Re: more questions/swallowing

[Guest guest]

I have the same problem even after decompression i can eat mashed potatoes

but the texture of baked potatoes or cooked potatoes i can't swallow, also

it feels like i constantly have drainage in the back of my throat or I'm

choking over nothing, it's embarassing when your sitting there in a meeting

and start choking on nothing and can't breathe.

Does this happen to anyone else?

Re: more questions

> In a message dated 11/17/2002 8:00:42 PM Eastern Standard Time,

> sjenkins35@... writes:

>

> > In all of the reasearch I've done on chiari I've read where there could

be

> > some

> > problems with swallowing. My daughter has just started to expierence

this.

> > Tonight she couldnt eat her dinner. She just couldnt swallow it. She

said

> > that she felt like it was stopping in her throat and she ended up

gagging.

> > She's also been saying alot lately that she feels sick at her stomach

but

> > never gets sick. Is this what is meant by problems swallowing? Tonight

> > really bothered me. I have never

> > felt so helpless in my life.

>

> I definitely have swallowing troubles. My neurosurgeon discovered that I

had

> cranial nerve compression on about 4 or 5 of my nerves - 2 of them that

> relate to swallowing and digestion. That's been my biggest problem since I

> was about 13. What you are describing to me right now, is what happened to

me

> the first night it happened. 13 years later, I'm just as bad. I have to

eat

> baby food and liquids. Nothing else goes down without getting " caught " or

> coming back up on me. Please bring this up to her doctor as soon as you

can.

> Take good care. Good luck and if you have any questions, feel free to

e-mail

> me.

>

> Caryn

> Boston, Massachusetts

> Dx'd with ACM 7/11/02

> Also, Scolosis (dx'd age 8, Boston Brace until 18 yrs old)

> Probable MS

> http://hometown.aol.com/bostonchiari/ " >Caryn's Chiari Page

>

>

>

[Guest guest]

In a message dated 11/17/02 6:37:45 PM Pacific Standard Time,

ja_mccoy@... writes:

> I have the same problem even after decompression i can eat mashed potatoes

> but the texture of baked potatoes or cooked potatoes i can't swallow, also

> it feels like i constantly have drainage in the back of my throat or I'm

> choking over nothing, it's embarassing when your sitting there in a meeting

> and start choking on nothing and can't breathe.

>

> Does this happen to anyone else?

>

I have trouble with some foods like leafy vegetables and some other

vegetables like cooked carrots. It is actually easier for me to eat raw

carrots. It seems like texture of food does make a lot of difference for me.

I have not had any type of swallow study done yet. I was eating lunch

yesterday at a Mexican restaurant and I almost thought I was going to get

choked up.

Take CARE and God Bless!

from La Verne, CA

Syrinx from c1-t11, Spina Bifida, ACM Type II

Syringo-subarachnoid shunt with C6-C7 partial laminectomy (Nov. 1995)

VP Shunt replacement (Nov. 1996)

Posterior Fossa Decompression with laminectomy C1-C2, etc. (3/6/97)

VP Shunt replacement (June 5, 1998)