Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 Lovette, Great work in organizing the Gettysburg rally. Do you have a general idea how long the trip is from NYC? llen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 ellen according to what i got from mapquest it is about 4 hrs from me in north jersey....i am a 1/2 hr to 45 min from nyc..... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 In a message dated 2/11/00 12:32:26 PM Eastern Standard Time, lyme-aidonelist writes: << Any of you out there that believe in prayer, I'd appreciate a couple sent this way. I have to go see the Neurologist today and get the results of my spinal tap. I don't expect him to know anything, and plan on asking for a copy of my records so I can find another doctor. I HATE confrontation! >> , I hope that all went well today. I am sorry that I didn't read this in time to respond earlier, but you and all other's who suffer from Lyme are always in my prayers. Please let us know how things went. Your Lyme Friend, in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2000 Report Share Posted February 11, 2000 In a message dated 2/11/00 12:32:26 PM Eastern Standard Time, lyme-aidonelist writes: << Okay folks, we're about to hit the big time!! Dateline said they will probably show up at our rally and symposium, >> Lovette, You are doing a SUPER job. With every post you print here I get more and more excited. I am looking so forward to meeting my extended Lyme family. Your Lyme Friend, in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2000 Report Share Posted February 12, 2000 michelle....meetin ght e extended family that we have found here is sio exciting....the ones that i met at nyc excited me ....gettysburg will be great....... wife does not want to travel...( non lymie ) but i may bring my little lymie.....either way i am probably staying.......either motel or back of my wagon or lovettes barn...i travel with a sleeping bag.... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Country Music singer, Clint Black has MS too, so I heard. Kitt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 , congrats on giving a painless shot!!! Kitt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Thanks Kitt, He got his second one today and it hurt a little but its because i have to do it in the same leg.He is so thin that he doesn't have any flabby skin on his arms or his stomach and his left leg is much smaller then his right leg due to the club foot. So i have to move it around on his right leg but he wanted to help today and he decided where to put it, so it ended up a little to close to the same location as last time. I feel its important for him to know how to give himself his meds and learn how to set up the Enbrel injection and learn how to give it to himself. I also teach and how to give him is meds so if i am not here to give him his meds then they can do it. They aren't ready to learn how to give jesse the shot yet but i am working on them. I told its one time he can stick his brother and get away with it and he liked that idea. anyway hope you are doing good. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 'oxyplus ' wrote: ==== - - OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other ....' > Take a look to the attachment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 On 21 Sep 2001 10:14:15 -0000, dwarfism wrote: > >There is nothing in the guidelines about being short. if that was the >case, children would be eligible as well. There is, in most cases (i think), a direct link to bone/walking difficulties and OUR cases of " just being short " . To whomever asked, do check it out... I consider myself " Just short " but because of the way my hip, knee, and ankle joints work together I do get to have a handicapped parking sticker. Although I doubt that if just being short were allowed, they STILL wouldn't let children drive. T ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ D. Tryon kella@... ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2001 Report Share Posted September 21, 2001 16 year olds drive... An adult is a person who is 18 and older or 21 and older in some places. And some places they do let under 16 year olds drive...for instance...If a family owns Many acres of land, the kids can drive on thier own property ...even at aged 12. And second of all..I misread her post...my mind was thinking about something else as I was typing it...I know what I meant to say, and I didn't word my thoughts properly But I believe some people can figure out what I was trying to say. a > > There is, in most cases (i think), a direct link to bone/walking > difficulties and OUR cases of " just being short " . To whomever asked, > do check it out... I consider myself " Just short " but because of the > way my hip, knee, and ankle joints work together I do get to have a > handicapped parking sticker. > > Although I doubt that if just being short were allowed, they STILL > wouldn't let children drive. > > T > > > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > D. Tryon > kella@r... > > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2001 Report Share Posted October 11, 2001 Could you please send more info about the meeting in Reno later this month. My doctor really would like to attend. Also is there controversy over using clorox to kill mold. I have been told that quartternary ammonia is the thing to use. Thanks, KKB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Nettie, a question I have heard more than once that surprises me at times is " Did you know before she was born that she would have Down's? " That is one of those I think if I were in the mood I would shoot back with " why? Do you think I should've had her? " Patty --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Count My Blessings I count my blessings when you smile at me... a smile that lights up my whole world. I count my blessings when you hug me...with your little arms so tightly conveying your love. I count my blessing when you cuddle on my lap. And with your low muscle tone you fit so much better than a child of 6 should. I count my blessing when I see the scar on your chest....and know that God has worked another miracle and guided the Drs. hands. I count my blessing when I see you fight with your brother..seeing how much you are teaching him about compassion and yes, blessings. I count my blessing when I remove you from your sisters bed knowing that before the morning comes....You'll be back with her . And seeing her heart expanding to encompass and her arms embrace...not just you, but all who waver from the norm. I count my blessing when conflicts arise at school. Knowing that you have been sent to be a teacher to the teachers...And that we will all learn patience and co-operation from this. I count my blessing when I cry and turn to others for comfort.. For through those tears I have made some wonderous friendships.....From both those with blessings like mine ..And those without. I count my blessing when I am chasing you from activity to activity, knowing that I will never have a reason to complain about too much spare time! I count my blessing when I have to interpret your sign language and jibberish.. Because I know that not only are you trying to communicate, but someone is trying to listen!! I count my blessing when I loose you at the mall and after five frantic minutes find you riding up and down the escalatores calling " Whee!! " to all who will listen.. for through this I know that you have an independence and a spirit of adventure that will help you go far. I count my blessing when I get one of your sweet, sloppy kisses..Knowing that they will never end and that they are sharing with me ALL YOUR LOVE. I count my blessing when you smile and hug a stranger because now THEY can count you as a Blessing, too! I count my blessing....whenever I look at you. You ARE my Blessing!! This was so well put. I think some of these sentiments privately already! Patty mom to (17), (5), (2 3/4) & Olivia, (8 mos: ds) --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/2002 2:00:50 AM Eastern Standard Time, pderdzinski@... writes: << Nettie, a question I have heard more than once that surprises me at times is " Did you know before she was born that she would have Down's? " That is one of those I think if I were in the mood I would shoot back with " why? Do you think I should've had her? " >> That's actually a question I enjoy. I get to say " Yes. I did! " And if they don't say anything I add, " ... and I thank God everyday that I didn't do something stupid about it. He's a wonderful little boy. " I think it's important for people to know that there are plenty of us around who did know and chose to have our children. Kathy, Liam's mom (almost 4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/2002 10:51:39 AM Eastern Standard Time, maureenmills@... writes: << It is the questions and comments about that I have a hard time fielding. Mostly because he is super sentitive them. >> I would say something like ... " The New York Knicks (Chicago Bulls) are looking to draft him. " Let is fine to be big, too. Welcome Maureen and family! Kathy, Liam's mom (almost 4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/2002 1:01:15 AM Central Standard Time, pderdzinski@... writes: > > Nettie, a question I have heard more than once that surprises me at times > is " Did you know before she was born that she would have Down's? " That is > one of those I think if I were in the mood I would shoot back with " why? Do > you think I should've had her? " > > Patty Gee or any of you other oldetimers on the list, whatever happened to the list of snappy comebacks. LOL I know that someone collected them, just can't remember if it was this list of the down-syn list. Sounds like Patty could use the list. hehe Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 In a message dated 3/24/2002 12:56:15 PM Central Standard Time, JTesmer799@... writes: > Gee or any of you other oldetimers on the list, whatever happened to > the list of snappy comebacks. LOL I know that someone collected them, > just > can't remember if it was this list of the down-syn list. Sounds like Patty > could use the list. hehe > > Joy HI Joy LOL I think it was Green who had that list of " come backs " .......youuuuuuu whooooooooo ??? Kathy mom to Sara 10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Hi All! I've heard about for nearly 4 years and have FINALLY jumped on the bandwagon. I have 3 kiddos; Elaine 9, 7, and Conor 3. E & G have " Typically Cantankerous Child syndrome " and Conor only has DS - so far. I was really interested in the question of how to react to peoples questions about their children's size. Conor is (typically) small as are most kiddos with DS but GREGORY is really big -- always has been. He was born at 11.5 lbs! (stop cringing, it was a c-section). It is the questions and comments about that I have a hard time fielding. Mostly because he is super sentitive them. For Conor comments I usually just agree - because he IS small and at this point it doesn't bother him. I sometimes joke about how lucky I am to have clothes that fit him for more than one season or how lucky he is not to have gotten my genes. I know I may eventually be in the same boat with Conor as I am with Greg now if (when) he starts to become sensitive to the comments. I guess I'd rather have people ask questions or make comments (even uneducated ones) than stare in silence. It's an opportunity for growth -- my own in patience and theirs in DS awareness. MM Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Patty, I am really lucky to have adopted my Micah because I get to tell people that I chose him and what a lucky mom i am. Loree Mom to 5 one of whom happens to have DS Re: Digest Number 1015 Nettie, a question I have heard more than once that surprises me at times is " Did you know before she was born that she would have Down's? " That is one of those I think if I were in the mood I would shoot back with " why? Do you think I should've had her? " Patty --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2002 Report Share Posted March 25, 2002 Patty, " Count My Blessing " is one of the most beautiful poems I have ever rread. Are you familiar with " Heaven's Vary Special Child?'' I will send it along if you would like. A friend of mine who has a sister, age 37 with ds passd it on to me after Chase was born. In fact when we told our families at Chase's christening that he has Down Syndrome we read it to all of them.. I will pass it along to my mother in law who after almost four yeasr continues to struggle with the concept of DS. Carolyn Will (6) Chase (3 ds). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 cheryl, that is wonderful news see our children can learn ,and do good. I think if I were you I would go too all the meeting from now on maybe your good-luck lolle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 clonidine side effects http://www.healthwise.org/kbase/topic/detail/drug/tp16708/detail.htm#tp16713> >Message: 4 > Â Date: Thu, 19 Sep 2002 23:42:19 -0000 > Â From: " johahna " <johahna@...> >Subject: Re: RE:RE clonidine > >Hi, We have used clonidine off and on with my 6 year old daughter >since she was 4. Â I understand feeling guilty but you really aren't >doing her any favors by allowing her not to get a good nights sleep. >For whatever reason her body isn't allowing her to get the sleep she >needs. Â Clonidine has been used for quite some time in children and >apparently is very safe. It has saved our sanity and made my daughter >happier and calmer. Â Who can really live on 4 hours of sleep a >night???? You are doing the right thing. Â Joanna > > > >> Hi Margaret >> >> Thanks for replying. Â My daughter's doctor recommended that we >start with 1/2 (0.1mg) tab 1 hour before bed. Â We tried it last >night, and she fought going to bed like she usually does, using every >excuse to stay up, but when I finally got her INTO the bed, as soon >as her head hit the pillow, she was out. Â It was so weird because she >will usually get up a bunch of times and it is hard to keep her lying >down once she is in bed, but not last night! >> Part of me feels guilty giving it to her, because I hate >to " drug, " Â her but if it helps because it lets her get the rest her >body really needs than I guess it is a good thing. >> >> Thanks >> Amy Get more from the Web. Â FREE MSN Explorer download : >http://explorer.msn.com >> >> __________________________________________________________________ The NEW Netscape 7.0 browser is now available. Upgrade now! http://channels.netscape.com/ns/browsers/download.jsp Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Yes, I may just do that. I guess, I didn’t want to at first, because I am such a softy, that is they had said anything negative about her, I know, I would have burst into tears, but now, I am much stronger, and I think I have finally accepted it all. Cheryl S Re: Digest Number 1015 cheryl, that is wonderful news see our children can learn ,and do good. I think if I were you I would go too all the meeting from now on maybe your good-luck lolle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2003 Report Share Posted February 3, 2003 Link does not work In a message dated 2/4/03 4:29:01 AM Eastern Standard Time, writes: > Date: Mon, 3 Feb 2003 07:47:39 EST > From: arnoldgore@... > Subject: Dr.Rath and Spreading message about Alternative Medicine-Health > > > In Sunday's times (2/2/03) Dr.Mathias Rath,MD took a full page ad leading > with an open letter to President Bush warning about the consequences of a > war > starting in Iraq as is being contemplated. A copy of the ad is on his > website > <A HREF= " www.drrath-foundation.org/makehealthnotwar/openletter.html " >www.drrath-fou\ ndation.org/makehealthnotwar/openletter.html</A> He goes on to > explicitly connect the promotion and financing of the wartime agenda and > footing at the door of the pharmaceutical industry. He clearly calls for a > concerted effort to REDIRECT the focus of our " disease care " model with its > > high costs, marginal effectiveness and deblitating side effects into the > use > Quote Link to comment Share on other sites More sharing options...
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