Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Hi everyone, Thank you for the information that was E-mailed to me about work being done on Chiari. And yes I've been to ASAP and since I'm new with this condition I have been reading everything I can get my eyes and hands on. I am aware of the research being done at Hopkins. Each and everyone of us and our families that are connected to this site are Greatly aware of CHIARI. Until I was diagnosed I never heard of this nor anyone else in my community, church, or circle of friends. What I was trying to say is the average individual is not aware or being informed. I have no answers as how to reach them, yet I would pray that this condition that robs us of quality life would be made known to all. And thank you for the info on the radio station this is a start. If I have offended anybody with my questions this was not my intent. I know that all work hard in bringing info to us as it is made available. God Bless, Kat Quote Link to comment Share on other sites More sharing options...
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