardly at all anymore.

>

> So we have ground rules that make it possible to

> co-exist even though she still has almost all her bpd

> issues still to deal with. She is in no way even close

> to being able to function as an independent adult, but

> she wants to be.

>

> Apparently your son is not going to keep himself in

> treatment. Is there any way that you and your husband

> can get help? My husband and I have spent almost as

> much time with psychiatrists as our daughter has, and

> it (along with the people on this mailing list) has

> kept us sane. We are in family therapy right now, but

> that is because our daughter has decided she'll go

> along with it.

>

> Best of luck to you. Stay in touch and remember that

> you have rights, too.

>

> Deborah

>

>

> --- gina244881 gina244881@... wrote:

>

> > My 24 year old son has BPD. As a teen he was severly

> > depressed and

> > started self medicating until he had a huge drug

> > problem. Almost

> > dying forced him into the hospital and gave him a

> > chance for

> > recovery. 5 years later, he is finally clean but now

> > the mental

> > health issues are becoming clearer. We sold our home

> > and bought a

> > house with a MIL aparment, knowing he cannot live on

> > his own. He got

> > married 2 years ago impulsively and that union is

> > falling apart. He

> > has a 1 year old son who he is co parenting with the

> > mom. (With our

> > supervision). He adores his son, a reason for him to

> > live. The

> > challenge is living with his BP behaviors. He

> > constantly blames us

> > for everything, sees himself as a victim, overreacts

> > to the simplest

> > thing, is sure we are deliberately sabatoging his

> > happiness and

> > disrespecting him. He rages and does damage to the

> > house and

> > anything in his path. If we did not put food in

> > front of him, he

> > would not eat then fall apart. (he got down to 120

> > lb and he is 6 ft

> > tall). Even though we bought a property specifically

> > so he could

> > individuate and have his own space, he is in our

> > house 24/7. He

> > hates to be alone.He has abandonment fears. He

> > insists on the same

> > routine of eating at a certain restaurant every

> > morning. If we

> > deviate, he is extremely anxiety ridden. He has a

> > therapist but

> > frequently cancels the appointments because " They

> > don't do any good " .

> > He refuses to take meds because he gained 80 pounds

> > on Zyprexa and

> > in his black and white thinking, all meds will cause

> > him to gain

> > weight. He is all or nothing. We have no leverage

> > with him. He is

> > self destructive and would live under a bush if

> > threatened to kick

> > him out. He has done so. Does this all sound

> > familiar and how do you

> > live with it?

> >

> >

> >

> >

> >

> >

> >

>

> __________________________________________________

>

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  • 8 months later...

tomarrow morning is my surgery day i went today and got my picc line put in. i

have to be at hospital at 6:30 and surgery is at 8:30 wish me luck all

" O. " luv3dbb@...> wrote: Hi Tammy!!!

Welcome to the group and congratulatios on your surgery date!!!

Please come back online and let us know how you are doing.

Hugs!!!

>

> Hi my name is tammy i am 27 years old and i just found this group

this evening. i am having laprascopic RNY this thursday nov 30th at

sycamore hospital in miamisburg ohio. the nurvousness is starting to

kick in as the days get closer. i have had friends that has had it

done so i have talked with alot of them and feel comterable thanking

i know what im going to expect. But its just had my age having it

done i never met anyone my age having this surgery done. but i know

im making the right choice cause i have high blood pressure and i

also have a skin desease called hydradenitis suppertiva (blocked and

infected sweat glands) and my plastic surgen for this thanks if i

have this surgery it will help my hydradenitis breakouts far and few

between. and i have a 7 year old son and would like to be able to get

out and do more with my son as he is still young. well thank you all

for listning i am going to be posting pictures on my jurnal on aol

tomarrow i will send link if i am

> alowed.. i dont know if this groups lets people send links.

>

> ---------------------------------

> Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

>

>

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Welcome Tammy, and congratulations on your surgery. A young patient has many

less problems than an old(er) one like me...so thats in your favor. It takes a

big committment to do everything you are supposed to do, but it sure is worth it

baby.

Hugs, in Texas

tammy gau tamra1180@...> wrote:

tomarrow morning is my surgery day i went today and got my picc line

put in. i have to be at hospital at 6:30 and surgery is at 8:30 wish me luck all

" O. " luv3dbb@...> wrote: Hi Tammy!!!

Welcome to the group and congratulatios on your surgery date!!!

Please come back online and let us know how you are doing.

Hugs!!!

>

> Hi my name is tammy i am 27 years old and i just found this group

this evening. i am having laprascopic RNY this thursday nov 30th at

sycamore hospital in miamisburg ohio. the nurvousness is starting to

kick in as the days get closer. i have had friends that has had it

done so i have talked with alot of them and feel comterable thanking

i know what im going to expect. But its just had my age having it

done i never met anyone my age having this surgery done. but i know

im making the right choice cause i have high blood pressure and i

also have a skin desease called hydradenitis suppertiva (blocked and

infected sweat glands) and my plastic surgen for this thanks if i

have this surgery it will help my hydradenitis breakouts far and few

between. and i have a 7 year old son and would like to be able to get

out and do more with my son as he is still young. well thank you all

for listning i am going to be posting pictures on my jurnal on aol

tomarrow i will send link if i am

> alowed.. i dont know if this groups lets people send links.

>

> ---------------------------------

> Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

>

>

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Yes Im in the bay area......Im not to far from Sac. Im glad you joined the

group....

Mike T

New to Group

> Mike,

>

> I didn't have my surgery @ Kaiser. My surgery was done @ Mercy San

> Medical Center in Sacramento. Do you live in the bay area?

>

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please contact Group Creator

> Robyn@...

>

>

>

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  • 1 year later...
Guest guest

I am new to the group. Would like to say bonjour ro eveyone. I look

forward to sharing ideas and insights concerning FMS. This week has

been a horrible week for me both physically and emotionally. Trying to

be postive, as Scarlett would say " Tomorrow is another day " . Would

like to know about PEN PALS?

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