Re: Need help

June 19, 2004

Oh Men.....to be like them right? You need to just talk to

him...tell him about what you are feeling and your fears....tell him

what you need from him. Remember all of us ladies are here for you

too!

Hang in there!

Right now I just need the strength that

> he is (right now) giving our children (which they need, but need

> some myself). I know that this is very hard on him because he does

> not talk about things but at this point it is not helping me. I

> love my babies more than life itself. Sorry this is so long just

> having a moment).

January 22, 2005

Hi ,

I have been to a Vascular surgeon. They sent me there to see what he could do if anything. I have had RSD for 6 years now. My legs and feet are different colors and they swell constantly. My right leg is about twice the size. When I went to see the vascular surgeon all he could tell me is maybe if I loose some weight. Then I saw a neuro surgeon and was told that I had Left tibial neuropathy, and the lumber disks are deteriating (spelt wrong) They are disappering. So there was nothing anyone could do the RSD just took over both legs. She recommenced that maybe an Spinal cord stimulator mite help. Hence the word MITE. I hope this will help. And maybe the Dr they send you too can figure something that will help your daughter. If you find something out please let me know. My email address is usmiller@....

Sheri

-- need help

I would apprecaite any insight into this I can get..I took my daughterCristin who is 10 to the doc the other day to get her something forher pain..He said he has only ever seen one other case of rsd and thather syptoms did not sound like that is what she is having..We havealready had her diagnosed with rsd..She just needs something for thepain to help her get some sleep at night..This doc wants to send herto a vascular surgeon..Have any of you had any experiance withtis...Both her feet swell form this and her legs really hurt..I reallyapprecaite all the advice I can receive...thank youmom to Cristin 10

January 23, 2005

hello ask your doc for a script for cyclobenzaprine 10mg tablets. I asked my spine doc for help to sleep at night, this is what I got. works great. wrote:

I would apprecaite any insight into this I can get..I took my daughterCristin who is 10 to the doc the other day to get her something forher pain..He said he has only ever seen one other case of rsd and thather syptoms did not sound like that is what she is having..We havealready had her diagnosed with rsd..She just needs something for thepain to help her get some sleep at night..This doc wants to send herto a vascular surgeon..Have any of you had any experiance withtis...Both her feet swell form this and her legs really hurt..I reallyapprecaite all the advice I can receive...thank youmom to Cristin 10

January 23, 2005

Since cyclobenzaprine (Flexoril) is typically prescribed for muscle spasms, it will likely hep her with that as well. Barbarachabba lawrence wrote:

hello ask your doc for a script for cyclobenzaprine 10mg tablets. I asked my spine doc for help to sleep at night, this is what I got. works great. wrote: I would apprecaite any insight into this I can get..I took my daughterCristin who is 10 to the doc the other day to get her something forher pain..He said he has only ever seen one other case of rsd and thather syptoms did not sound like that is what she is having..We havealready had her diagnosed with rsd..She just needs something for thepain to help her get some sleep at night..This doc wants to send herto a vascular surgeon..Have any of you had any experiance withtis...Both her feet swell form this and her legs really hurt..I reallyapprecaite all the advice I can receive...thank youmom to Cristin 10

January 23, 2005

He said he has only ever seen one other case of rsd and thather syptoms did not sound like that is what she is having..We havealready had her diagnosed with rsd

The doctor is judging by one other case?? If he knew anything at all he would know that different people have different symptoms! My pain doctor had a vascular study done and then to see a vascular surgeon to make sure I didn't have any problems there before getting me scheduled to get my SCS fixed. It came out fine.

Love,

N.__________________________________________________

January 24, 2005

>

I agree with . He cant base his RSD knowledged based on one

other patients symptoms. EVERYONE is different in how they show

symptoms, everyone reacts differently to meds and treatment and some

are in various stages when they are diagnosed and apt to show

different variations.

I was at the pain clinic last week to see my dr in follow up. He did

a quick exam on the area that originally showed the signs of RSD and

said that it appeared to be looking pretty good all things

considered. He also said that my particular case was fairly different

from others that he had seen in the way that it traveled, the way it

reacted to touch (most likely because i do some desensitizing)etc but

I am on neurontin and I do have duragesic patches that keep me

comfortable. Thing is Im different from others with my diagnosis but

it doesnt mean I dont have it and your daughters dr cant simply turn

around and say because he saw one other case that she doesnt have it

either.

Maybe Im rambling but I hope that I've made some sense LOL.

Hugs

Donna

> The doctor is judging by one other case?? If he knew anything at

all he would know that different people have different symptoms! My

pain doctor had a vascular study done and then to see a vascular

surgeon to make sure I didn't have any problems there before getting

me scheduled to get my SCS fixed. It came out fine.

>

November 4, 2005

Just off the top of my head...eggs for sure...chicken broth...homemade

is best but if you don't have the time or energy to make it, Trader

Joe's has some pretty good stuff, as does Whole Foods.

Vicki

NEED HELP

>I am scheduled Nov. 16 for surgery to remove 2 lumps from the side of

> my neck. Will have temporary right side facial paralysis for a month

> or more and for approximately 2 weeks will be unable to open my mouth

> but just a tiny bit so eating will be a problem. Was diagnosed 3

> months ago with diabetes and was not able to get my BG's under control

> until I started eating low-carb. I know that I will heal better and

> faster if I can continue to eat low-carb post-op. Since I will only

> be

> able to eat foods that are very, very soft, does anyone have any

> suggestions as to what I can eat and still keep my BG's within range?

> Thanks so much! Sandy G.

>

November 4, 2005

Anything you can blenderize and suck up with a straw should work. Low or

no carb broths can be added to meat and veggies and blenderized. Whey

powder and certain low carb fruits with DaVinci syrups for extra flavor.

Even peanut butter, or other nut butters can go into the blender with

low carb milk, or cream and water, or half and half.

I think if you google blender recepes you should find enough LC recipes

to carry you thru. Try to add some fiber to help modify spikes.

Helen

November 4, 2005

Sandy - Dannon makes low carb yogurt and low carb smoothies. I also make

my own smoothies with yogurt and Whey protein powder and some

raspberries - low carb and high protein. There is always sugar free

jello and pudding, but the puddings do have carbs and I have never tried

them. Scrambled eggs are always a good bet and when you exhause those

ideas there are always donut holes - oops - they are not low carb but

they are small and soft ;-) Cottage cheese, if you like it (I don't) or

ricotta cheese mixed with some yogurt and some flavoring is high protein

and can be tasty. The best is the homemade smoothie with Whey Protein

powder, 1 cup plain yogurt, some light cream. little DiVinci syrup and

about 100 grams raspberries. It is to die for and certainly is filling

and does not spike my BG. Of course, my digestion is vastly different

from everyone else's so YMWDV (your mileage will definitely vary). Good

luck with the surgery.

Barb in NH

skg49_2000 wrote:

> I am scheduled Nov. 16 for surgery to remove 2 lumps from the side of

> my neck. Will have temporary right side facial paralysis for a month

> or more and for approximately 2 weeks will be unable to open my mouth

> but just a tiny bit so eating will be a problem. Was diagnosed 3

> months ago with diabetes and was not able to get my BG's under control

> until I started eating low-carb. I know that I will heal better and

> faster if I can continue to eat low-carb post-op. Since I will only be

> able to eat foods that are very, very soft, does anyone have any

> suggestions as to what I can eat and still keep my BG's within range?

> Thanks so much! Sandy G.

>

November 4, 2005

Sandy, people have given you some good ideas, but don't forget your

blender! Canned green beans, beets, canned meats, canned soups can all

be whirred around in the blender for a while until it is right for you.

Season them up and it might not be too bad.

Just a thought,

Jo

>

November 4, 2005

Thank you Jo too. I have forgotten about that option. And I am not fond of

veggys but am

better than I used to be. I need to make up a combo I can live with that is good

for me

too. ml

Jo wrote:

> Sandy, people have given you some good ideas, but don't forget your

> blender! Canned green beans, beets, canned meats, canned soups can all

> be whirred around in the blender for a while until it is right for you.

> Season them up and it might not be too bad.

>

> Just a thought,

>

> Jo

>

November 5, 2005

Plain, unsweetened yogurt is a possibility. You will have to test

first to see how it affects your bgs, though. It's possible to

subtract 1g of carbs per ounce of yogurt you consume due to the effect

of the bacteria. But some are sensitive to yogurt regardless so the

best thing is to test how it affects you.

Suzz, t2, dx97, d&e

--------------

>

> Anything you can blenderize and suck up with a straw should work.

Low or

> no carb broths can be added to meat and veggies and blenderized. Whey

> powder and certain low carb fruits with DaVinci syrups for extra

flavor.

November 7, 2005

Helen - Lots of good suggestions here. Thanks! Mmmm, the peanut butter

blended with low-carb milk or half and half sounds really good. Sandy G.

November 7, 2005

Barb - thanks for all the suggestions as to what I might eat after my surgery

due to being diabetic. Your home-made smoothie sounds delicious. Will give it

a try. Sandy G.

November 7, 2005

Barb - thanks for all the suggestions as to what I might eat after my surgery

due to being diabetic. Your home-made smoothie sounds delicious. Will give it

a try. Sandy G.

November 8, 2005

So then do you drink it or use it as a sauce? ml

Sandy Gilliland wrote:

> Helen - Lots of good suggestions here. Thanks! Mmmm, the peanut butter

blended with low-carb milk or half and half sounds really good. Sandy G.

>

> >

December 7, 2006

Selina, not sure that it would help you a lot at this point, but my

daughter is a physician assistant who practices dermatology, and she

recommends biotin. You can get it at any vitamin store or even

WalMart. My surgeon has said that of his patients that have

experienced hair loss, it does grow back, and more thick and luxurious

than it was before!

--Cat

- In GastricBypass-LOSERS , Selina Ginger

wrote:

>

> I know there was a big chance that I would loose my hair. BUT and a

very big But!!! I had very thick black beatuiful hair. Now it is very

thin, what can I eat or vitatims to take to stop my hair falling out.

Other then that I feel wonderful I am down to a size 18 in pants have

not been there since 1997. My kids think I am silly when I go to the

store and look at little dresses that I could not wear. Tomorrow is

also my fifth month annviersy for stop smoking. I am very proud of

myself and never in a million years would have thought that I could

stop smoking. Yes the feelings of wanting to smoke are still there but

I feel better because I can run now not just because of the wait lose.

But because of the no smoking.

> Selina Ginger

> 7/10/06

> 282/205/150

>

> ---------------------------------

> Any questions? Get answers on any topic at Yahoo! Answers. Try it now.

>

December 7, 2006

In addition to the biotin, the nutritionist advises keeping your protein intake

high. So make sure you're consuming enough protein as well.

baricat baricat@...> wrote: Selina, not sure that it would help you a

lot at this point, but my