Quick update and (peopple I need to write back to) long and Sister update.

[Guest guest]

Hello fine people and always our newer members a heartly welcome to you all

and bless our chiari kids (smooch).

Just to let you know I will see NSG in 2 weeks, today was visit with

Nuerolgits Doc who works by his side (like Dr. Kula does in NY) we always see

him first. He was concered that I lost all my weight again but said as slong

as I eat well I will be ok and he knows Im the health nut Queen,ha. cant

change not going poop or pee pee unless surgery obviouslu, but cant take

ditropan fro now as I dont go at all but once perday, then about 3 times in a

row of about 5 mintues from urgency, this is all neurological in my case.

Thanks to Kathleen we got some helpful tests done in NY

I do have some degenerative Disc disease from what he saw and read of NY

opinons and this inclusedes Degeneration, and Stenosis, and subluxations, all

starting in upper cervical, also still have SM (trauma induced from fall most

likley and having congenital chiari already when born, also Oblique pelvis

(left side alot higher than right , hey Im just hopingg it undoes the

paryalsis of my diaoprhgm again so I can trhow those fricken tanks away after

4 years I hate tubes in me all the time it sucks!.

I also found out today that I have that Curve thing (spondyloitis (SP) that

has started this from Degernerative disases , this is bad fro me because I

have the absolute highest amount of osteopenia one can have and not be

menopasuale or pre menopauesal (42) and am considered high fracture risk for

hip (femur fracture) he did say my acetebulum fracture and torn ligamnets

from fall (due to Gait WITH Canes) will heal eventualy so thats good news.

He will be in the meeting with us and our team on Jan 2nd to see if NSG feels

he can save my butt yet again (that would be 6th attempt at any and all ways

to deal with my personal pysical issues at hand), Im pretty spent at this

jumcture.

But today as I looked amongest my fellow disabeld freinds with thier own set

of Equipemtn I said this: " IF even ONE of them felt there was even a chance!

to have a better body and life, breathing, or seeing or whatever fro even

only a few months dony you think they would do anything at all for that and

know if may not last " and I knew he undersatoon.

SOOOOOO please pray for me that they are willing otherwisee I will either

just let my self progress to the point of no return, or go out of state

(havent quite made up my mind ofn that one yet,ha).

On antoher VER?Y serious note:. I talkted with Robin today and talked about

my sister, my husband is going to go first part of Janurayr and pick her and

her son up and take them here to live car and all and whatgever they can fit

into the car, after her leaving an abusdive relationshoip (some of you

recall) she lives in a Trailor with her boy (17) my newpew out in no mands

land next door to abusive man, she and her son did the right thing and called

police so at least she has learned her lesson on abuse, however after police

left the man AND his girlfreind cam over and tryied to break into her home

with a crow bar in hand and threated her and hre son and their doggy, she was

hysterical to say the least today.

So its going to be a new family for however long is needed, this is SOOOO

hard on me and my family you have no idea, and we have no income right now

but we do have a home and its large and nice neigboorhood and friends here

oin street. She acutally said after 42 years (she is 49) that she wants to be

with family agaain and feel safe and loved anc cared about, I said well its

about time!!!!, no more bullshit please just pack it up and leave and start

over, its NEVER too late to start over I feel. She has lived with me already

2 or 3 times as a single mother, no biggy thats just life, we will do our

best and pray God heals her heart and heals my body and that her Tumor isnt

cancerous, she will know the end of this month after more MRIs next week, if

it looks like cancer we will still bring her ghere and get her surgery on her

Govt medicaid and take care of her best we can (Im tired just thinking about

it,ha,ha,ha) but hey family is family and I feel the same way about my dear

freinds I would do the same thing.

Hey With NYs helop and Kahtleens help and Robin C's help I just may get my

wish for this new year and have some time to live again even if not as long

asI want, I want mykids to have mommy around for as long as God allows and my

dear sweet hubby whome I adore.

In some wayss it will be nice to have family agagain its been so long I

cannot count the years now, hard yes, but her and I have always been the only

really close oness out of 7 in our family and we let each other be as we are.

oh her pup is coming too, I couldnt bear to leave him behind, hes a little

DAuchound(sp) I LOVE pups as you all know,ha,h,aha my Litt;e pup Rudy (who

just turend 2) will have a freind , hmmm wonder if they will BOth sleep with

me and hubby now yikes!!!!,ha,ha,ha,ha.

WEll I have sOs mnay to write back persosnl emails, but it will have to wait

a few days as tommorw is my babys 8th birhtday, so mommys making pancakces

foir breakfast, and homade cake (Im a cook and a drarn good one(smile).

LOVE nad hugs God BLESS

DAhli DAwn the stinker