Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Karci, Welcome to our group. You will find lots of info here from our wonderful family. Sincerely, S. new here > Hello. > > Well, I'm new to the EDS arena, although the symptoms and issues have > been very familiar to my family as long as any of us can remember. > Actually found EDS being mentioned on another yahoo group ~ so was > curious and decided to read more... symptoms and issues reak of our > family. > > My kids and other family members have several conditions ~ although > no one knew about their diagnoses and issues until after our kids > were diagnosed by doctors at s Hopkins (no one in Ohio knew how > to help them). The kids have chiari malfomration type I that was > actually caused from their primary condition of craniosysnotosis > (early skull fusion of the infant sutures)... any one here heard > know of someone with EDS and cranio? Anyhow, there's so many people > in our family that their skulls were not treated for the cranio that > the genetics team at Hopkins wanted everyone's blood since they are > in the middle of a big cranio study. They have been insistant that > at least our son (if not more of us) have a syndrome, but nothing no > one has actually labelled yet. I think even some of the issues or > characteristics of EDS we didn't even discuss with them as they've > been our normal. LOL. in fact, some of the images we looked at that > are characteristic of EDS ~ we all laughed and said ~ what > is " abnormal " about this that is characteristic of this syndrome? > hehe. Some of us in the family are much more mild than others. I've > emailed the genetics team about stumbling onto EDS and all the > qualities most of us have in the family ~ and their thoughts... > haven't heard back yet. There is an aritlce on PubMed that says EDS > is linked with cranio, but the article is dated 1974, and is in > French, which I don't speak, lol. Maybe outdated? Just too many > things are starting to link together ... finally. > > After all the reading I'm doing ~ is it a fair guess to make that > generally EDS is diagnosed through some sort of genetic testing ~ > like mostly skin biopsy's? ouch! Austin may have to have another > cranio surgery this summer ~ at which point skin could be taken then, > but was wondering how EDS is officially found and diagnosed?... or is > it mostly based on clinical observation, etc.? > > Well, am still reading up on EDS... seems like its all hitting close > to home and all of our familiy issues are too coincidental ~ this is > just the 1st place I've ever found reading most if not all of them in > the same place. > > Sorry for the lengthiness ~ I guess after all that ~ I'd be most > curious if anyone knows of anyone with EDS and craniosynostosis and > how EDS is typically diagnosed. > > Thank you, > Kaci > Ohio, USA > > > > > > To learn more about EDS, visit our website: http://members.rogers.com/ceda2/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 I can see the reason for not eating the beef. Most likely it is due to the hormone levels in beef which in turn can raise cortisol levels. Yes, cortisol can raise BG. Stress alone raises cortisol levels which in turn raises BG. They are all hormone related and all affect BG. >I can't imagine also going without beef. While cortisol is supposed to help >build vicereal fat, I don't *think* it raises blood glucose, does it? > Quote Link to comment Share on other sites More sharing options...
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