Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Dear , Yes, yes, yes... I was in the same situation as you. I got married at age 26 with the fibroid symptoms you described. We did not want to start our family too soon into our marriage either. We thought, if my uterus could make it, to wait at least three or four years. Both our parents did this as newlywed couples, so we thought it would be best for our marriage. I had a scheduled ab myo three months after our wedding. This was supposed to eliminate my bleeding issues. It did not. I was then diagnosed with adenomyosis which is inoperable. So my doctor suggested a hysterectomy. I was very stubborn and put it off. I chose to take continuous bc pills (high progesterone) instead. I took these for the next four years giving myself one period a year. The period I would have was so bad it always put me in the hospital receiving a transfusion. And the pills never stopped my daily bleeding altogether. I had chronic yeast infections from the daily spotting along with anemia and all the other side effects from the pill. But I put up with it because I felt keeping my uterus was important. I even went to see an endometriosis specialist who told me my problem was fibroids, but I didn't believe him because I had just had other fibs removed during my ab myo. Didn't think my gyn would miss the problematic ones. I went to a third doctor who performed uterine artery embolizations, but he did not suggest that for me since I wanted a future pregnancy. I trusted my gyn and liked him very much. I didn't even consider that he might have misdiagnosed me. Last summer before my 30th birthday I had a gall bladder attack. I discovered this was caused from gall stones. Gall stones were formihng because I had elevated blood cholesterol, a side effect from taking such high doses of the pill. I was taking Low overal-28 twice a day. I knew my cholesterol was high, was keeping a close watch on it and eating an appropriate diet, but my doctors never told me it could have such a side effect. After the gall bladder attack, I had had enough. I stopped the pills and suffered through two periods. The second period came while my hubby and I were on vacation. I felt ill the whole time. He made me go and get my hemoglobin tested as soon as we got home. We both knew I would need more blood. Sure enough, I did. I let my Hmg drop to 5.0 (stroke range.) At that point, we were ready to make a decision. I could not suffer any longer and could not keep getting transfusions. My gyn told me to either really consider the hysterectomy or go see a RE at the local fertility clinic. We chose the RE. And to our biggest surprise, this new doctor said I had been misdiagnosed. I did not have adeno, I had submucosal fibroids that were causing all the bleeding. And boy did I have them, over twenty of the little buggers. He suggested we try a hysteroscopic resection surgery. He warned us it might take more than one surgery to remove them all. But after they were removed, my bleeding issues should subside and we should be able to try for a baby. This was shocking news, but oh so exciting. So I am now symptom-free. I had three resections last fall and am now off the pill forever! My husband and I are trying to get pregnant for the first time. It may take a while for the pill to get completely out of my system, so we are patient. But my doctor does not want us to wait any longer. At the rate I grow fibs, I grow them big and I grow them fast. So if we keep waiting to start our family I may have new ones crop up and become problematic. So my dear, I have been in your shoes. I was stubborn all those years living with terrible bleeding and pain, but I did not relent to a hysterectomy. Somewhere inside I knew I would find the right doctor. My advice to you is... go to a fertility center. You don't have to be currently trying for a conception to see a reproductive endocrinologist. They help all women who want to preserve their fertility. They have the best technology and experience for treating symptomatic fibroids. Ask your RE if your fibs are submucosal and if they can be removed via resection surgery. Don't worry, this is a breeze of a surgery. I have had both the ab myo and the resections. The resection is nothing like a major surgery. You are in and out in a day with minimal pain and discomfort. Your doctor is right, don't wait too long to start your family. But if you don't want to try the first year of your marriage, at least go see a fertility specialist so you can get acquainted with him/her and they can keep a close watch on your uterus. You might not want to take " the pill " forever. But it may be your best choice in treatment while you are waiting for other treatments. It is wonderful that you have joined this support forum. The key to living with fibroids is to keep educating yourself about them. The more you know, the better questions you can ask, and the better patient you will become. I wish I would have found this group many years ago. I may have questioned my diagnosis a second time. No, I do not blame my gyn for misdiagnosing me. He did what he knew to do. He was not trained to see the real issue, but he did listen to my concerns and tried to help me as best he could. Now I am a better patient because of all my problems. I can help other women do the same for themselves too. And the best news I could hope for was waiting in the wings because I was so stubborn all those years! Good luck to you and your fiance. Hope you can find the right doctor who will treat you and listen to your concerns. Take care and take your iron! Blessings, :)Sonja Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Sonja, Thank you for your posting. I have fibroids and am beginning to educate myself about what is safe to do to take care of myself and avoid the hazards of mega doses of hormones. The resection surgery sounds like a viable option and I am going to discuss this with my gyno when I see her. I am 48, do not want any more children, but also do not want to give up my female organs. I am at the beginning of my educational experience regarding this concern, and am quite hopeful that a good, healthy solution will occur quite soon. This seems like a wonderful place to begin, with reading some of the actual concerns and effective treatments that alleviate the symptoms of the condition that we all seem to have in common. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 mY DAUGHTER IS 21. YOU'RE AT THE RIGHT PLACE. TONYA In a message dated 5/12/2006 5:56:50 P.M. Central Standard Time, dankmitta@... writes: Newbee, You are in the right place. I do not have the experience with older BPD children, my stepdaughter turns 18 in a month, but there are those on this site who do. So welcome and know that you are not alone. Dan At 01:39 PM 5/12/2006, you wrote: >I'm new to this group and have never posted messages such as this >but... Is anyone dealing with an older child with BPD. My daughter >is 24 and we have only just learned of her diagnosis. Did I join the >right group? > > > > > > > >Problems? Ask our friendly List Manager for >help, @.... SEND HER ANY POSTS >THAT CONCERN YOU; DO NOT RESPOND ONLINE. > >Essential reading to help you feel better and >understand the BP in your life are: > >• SWOE ( " Stop Walking on Eggshellsâ€) and the SWOE Workbook (for everyone) >• HOPE FOR PARENTS > >Call 888-35-SHELL () to order your copies. > > From Randi Kreger, Owner of BPDCentral and the WTO Online Community > > > > >SPONSORED LINKS >http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+healt h+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+ and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6 &s=181&.sig=HFCK21385eiVKA-icsCXdg>Article >health wellness >http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Articl e+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4= Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+ job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>Center >for health and wellness >http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+we llness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+ wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=1 81&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg>Health >and wellness >http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+h ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Hea lth+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness +job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g>Health >and wellness program >http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+healt h+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+ and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6 &s=181&.sig=T568iKLktVX2LzTlHB8xxA>Health >wellness product >http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+healt h+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+ and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6 &s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w>Health >and wellness job > > >---------- >YAHOO! GROUPS LINKS > > * Visit your group > " http://groups.yahoo.com/group/WTOParentsOfBPs>WTOParentsOfBPs " on the web. > * > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Newbee, You are in the right place. I do not have the experience with older BPD children, my stepdaughter turns 18 in a month, but there are those on this site who do. So welcome and know that you are not alone. Dan At 01:39 PM 5/12/2006, you wrote: >I'm new to this group and have never posted messages such as this >but... Is anyone dealing with an older child with BPD. My daughter >is 24 and we have only just learned of her diagnosis. Did I join the >right group? > > > > > > > >Problems? Ask our friendly List Manager for >help, @.... SEND HER ANY POSTS >THAT CONCERN YOU; DO NOT RESPOND ONLINE. > >Essential reading to help you feel better and >understand the BP in your life are: > >• SWOE ( " Stop Walking on Eggshells”) and the SWOE Workbook (for everyone) >• HOPE FOR PARENTS > >Call 888-35-SHELL () to order your copies. > > From Randi Kreger, Owner of BPDCentral and the WTO Online Community > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Yes, this is the right group. My daughter is 22 and was diagnosed with this when she was 17, a few weeks shy of 18, so I've been on this road for a while and so have others. Let us know how we can help, Newbee! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of Pat Sent: Friday, May 12, 2006 4:40 PM To: WTOParentsOfBPs Subject: Newbee I'm new to this group and have never posted messages such as this but... Is anyone dealing with an older child with BPD. My daughter is 24 and we have only just learned of her diagnosis. Did I join the right group? Problems? Ask our friendly List Manager for help, @.... SEND HER ANY POSTS THAT CONCERN YOU; DO NOT RESPOND ONLINE. Essential reading to help you feel better and understand the BP in your life are: .. SWOE ( " Stop Walking on Eggshells " ) and the SWOE Workbook (for everyone) .. HOPE FOR PARENTS Call 888-35-SHELL () to order your copies. From Randi Kreger, Owner of BPDCentral and the WTO Online Community Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Hi Helen, Is your daughter living on her own? Mine does not exhibit agressive physical behavior but has covered it up with depression and drug abuse. She seems to be stable for a short while and then has a flareup where she regresses back to drug abuse. Have you heard of any BPs who are able to live a normal life away from home eventually? Pat Helen Eby dheby@...> wrote: Yes, this is the right group. My daughter is 22 and was diagnosed with this when she was 17, a few weeks shy of 18, so I've been on this road for a while and so have others. Let us know how we can help, Newbee! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of Pat Sent: Friday, May 12, 2006 4:40 PM To: WTOParentsOfBPs Subject: Newbee I'm new to this group and have never posted messages such as this but... Is anyone dealing with an older child with BPD. My daughter is 24 and we have only just learned of her diagnosis. Did I join the right group? Problems? Ask our friendly List Manager for help, @.... SEND HER ANY POSTS THAT CONCERN YOU; DO NOT RESPOND ONLINE. Essential reading to help you feel better and understand the BP in your life are: .. SWOE ( " Stop Walking on Eggshells " ) and the SWOE Workbook (for everyone) .. HOPE FOR PARENTS Call 888-35-SHELL () to order your copies. From Randi Kreger, Owner of BPDCentral and the WTO Online Community Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 thanks for the kind words pottstonya@... wrote: mY DAUGHTER IS 21. YOU'RE AT THE RIGHT PLACE. TONYA In a message dated 5/12/2006 5:56:50 P.M. Central Standard Time, dankmitta@... writes: Newbee, You are in the right place. I do not have the experience with older BPD children, my stepdaughter turns 18 in a month, but there are those on this site who do. So welcome and know that you are not alone. Dan At 01:39 PM 5/12/2006, you wrote: >I'm new to this group and have never posted messages such as this >but... Is anyone dealing with an older child with BPD. My daughter >is 24 and we have only just learned of her diagnosis. Did I join the >right group? > > > > > > > >Problems? Ask our friendly List Manager for >help, @.... SEND HER ANY POSTS >THAT CONCERN YOU; DO NOT RESPOND ONLINE. > >Essential reading to help you feel better and >understand the BP in your life are: > >• SWOE ( " Stop Walking on Eggshellsâ€) and the SWOE Workbook (for everyone) >• HOPE FOR PARENTS > >Call 888-35-SHELL () to order your copies. > > From Randi Kreger, Owner of BPDCentral and the WTO Online Community > > > > >SPONSORED LINKS >http://groups.yahoo.com/gads?t=ms&k=Article+health+wellness&w1=Article+healt h+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+ and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6 &s=181&.sig=HFCK21385eiVKA-icsCXdg>Article >health wellness >http://groups.yahoo.com/gads?t=ms&k=Center+for+health+and+wellness&w1=Articl e+health+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4= Health+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+ job&c=6&s=181&.sig=d199fxd8Nd9hDHGAPRGZ3w>Center >for health and wellness >http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness&w1=Article+health+we llness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+and+ wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6&s=1 81&.sig=8Xg1Y8WnIQ8M8RmwiCBfYg>Health >and wellness >http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+program&w1=Article+h ealth+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Hea lth+and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness +job&c=6&s=181&.sig=o6A_SwJ7NPKV-vbc2guF8g>Health >and wellness program >http://groups.yahoo.com/gads?t=ms&k=Health+wellness+product&w1=Article+healt h+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+ and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6 &s=181&.sig=T568iKLktVX2LzTlHB8xxA>Health >wellness product >http://groups.yahoo.com/gads?t=ms&k=Health+and+wellness+job&w1=Article+healt h+wellness&w2=Center+for+health+and+wellness&w3=Health+and+wellness&w4=Health+ and+wellness+program&w5=Health+wellness+product&w6=Health+and+wellness+job&c=6 &s=181&.sig=-WO9UjsJlgtYfOHYjcGl9w>Health >and wellness job > > >---------- >YAHOO! GROUPS LINKS > > * Visit your group > " http://groups.yahoo.com/group/WTOParentsOfBPs>WTOParentsOfBPs " on the web. > * > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Pat, My daughter lives with her husband. She was dating a total jerk when we sent her off to an RTC. We told her the way home was through fulfillment of treatment - graduating, not saying " it doesn't work " . Well, at 18 she checked herself out and had , her bf, pick her up. His mom accepted the responsibility of having her stay there. Then they got married - we found out sort of by accident a few weeks after the fact - and they live on their own now. My daughter exhibited a lot of physical aggressive behavior at home. She broke the door to her room, and it just wasn't worth it to try to fix the house up with her around. She seems to go through " I can do this " stages but then after a while reverts to her BP behaviors. Mind you, all I get this from is from being asked to pick up the pieces when the crisis come around. (my husband) and I decided she had to earn her welcome back into the house by showing she was ready for an open adult relationship, not by getting pregnant. Anyway, you can read more of my story in the archives, but the nuts and bolts of our current relationship are that I contact her once every 6 weeks or so to make sure she knows we still care about her. It is generally something as impersonal as an email that says " hey, we are here, the younger kids are doing great, and we are having a great time. How's your family? We'd love to have you and your family over. " The reason we started to show more respect for is that since she married him we decided we didn't want to undermine the marriage. It is flaky enough on its own, and I didn't want her coming and saying " I dropped the jerk. Now I'm your responsibility because I did what you told me to do " . She actually did this before Thanksgiving of this year. I told her " Sorry, it is your life to get on with " . Anyway, regarding BPs who are able to live a normal life away from home, I know a couple of women who have been diagnosed with it and live apparently stable lives. One of them checks herself into the psych ward when she feels that she is becoming a danger to her family, and then goes home. At least she is working on it! The other one works with a pdoc, and takes medication, and I would say she has times of being dependable and times of not being around at our church. This year she was pretty involved for a while, and then without warning she just disappeared from our fellowship. She starts to disappear by having weekly excuses, and then just keeps out of sight without an excuse. Anyway, I feel that I shouldn't chase after her except like I do with Liz - an occasional comment that we love to have her around and would like to see more of her. Does this help? The two adult friends I have who have been diagnosed with BP are pleasant women, and seem to hold their lives together to some degree, but their husbands really are great guys, and I think they are the ones who hold the family together. In my daughter's case, I don't think her husband is that kind of guy, but he is working at it. Does this answer your question in some way, Pat? Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of HUMAN RESOURCES HARBOR CHILD Sent: Saturday, May 13, 2006 11:19 AM To: WTOParentsOfBPs Subject: RE: Newbee Hi Helen, Is your daughter living on her own? Mine does not exhibit agressive physical behavior but has covered it up with depression and drug abuse. She seems to be stable for a short while and then has a flareup where she regresses back to drug abuse. Have you heard of any BPs who are able to live a normal life away from home eventually? Pat Helen Eby dheby@...> wrote: Yes, this is the right group. My daughter is 22 and was diagnosed with this when she was 17, a few weeks shy of 18, so I've been on this road for a while and so have others. Let us know how we can help, Newbee! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of Pat Sent: Friday, May 12, 2006 4:40 PM To: WTOParentsOfBPs Subject: Newbee I'm new to this group and have never posted messages such as this but... Is anyone dealing with an older child with BPD. My daughter is 24 and we have only just learned of her diagnosis. Did I join the right group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 I too am new to this group and have never posted. My son is 26 and we have only just learned in the last two months that he has BP. I have never felt heartbreak like this before! > > I'm new to this group and have never posted messages such as this > but... Is anyone dealing with an older child with BPD. My daughter > is 24 and we have only just learned of her diagnosis. Did I join the > right group? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Hi Helen, Yes, you did answer my question. Its great to get feedback from people in similar situations. I've had my suspicions for a long time now that my daughter will always have troubled relationships and I'm learning to accept that I cannot change my daughter's behaviors, but it I guess it will take more time. I'm asking my husband to read the Stop Walking on Eggshells book too because he is definitely in denial. It seems that all our problems arise from our daughter's actions. We run away every weekend to get some peace at our vacation home, but worry while we are gone. Just today one of our conversations was that I told him my daugther had another parking ticket but this one was for speeding. He replied that we have to pay for the ticket because she will lie and tell use she took care of it and it will jeopardize our renewing our car insurance because she is on our policy. I half feel that we should not pay the ticket and tell her to handle it but he said she woud not be able to get car insurance because of accidents and tickets and that if she could, we could not afford to pay the 3K it would cost. If she has no insurance, that means that we would have to drive her to meth treatment every other day because there is no bus available and we both work. Every action we take seems to enable her behaviors but we can't withdraw because the consequences will cause us hardship and we are getting tired of it all. We've been dealing with her depression and drug abuse since age 17. I have the feeling that it may take a long time, but at some point I too will have to say " its your life so get on with it " . On the brighter side, I'm hoping that our daughter will learn how to manage her illness, she is getting ready to enroll in a dual diagnosis program at the methadone center and her therapist is increasing her visits and the psychiatrist seems to be paying more attention since i keep calling him. I think you are right to stay in touch with your daughter to remind her that you are there for her, but I suspect all of us parents will be picking up the pieces whenever we have to and forever how long we can. You sound like you have a good handle on all of this-- thanks for listening. Happy Mother's Day too. Pat Helen Eby dheby@...> wrote: Pat, My daughter lives with her husband. She was dating a total jerk when we sent her off to an RTC. We told her the way home was through fulfillment of treatment - graduating, not saying " it doesn't work " . Well, at 18 she checked herself out and had , her bf, pick her up. His mom accepted the responsibility of having her stay there. Then they got married - we found out sort of by accident a few weeks after the fact - and they live on their own now. My daughter exhibited a lot of physical aggressive behavior at home. She broke the door to her room, and it just wasn't worth it to try to fix the house up with her around. She seems to go through " I can do this " stages but then after a while reverts to her BP behaviors. Mind you, all I get this from is from being asked to pick up the pieces when the crisis come around. (my husband) and I decided she had to earn her welcome back into the house by showing she was ready for an open adult relationship, not by getting pregnant. Anyway, you can read more of my story in the archives, but the nuts and bolts of our current relationship are that I contact her once every 6 weeks or so to make sure she knows we still care about her. It is generally something as impersonal as an email that says " hey, we are here, the younger kids are doing great, and we are having a great time. How's your family? We'd love to have you and your family over. " The reason we started to show more respect for is that since she married him we decided we didn't want to undermine the marriage. It is flaky enough on its own, and I didn't want her coming and saying " I dropped the jerk. Now I'm your responsibility because I did what you told me to do " . She actually did this before Thanksgiving of this year. I told her " Sorry, it is your life to get on with " . Anyway, regarding BPs who are able to live a normal life away from home, I know a couple of women who have been diagnosed with it and live apparently stable lives. One of them checks herself into the psych ward when she feels that she is becoming a danger to her family, and then goes home. At least she is working on it! The other one works with a pdoc, and takes medication, and I would say she has times of being dependable and times of not being around at our church. This year she was pretty involved for a while, and then without warning she just disappeared from our fellowship. She starts to disappear by having weekly excuses, and then just keeps out of sight without an excuse. Anyway, I feel that I shouldn't chase after her except like I do with Liz - an occasional comment that we love to have her around and would like to see more of her. Does this help? The two adult friends I have who have been diagnosed with BP are pleasant women, and seem to hold their lives together to some degree, but their husbands really are great guys, and I think they are the ones who hold the family together. In my daughter's case, I don't think her husband is that kind of guy, but he is working at it. Does this answer your question in some way, Pat? Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of HUMAN RESOURCES HARBOR CHILD Sent: Saturday, May 13, 2006 11:19 AM To: WTOParentsOfBPs Subject: RE: Newbee Hi Helen, Is your daughter living on her own? Mine does not exhibit agressive physical behavior but has covered it up with depression and drug abuse. She seems to be stable for a short while and then has a flareup where she regresses back to drug abuse. Have you heard of any BPs who are able to live a normal life away from home eventually? Pat Helen Eby dheby@...> wrote: Yes, this is the right group. My daughter is 22 and was diagnosed with this when she was 17, a few weeks shy of 18, so I've been on this road for a while and so have others. Let us know how we can help, Newbee! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of Pat Sent: Friday, May 12, 2006 4:40 PM To: WTOParentsOfBPs Subject: Newbee I'm new to this group and have never posted messages such as this but... Is anyone dealing with an older child with BPD. My daughter is 24 and we have only just learned of her diagnosis. Did I join the right group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 In a message dated 5/13/2006 10:04:31 PM Eastern Standard Time, pwinzenried@... writes: I too am new to this group and have never posted. My son is 26 and we have only just learned in the last two months that he has BP. I have never felt heartbreak like this before! Hi there and welcome! I hear your pain and have been there. Actually, still am as my 20 yr. old son is battling alcoholism. Very sad. My daughter, 19, recovered from BPD. I have just posted a bunch of replies that you can read today. They may help you. Hugs coming your way, hang in there, there is hope! DebbieL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Pat, I was wondering. Would paying for a taxi ride be cheaper than the insurance? Then you could pay for the taxi ride to the specific place, she wouldn't be making the insurance payments worse all the time, and she'd have a consequence. Sure, she'd hit the roof at having her entitlement to drive taken away, but I wonder... Someone in that kind of treatment shouldn't be behind the wheel anyway, IMHO. Yes, I stay in touch at some level. However, it has really helped to share all of my interaction with her with . Now he sees the problems she has. He didn't use to, because I didn't show him some of that, to protect him from seeing his daughter for what she was. Regarding picking up the pieces for her, I'm very reluctant to do that. I lurked on the siblings list, by recommendation of the list manager, because I have kids. What I have seen is that when we pick up the pieces and then become unable to do so (i.e. death, illness, etc.), the BP starts to lean on the siblings, who have no desire to pick up the pieces themselves. If we don't make them self sufficient, they will keep leeching off the family as long as possible. I can't bring myself to pass that on to and , so I don't do it. Does that make sense? Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of HUMAN RESOURCES HARBOR CHILD Sent: Sunday, May 14, 2006 8:18 PM To: WTOParentsOfBPs Subject: RE: Newbee Hi Helen, Yes, you did answer my question. Its great to get feedback from people in similar situations. I've had my suspicions for a long time now that my daughter will always have troubled relationships and I'm learning to accept that I cannot change my daughter's behaviors, but it I guess it will take more time. I'm asking my husband to read the Stop Walking on Eggshells book too because he is definitely in denial. It seems that all our problems arise from our daughter's actions. We run away every weekend to get some peace at our vacation home, but worry while we are gone. Just today one of our conversations was that I told him my daugther had another parking ticket but this one was for speeding. He replied that we have to pay for the ticket because she will lie and tell use she took care of it and it will jeopardize our renewing our car insurance because she is on our policy. I half feel that we should not pay the ticket and tell her to handle it but he said she woud not be able to get car insurance because of accidents and tickets and that if she could, we could not afford to pay the 3K it would cost. If she has no insurance, that means that we would have to drive her to meth treatment every other day because there is no bus available and we both work. Every action we take seems to enable her behaviors but we can't withdraw because the consequences will cause us hardship and we are getting tired of it all. We've been dealing with her depression and drug abuse since age 17. I have the feeling that it may take a long time, but at some point I too will have to say " its your life so get on with it " . On the brighter side, I'm hoping that our daughter will learn how to manage her illness, she is getting ready to enroll in a dual diagnosis program at the methadone center and her therapist is increasing her visits and the psychiatrist seems to be paying more attention since i keep calling him. I think you are right to stay in touch with your daughter to remind her that you are there for her, but I suspect all of us parents will be picking up the pieces whenever we have to and forever how long we can. You sound like you have a good handle on all of this-- thanks for listening. Happy Mother's Day too. Pat Helen Eby dheby@...> wrote: Pat, My daughter lives with her husband. She was dating a total jerk when we sent her off to an RTC. We told her the way home was through fulfillment of treatment - graduating, not saying " it doesn't work " . Well, at 18 she checked herself out and had , her bf, pick her up. His mom accepted the responsibility of having her stay there. Then they got married - we found out sort of by accident a few weeks after the fact - and they live on their own now. My daughter exhibited a lot of physical aggressive behavior at home. She broke the door to her room, and it just wasn't worth it to try to fix the house up with her around. She seems to go through " I can do this " stages but then after a while reverts to her BP behaviors. Mind you, all I get this from is from being asked to pick up the pieces when the crisis come around. (my husband) and I decided she had to earn her welcome back into the house by showing she was ready for an open adult relationship, not by getting pregnant. Anyway, you can read more of my story in the archives, but the nuts and bolts of our current relationship are that I contact her once every 6 weeks or so to make sure she knows we still care about her. It is generally something as impersonal as an email that says " hey, we are here, the younger kids are doing great, and we are having a great time. How's your family? We'd love to have you and your family over. " The reason we started to show more respect for is that since she married him we decided we didn't want to undermine the marriage. It is flaky enough on its own, and I didn't want her coming and saying " I dropped the jerk. Now I'm your responsibility because I did what you told me to do " . She actually did this before Thanksgiving of this year. I told her " Sorry, it is your life to get on with " . Anyway, regarding BPs who are able to live a normal life away from home, I know a couple of women who have been diagnosed with it and live apparently stable lives. One of them checks herself into the psych ward when she feels that she is becoming a danger to her family, and then goes home. At least she is working on it! The other one works with a pdoc, and takes medication, and I would say she has times of being dependable and times of not being around at our church. This year she was pretty involved for a while, and then without warning she just disappeared from our fellowship. She starts to disappear by having weekly excuses, and then just keeps out of sight without an excuse. Anyway, I feel that I shouldn't chase after her except like I do with Liz - an occasional comment that we love to have her around and would like to see more of her. Does this help? The two adult friends I have who have been diagnosed with BP are pleasant women, and seem to hold their lives together to some degree, but their husbands really are great guys, and I think they are the ones who hold the family together. In my daughter's case, I don't think her husband is that kind of guy, but he is working at it. Does this answer your question in some way, Pat? Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of HUMAN RESOURCES HARBOR CHILD Sent: Saturday, May 13, 2006 11:19 AM To: WTOParentsOfBPs Subject: RE: Newbee Hi Helen, Is your daughter living on her own? Mine does not exhibit agressive physical behavior but has covered it up with depression and drug abuse. She seems to be stable for a short while and then has a flareup where she regresses back to drug abuse. Have you heard of any BPs who are able to live a normal life away from home eventually? Pat Helen Eby dheby@...> wrote: Yes, this is the right group. My daughter is 22 and was diagnosed with this when she was 17, a few weeks shy of 18, so I've been on this road for a while and so have others. Let us know how we can help, Newbee! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of Pat Sent: Friday, May 12, 2006 4:40 PM To: WTOParentsOfBPs Subject: Newbee I'm new to this group and have never posted messages such as this but... Is anyone dealing with an older child with BPD. My daughter is 24 and we have only just learned of her diagnosis. Did I join the right group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Yes, it does make sense. I have to psych myself up to be strong enough to stop picking up the pieces. We are going to see her therapist wednesday (she's not happy about this) to discuss more intense therapy and the consequences she will get if she doesn't agree and follow thru on it. One will be take we will take away the car -- you are absolutely right about using the taxi's and the safety issue in driving. Right now she goes to program every other day, therapy once every other week, and doctor once a month, and work 2 days a week. I think she could use buses and taxi's for that and she will definitely freak when we take away the car. I have to be ready for her to slide deeper into depression and stop going to her " program " which may cause her to pick up again and god knows what else. If she agrees to step up her therapy, she will be at program every other morning as well as joining group therapy in the evenings every day of the week, therapist one day a week, work 2 days and doctor once a month ( i don't think taxi's will work for this much traveling). By holding the car over her as motivation, I think she will get the therapy she needs. As I write this, i think these choices stink.... Helen Eby dheby@...> wrote: Pat, I was wondering. Would paying for a taxi ride be cheaper than the insurance? Then you could pay for the taxi ride to the specific place, she wouldn't be making the insurance payments worse all the time, and she'd have a consequence. Sure, she'd hit the roof at having her entitlement to drive taken away, but I wonder... Someone in that kind of treatment shouldn't be behind the wheel anyway, IMHO. Yes, I stay in touch at some level. However, it has really helped to share all of my interaction with her with . Now he sees the problems she has. He didn't use to, because I didn't show him some of that, to protect him from seeing his daughter for what she was. Regarding picking up the pieces for her, I'm very reluctant to do that. I lurked on the siblings list, by recommendation of the list manager, because I have kids. What I have seen is that when we pick up the pieces and then become unable to do so (i.e. death, illness, etc.), the BP starts to lean on the siblings, who have no desire to pick up the pieces themselves. If we don't make them self sufficient, they will keep leeching off the family as long as possible. I can't bring myself to pass that on to and , so I don't do it. Does that make sense? Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of HUMAN RESOURCES HARBOR CHILD Sent: Sunday, May 14, 2006 8:18 PM To: WTOParentsOfBPs Subject: RE: Newbee Hi Helen, Yes, you did answer my question. Its great to get feedback from people in similar situations. I've had my suspicions for a long time now that my daughter will always have troubled relationships and I'm learning to accept that I cannot change my daughter's behaviors, but it I guess it will take more time. I'm asking my husband to read the Stop Walking on Eggshells book too because he is definitely in denial. It seems that all our problems arise from our daughter's actions. We run away every weekend to get some peace at our vacation home, but worry while we are gone. Just today one of our conversations was that I told him my daugther had another parking ticket but this one was for speeding. He replied that we have to pay for the ticket because she will lie and tell use she took care of it and it will jeopardize our renewing our car insurance because she is on our policy. I half feel that we should not pay the ticket and tell her to handle it but he said she woud not be able to get car insurance because of accidents and tickets and that if she could, we could not afford to pay the 3K it would cost. If she has no insurance, that means that we would have to drive her to meth treatment every other day because there is no bus available and we both work. Every action we take seems to enable her behaviors but we can't withdraw because the consequences will cause us hardship and we are getting tired of it all. We've been dealing with her depression and drug abuse since age 17. I have the feeling that it may take a long time, but at some point I too will have to say " its your life so get on with it " . On the brighter side, I'm hoping that our daughter will learn how to manage her illness, she is getting ready to enroll in a dual diagnosis program at the methadone center and her therapist is increasing her visits and the psychiatrist seems to be paying more attention since i keep calling him. I think you are right to stay in touch with your daughter to remind her that you are there for her, but I suspect all of us parents will be picking up the pieces whenever we have to and forever how long we can. You sound like you have a good handle on all of this-- thanks for listening. Happy Mother's Day too. Pat Helen Eby dheby@...> wrote: Pat, My daughter lives with her husband. She was dating a total jerk when we sent her off to an RTC. We told her the way home was through fulfillment of treatment - graduating, not saying " it doesn't work " . Well, at 18 she checked herself out and had , her bf, pick her up. His mom accepted the responsibility of having her stay there. Then they got married - we found out sort of by accident a few weeks after the fact - and they live on their own now. My daughter exhibited a lot of physical aggressive behavior at home. She broke the door to her room, and it just wasn't worth it to try to fix the house up with her around. She seems to go through " I can do this " stages but then after a while reverts to her BP behaviors. Mind you, all I get this from is from being asked to pick up the pieces when the crisis come around. (my husband) and I decided she had to earn her welcome back into the house by showing she was ready for an open adult relationship, not by getting pregnant. Anyway, you can read more of my story in the archives, but the nuts and bolts of our current relationship are that I contact her once every 6 weeks or so to make sure she knows we still care about her. It is generally something as impersonal as an email that says " hey, we are here, the younger kids are doing great, and we are having a great time. How's your family? We'd love to have you and your family over. " The reason we started to show more respect for is that since she married him we decided we didn't want to undermine the marriage. It is flaky enough on its own, and I didn't want her coming and saying " I dropped the jerk. Now I'm your responsibility because I did what you told me to do " . She actually did this before Thanksgiving of this year. I told her " Sorry, it is your life to get on with " . Anyway, regarding BPs who are able to live a normal life away from home, I know a couple of women who have been diagnosed with it and live apparently stable lives. One of them checks herself into the psych ward when she feels that she is becoming a danger to her family, and then goes home. At least she is working on it! The other one works with a pdoc, and takes medication, and I would say she has times of being dependable and times of not being around at our church. This year she was pretty involved for a while, and then without warning she just disappeared from our fellowship. She starts to disappear by having weekly excuses, and then just keeps out of sight without an excuse. Anyway, I feel that I shouldn't chase after her except like I do with Liz - an occasional comment that we love to have her around and would like to see more of her. Does this help? The two adult friends I have who have been diagnosed with BP are pleasant women, and seem to hold their lives together to some degree, but their husbands really are great guys, and I think they are the ones who hold the family together. In my daughter's case, I don't think her husband is that kind of guy, but he is working at it. Does this answer your question in some way, Pat? Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of HUMAN RESOURCES HARBOR CHILD Sent: Saturday, May 13, 2006 11:19 AM To: WTOParentsOfBPs Subject: RE: Newbee Hi Helen, Is your daughter living on her own? Mine does not exhibit agressive physical behavior but has covered it up with depression and drug abuse. She seems to be stable for a short while and then has a flareup where she regresses back to drug abuse. Have you heard of any BPs who are able to live a normal life away from home eventually? Pat Helen Eby dheby@...> wrote: Yes, this is the right group. My daughter is 22 and was diagnosed with this when she was 17, a few weeks shy of 18, so I've been on this road for a while and so have others. Let us know how we can help, Newbee! Helen _____ From: WTOParentsOfBPs [mailto:WTOParentsOfBPs ] On Behalf Of Pat Sent: Friday, May 12, 2006 4:40 PM To: WTOParentsOfBPs Subject: Newbee I'm new to this group and have never posted messages such as this but... Is anyone dealing with an older child with BPD. My daughter is 24 and we have only just learned of her diagnosis. Did I join the right group? Quote Link to comment Share on other sites More sharing options...
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