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Both Drs.Milhorat and Rosner understand about chiari malformations and

spinal stenosis. They both know that chiari malformations are most often

formed at birth with the back of the skull being too small and creating bony

anomalies etc. And they both understand that some with chiari have cervical

spinal stenosis. Some stenosis is congenital as is mine and some is caused

by arthritis and other things.

Both Drs. Milhorat and Rosner diagnosed my chiari malformation adn

congenital spinal stenosis in cervical canal.

Love,

Maureen

Maureen T. Baron

mbaron@...

(unknown)

>

> Dr. Rosner asserts that spinal stenosis is part of the problem in

> chiari malformation and Dr. Milhort says the head is too small

>

> Google search = fluoride spinal stenosis

>

> The first website is:

>

> http://www.niams.nih.gov/hi/topics/spinalstenosis/spinal_sten.htm

>

> Nonarthritic Acquired Spinal Stenosis

>

> The following conditions that are not related to arthritis or

> degenerative disease are causes of acquired spinal stenosis:

> (rge comments: the above statement is false as Fluoride IS related to

> arthritis)

>

> Tumors of the spine are abnormal growths of soft tissue that may

> affect the spinal canal directly by inflammation or by growth of

> tissue into the canal. Tissue growth may lead to bone resorption

> (bone loss due to overactivity of certain bone cells) or displacement

> of bone and the eventual collapse of the supporting framework of the

> vertebral column.

>

> Trauma (accidents) may either dislocate the spine and the spinal

> canal or cause burst fractures that produce fragments of bone that

> penetrate the canal.

>

> Although surgery that involves fusion (union) of vertebrae may be

> skillfully performed, tissue swelling after surgery may place

> pressure on the spinal cord.

>

> Paget's disease of bone is a chronic (long-term) disorder that

> typically results in enlarged and deformed bones. Excessive bone

> breakdown and formation cause thick and fragile bone. As a result,

> bone pain, arthritis, noticeable deformities, and fractures can

> occur. The disease can affect any bone of the body, but is often

> found in the spine. The blood supply that feeds healthy nerve tissue

> may be diverted to the area of involved bone. Also, structural

> deformities of the involved vertebrae can cause narrowing of the

> spinal canal, producing a variety of neurological symptoms.

>

> Fluorosis is an excessive level of fluoride in the body. It may

> result from chronic inhalation of industrial dusts or gases

> contaminated with fluorides, prolonged ingestion of water containing

> large amounts of fluorides, or accidental ingestion of fluoride-

> containing insecticides. The condition may lead to calcified spinal

> ligaments or softened bones and to degenerative conditions like

> spinal stenosis.

> =====================================================

>

> http://www.mayfieldclinic.com/PE/PE-STEN.HTM

>

> Stenosis can also be caused by other degenerative conditions such as

> spondylosis or spondylolisthesis; traumatic conditions such as tissue

> swelling after surgery, vertebral fracture, and dislocation; skeletal

> conditions such as rheumatoid arthritis or ankylosing spondylitis; or

> metabolic conditions such as Paget's disease or fluorosis, an

> excessive level of fluoride in the body

> ======================================================

>

> http://210.18.47.195/vmu1.2/dmr/dmrdata/cme/fluorosis/Fluorosis.htm

>

> Pre skeletal stage: The duration of this stage may vary with the

> amount of fluoride daily ingested. Reportedly, it ranges from 10 to

> 30 years or even longer in endemic areas and from 10 to 15 years or

> longer in cases of industrial fluorosis (Singh and Jolly 1970; e

> et al 1970). It is usually free of any signs or symptoms in its early

> stages in endemic regions. The persons concerned may occasionally

> complain of pains in the small joints of the limbs and back, which

> are often mistaken for rheumatoid arthritis or ankylosing

> spondylitis. However, various reports from Europe and America suggest

> that there would be symptoms corresponding to gastrointestinal,

> musculoskeletal, respiratory and visceral systems during this stage

> (Roholm 1937, Waldbott 1956; Petraborg 1974). The majority of these

> visceral symptoms may be due to allergy to fluoride in susceptible

> individuals or the effect of fluoride on the various target organs

> and these are nonspecific.

>

> Myelopathy: Patients suffering from fluorosis usually experience

> difficulty in walking because of the progressive weakness in the

> lower limbs. With the spreading of this weakness to the upper limbs,

> neurological disabilities occur that make the patient bedridden.

>

> Cranial nerve lesions: The skull is not much affected in fluorosis

> and basal cranial nerve foraminae are not usually encroached upon

> except at advanced stages of the disease (Singh et al 1963). Of the

> cranial nerves, the most frequently affected, in a quarter of the

> cases investigated, has been the eighth nerve. In all such cases

> calvarial changes caused by fluorosis are discernible. A progressive

> high frequency perceptive deafness is observed. Moreover, the bone

> conduction is affected more than air conduction. Neverthless, total

> deafness rarely occurs. It is, perhaps, the compression of the nerve

> in the sclerosed and narrowed auditary canal that accounts for the

> deafness in fluorosis (Rao and Siddiqui1962).

>

> Cerebrovascular accidents: Involvement of vertebrobasilar circulation

> caused by the compression of cervical osteophytes may occasionally

> occur(Singh and Jolly 1970). Increased calcifications of major

> vessels and disturbance of lipid metabolism that has been reported in

> fluorosis may bring about cerebrovascular accidents.

>

> The occurance of certain other neurological features like headache,

> tetaniform convulsions, mental depression, electroencephalographic

> disturbances in fluorosis have also been reported (Waldbott 1962).

>

> In fluorosis there is involvement of the rib cage, which causes

> restrictive lung disease. Vital capacity is reduced and FEV1/FVC

> ratio is above 85% and respiratory curve of flow- volume loop is

> flattened when the lungs are abnormally stiff in late stages due to

> restrictive ventilatory defect

> Radiology of fluorosis;

>

> The skull shows minimal changes in the calvarial bones. Sclerosis of

> bone at the sutural lines is one of the minor manifestations.

> However, the bones at the base show marked thickening. The

> petroclinoid ligaments show dense calcification. The occipital

> protuberance is very prominent and exostoses may be occasionally

> noted. Small osteophytes may encroach upon the foramina and produce

> cranial nerve palsies, as for instance, the 8th nerve. A tendency

> toward calcification may be noted in the falx cerebri.

>

> Osteosclerosis is a well-known effect of chronic fluoride

> intoxication, which can also cause osteoporosis and osteomalacia. It

> was Roholm (1937) who describing bone changes in industrial fluorosis

> suggested that in certain cases osteoporosis could occur.

>

> Computed tomography is the best imaging modality for visualization of

> bony pathology and it provides more details than plain skiagrams.

> Besides proper appreciation of the morphological anatomy, density of

> the various parts of the vertebra, it shows the exact location and

> direction of the osteophytes compressing the various neural elements

> and thus helps in proper surgical planning. Spinal canal and root

> canal stenosis are also better appreciated with CT scan

>

> MRI is superior to CT in the evaluation of cervical and upper dorsal

> area because of shoulder girdle artifact on CT image, but in

> demonstration of minute ossification of ligaments and spinal canal

> stenosis, CT is more useful.

>

> Surgical management of skeletal fluorosis with neurological

> manifestations:

> Neurological manifestations of fluorosis are mainly mechanical in

> nature although at advanced stages secondary vascular changes may

> supervene. Surgery obviously can be of little help to the alleviation

> of neurological deficits in view of the extensive prevalence of the

> disease. Surgical decompression is only possible in such of those

> early cases in which the compression is confined to a small segment

> of the vertebral column. But management of even these cases bristles

> with problems because of the marked fixity of the spine and rigidity

> of the thoracic cage. Moreover, the markedly reduced expansion of the

> chest and the vital capacity of the lungs tend to create

> postoperative chest complications. Furthermore, the intubation of the

> trachea during anesthesia becomes problematic because of the rigidity

> of the cervical spine and what is more because of the difficulty

> experienced even in positioning of the spine during surgery. That is

> why laminectomy, which has to be extensive in view of the disease

> being widespread, becomes difficult and burholes have to be used for

> removing laminae (Aggarwal and Singh 1964; Webb-Peploe and

> Bradely1966; Lester 1974; Reddy et al 1974; Naidu et al.1994).

> However, the results of surgical decompression of the spine

> undertaken in a select group of cases were found to be encouraging in

> the case of cervical region, but discouraging in that of dorsal

> region (Reddy et al 1974) which might be attributed to the

> pecularities of the anatomical features of these regions.

> ===================================================

>

> Does fluoride cause brain swelling?

>

> google search = fluoride swelling myelin

>

>

> http://www.sonic.net/kryptox/press/news98.htm

>

> Another presentation at the ISFR conference showed photographs of

> microscopic brain damage of rats which drank water with sodium

> fluoride (NaF). Dr. Chubek and co-workers found that the rats on the

> fluoridated water for 21 days had the highest concentrations of NaF

> and had brain cells that were smaller and mishapen. The myelin, a

> substance which surrounds certain axons and nerve fibers, was

> swollen:

> " A neuropathological study and computerized morphometric analyses

> revealed revealed a marked shrinkage of cerebellar granular and

> Purkinje cells, perivascular myelin swelling, and astroglia reaction,

> especially in the white matter of brains in the NaF-treated animals.

> Neuronal and myelin changes appeared to be more pronounced ... "

>

>

>

> http://groups.yahoo.com/group/doewatch/message/9374

> Metabolic Pathogenesis Hypothesis for

> Chronic Fatigue Syndrome and Fibromyalgia

>

> In discussing chronic fatigue syndrome (CFS) and fibromyalgia (FM),

> as is

> true for other disorders, it is important to distinguish between the

> root

> cause (etiology), the development of the disease (pathogenesis) and

> the

> abnormal function of the body after the disease has become established

> (pathophysiology). The main emphasis of this paper is the

> pathogenesis of

> these disorders, but there is also discussion of some etiologies

> proposed

> by others. .......

>

> ........In the case of neurons,

> the major use of ATP is to drive the sodium-potassium ATPase ion

> pumps.

> When these are short of ATP, they are unable to maintain the

> intracellular

> ion concentrations at the proper values. This leads to a change in the

> osmotic potential inside the cells, because the pumps normally move

> three

> sodium ions out when they bring two potassium ions in. The results

> are a

> decreased concentration of potassium inside the cells and an increased

> concentration of ions in general inside, and the latter causes the

> cells to

> absorb water and swell. This produces the observed edema, and may be

> the

> origin of the need to perform Chiari surgergy in some PWCs. Their

> brains

> may have have swollen too much for the available space allowed by the

> bones

> of the head and neck. Another effect of the lack of ATP for the ion

> pumps

> is that the membrane potential drops, and this reduces the threshold

> for

> firing action potentials (nerve impulses). This may be one of the

> origins

> of the increased sensation of pain in FM. (The other appears to be

> spinal

> in location, and appears to be associated with lowered serotonin.)

>

> http://www.xrefer.com/entry/463479

> Sodium pump

> A mechanism by which sodium ions are transported out of a eukaryotic

> cell across the cell membrane. The process requires energy in the

> form of ATP, being a form of active transport

xrefid=459425>. The most important type is sodium/potassium ATPase,

> which is a membrane protein that exchanges sodium ions (Na+) for

> potassium ions (K+), thus maintaining the differential concentrations

> of each ion across the cell membrane. This differential is vital to

> cellular function, e.g. in establishing the resting potential

> of a neurone.

>

>

>

>

>

> Help section: http://www.yahoogroups.com/help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> To Unsubscribe Yourself:

> chiari-unsubscribe

>

> WACMA Home: Http://www.wacma.com

>

> WACMA Online Group: http://groups.yahoo.com/group/chiari/

>

>

>

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  • 2 weeks later...

Yesterday I saw a list of things you can do to try and relieve syptoms from

Chiari malformations and syrigomielias. I can't find it today and would

appreciate it if someone could send it again or point me in the direction of

where I can find it on my own.

Thanks.

>

>To: chiari

>Subject: (unknown)

>Date: Sun, 22 Sep 2002 21:25:19 -0400

>

>Hello:

>

>I just joined the group and look forward to conversing with you. I was

>diagnosed with a Chiari malformation I around a year ago and also have a

>syrigomielia in my cervical vertebrae. After spending months of trying to

>figure out what was wrong with me I was somewhat relieved with the

>diagnosis. What I have discovered over the past year, however, s that

>there

>does not seem to be much info. out there and that surgery seems to be the

>only option. I am married to a doctor who really thinks that surgery

>should

>be a last resort when the discomfort is so bad that I cannot stand it

>anymore.

>

>I just had a period of six months without any symptoms. Now the symptoms

>are back and they seem to be worse. Has this happened to any of you - long

>periods without any discomfort? What about stress - is it something that

>somehow makes the symptoms worse? I have also been on celebrex for the

>past

>10 months - are any of you taking this type of drug? Is there any other

>drug

>that has been effective for any of you?

>

>Also, what do you all know about permanent damage. The NS I went to, who

>is

>on the list, told me that the longer I wait to have surgery the more

>permanent damage I could have to my spinal cord.

>

>I am sure that I will have more questions that hopefully you all can

>provide

>some insight into.

>

>Thanks for your help.

>

>Estuary Chick

>

>

>_________________________________________________________________

>MSN Photos is the easiest way to share and print your photos:

>http://photos.msn.com/support/worldwide.aspx

>

>

>

>Help section: http://www.yahoogroups.com/help/

>

>NOTE: NCC refers to posts with No Chiari Content

>

>To Unsubscribe Yourself:

>chiari-unsubscribe

>

>WACMA Home: Http://www.wacma.com

>

>WACMA Online Group: http://groups.yahoo.com/group/chiari/

>

>

>

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  • 2 weeks later...

In a message dated 2002.10.02 20:06:20 Eastern Daylight Time,

amystephenson0474@... writes:

> My MRI says that I have straightening of the cervical lordosis is

> this abnormal? Is it common with the ACM? It also says that I have

> a left lateral disk herniation with protrusion of disk material at

> the C3-4 level. Is this a problem and can the ACM cause this? Most

> of my symptoms have been more on right side.

>

Hi Amy,

A straightening of the cervical lordosis means you have lost the natural

curve of your neck. This is abnormal meaning that most people have their

cervical lordosis. But you do see a fair amount of this in people who have

chiari malformations.

As for the disk problems, those are also fairly common in chiarians. I

wouldn't go as far as saying that chiari causes these problems, but I would

say that they are related and are more common in the chiari population than

in the general population. Take care.

Joanna/Atlanta (16 years)

ACM1-17mm with Syrinx from C1-T6 (dissipating...YAY)! And Neurocardiogenic

Syncope (resulting from miscommunications between brainstem and heart).

Medication is making a big difference! I have some residual issues, but I am

doing GREAT! You can view my story at:

http://www.pressenter.com/~chip/joanna.htm

Check out the Wacma Kids group at: http://groups.yahoo.com/group/wacmakids

I can also be reached at Joanna@... or KidsAsk@...

" You have brains in your head. You have feet in your shoes. You can steer

yourself any direction you choose. You're on your own. And you know what you

know. And YOU are the one who'll decide where to go... " -Dr. Seuss

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  • 2 weeks later...

I have really bad balance, also BUT if you close your eyes fall straight back.

My doctor's have me show them or talk about it all the time. Debbie

(unknown)

> Hi, It's been 13 years since my surgery and I still fall backwards if I

CLOSE my eyes? Haven't read anything about it, am I only one? Bouncing

inside was another weird thing

> I had, anyone else?

>

> Debbie

>

>

>

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I honestly think they are fascinated, I guess I'm only one they have ever seen

and they just don't know what to do about it. Debbie

(unknown)

> Hi, It's been 13 years since my surgery and I still fall backwards if I

CLOSE my eyes? Haven't read anything about it, am I only one? Bouncing

inside was another weird thing

> I had, anyone else?

>

> Debbie

>

>

>

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Was trying to E-mail you privately BUT everyone should read your humorous

responds.

Debbie

(unknown)

> Hi, It's been 13 years since my surgery and I still fall backwards if I

CLOSE my eyes? Haven't read anything about it, am I only one? Bouncing

inside was another weird thing

> I had, anyone else?

>

> Debbie

>

>

>

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  • 2 months later...

I'd like to hear the responses to this post also please. I am in the same boat

as Daisy. Thanks for posting responses for all to read!

Kim Licence

ACM I, 7 mm

Mild symptoms, no surgery

Richmond, VA

>Hi all.. I have been lurking and reading a lot, and wanted to ask a

>couple questions. Some of you know, I was diagnosed on Oct. 15 of

>this year. My dad

>just had the surgery (couple days after my diagnosis) Thanks to all

>well wishes and prayers, he is recovering. His headaches have

>returned.. and he still has MANY of the symptoms, probably because he

>had this for so long I guess.. But he isn't passing out anymore,

>which was out main worry, since he was injuring himself all the time.

>Once he woke up in an antpile, once he hit the bbq pit, once he

>nearly fell off the porch.. 4 foot drop.. anyhoo.. you all get the

>picture. We are grateful to God that this has improved.

>

>I've had two MRIs so far. No syrinx. 7-8 mm herniation.

>

>My first questions is this, How severe should your symptoms be before

>you have surgery? My NSG says the earlier I do it, the better. Less

>chance of nerve damage and such. He also says there is a better

>chance of preventing major problems than reversing them.

>

>Second question, Does anyone know what are the statistics of patients

>dying on the table? How risky is this surgery? (I know... ask your

>doctor.. well I wanted a broader spectrum of opinions.. don;t want to

>get people arguing about it.. I just want some " second opinions " ya

>know, differnet points of view.)

>

>My delimma is, Do I risk the surgery for relief of what I consider to

>be bearable symptoms.. yes they are dibilitating, and yes I struggle

>all the time.. but I'd rather be struggling than dead.. I am so

>scared of this surgery. I know there is a risk with every surgery...

>but.. Can you die from NOT having it too?

>

>My thanks to all who read that, and my apologies for being long

>winded..

>

>daisy

>Diagnosed Chiari I Oct. 15

>7-8 mm Herniation

>No surgery Yet

>

>

>Help section: http://www.yahoogroups.com/help/

>

>NOTE: NCC refers to posts with No Chiari Content

>

>To Unsubscribe Yourself:

>chiari-unsubscribe

>

>WACMA Home: Http://www.wacma.com

>

>WACMA Online Group: http://groups.yahoo.com/group/chiari/

>

>

>

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  • 8 months later...

Thanks! We did get an electric bill for $275 this month and we turned up the air

some to try and get the bill down. Maybe that is what did it. I will keep

checking it.

Lesley

(unknown)

Lesley,

Since this is your first month of charting it could be anything.

It could be ovulation or maybe even a temp change in the house or

your weather, or even sickness can affect temps. Just watch to see

if temp jumps back up tomorrow, and if it stays there and get even

higher it could be ovulation.

I hope this helps!

HUGS,

Tracie & Steve (35)

Marina (12)

Dylan (9)

Noah (4)

(3)

TL 6/00

TR 11/15/01

3 m/c's 12/92, 4/02, and 11/02

ectopic 3/5/03

> Hey Ladies. I have a question. I have just started charting this

month and I am on CD 13. My temps have been staying between 97.48

and 97.77. This morning it was only 97.01. Can anyone tell me what

may have caused it to drop like that? I take it at the same time

each morning and have been doing everything I am suppose to as far

as I can tell. This just seemed like a big drop to me and I am

curious.

>

> TIA,

> Lesley

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Lesley 34

> Jim 33

> Amber 13

> 9

> Charlene 8

>

> TL 12/9/93

>

> One day at a time, we CAN do it!

> Sometimes, hour by hour.

> Cyrstle Keller

>

>

> -------------------------------------------------------------------

-------------

>

>

>

>

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Turned up the air to get the bill down???? I knew I was doing something

Wrong lol

(unknown)

>

>

> Lesley,

>

> Since this is your first month of charting it could be anything.

> It could be ovulation or maybe even a temp change in the house or

> your weather, or even sickness can affect temps. Just watch to see

> if temp jumps back up tomorrow, and if it stays there and get even

> higher it could be ovulation.

>

> I hope this helps!

>

> HUGS,

>

> Tracie & Steve (35)

> Marina (12)

> Dylan (9)

> Noah (4)

> (3)

> TL 6/00

> TR 11/15/01

> 3 m/c's 12/92, 4/02, and 11/02

> ectopic 3/5/03

>

>

>

>

>

> > Hey Ladies. I have a question. I have just started charting this

> month and I am on CD 13. My temps have been staying between 97.48

> and 97.77. This morning it was only 97.01. Can anyone tell me what

> may have caused it to drop like that? I take it at the same time

> each morning and have been doing everything I am suppose to as far

> as I can tell. This just seemed like a big drop to me and I am

> curious.

> >

> > TIA,

> > Lesley

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > Lesley 34

> > Jim 33

> > Amber 13

> > 9

> > Charlene 8

> >

> > TL 12/9/93

> >

> > One day at a time, we CAN do it!

> > Sometimes, hour by hour.

> > Cyrstle Keller

> >

> >

> > -------------------------------------------------------------------

> -------------

> >

> >

> >

> >

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LOL turned up the thermostat to get the bill down!! LOL

Lesley

(unknown)

>

>

> Lesley,

>

> Since this is your first month of charting it could be anything.

> It could be ovulation or maybe even a temp change in the house or

> your weather, or even sickness can affect temps. Just watch to see

> if temp jumps back up tomorrow, and if it stays there and get even

> higher it could be ovulation.

>

> I hope this helps!

>

> HUGS,

>

> Tracie & Steve (35)

> Marina (12)

> Dylan (9)

> Noah (4)

> (3)

> TL 6/00

> TR 11/15/01

> 3 m/c's 12/92, 4/02, and 11/02

> ectopic 3/5/03

>

>

>

>

>

> > Hey Ladies. I have a question. I have just started charting this

> month and I am on CD 13. My temps have been staying between 97.48

> and 97.77. This morning it was only 97.01. Can anyone tell me what

> may have caused it to drop like that? I take it at the same time

> each morning and have been doing everything I am suppose to as far

> as I can tell. This just seemed like a big drop to me and I am

> curious.

> >

> > TIA,

> > Lesley

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > Lesley 34

> > Jim 33

> > Amber 13

> > 9

> > Charlene 8

> >

> > TL 12/9/93

> >

> > One day at a time, we CAN do it!

> > Sometimes, hour by hour.

> > Cyrstle Keller

> >

> >

> > -------------------------------------------------------------------

> -------------

> >

> >

> >

> >

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Thats better i was thinking WOOO WHOO Come on air lol Sorry I am in a funky

mood......

(unknown)

> >

> >

> > Lesley,

> >

> > Since this is your first month of charting it could be anything.

> > It could be ovulation or maybe even a temp change in the house or

> > your weather, or even sickness can affect temps. Just watch to see

> > if temp jumps back up tomorrow, and if it stays there and get even

> > higher it could be ovulation.

> >

> > I hope this helps!

> >

> > HUGS,

> >

> > Tracie & Steve (35)

> > Marina (12)

> > Dylan (9)

> > Noah (4)

> > (3)

> > TL 6/00

> > TR 11/15/01

> > 3 m/c's 12/92, 4/02, and 11/02

> > ectopic 3/5/03

> >

> >

> >

> >

> >

> > > Hey Ladies. I have a question. I have just started charting this

> > month and I am on CD 13. My temps have been staying between 97.48

> > and 97.77. This morning it was only 97.01. Can anyone tell me what

> > may have caused it to drop like that? I take it at the same time

> > each morning and have been doing everything I am suppose to as far

> > as I can tell. This just seemed like a big drop to me and I am

> > curious.

> > >

> > > TIA,

> > > Lesley

> > >

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > Lesley 34

> > > Jim 33

> > > Amber 13

> > > 9

> > > Charlene 8

> > >

> > > TL 12/9/93

> > >

> > > One day at a time, we CAN do it!

> > > Sometimes, hour by hour.

> > > Cyrstle Keller

> > >

> > >

> >

> -------------------------------------------------------------------

> > -------------

> > >

> > >

> > >

> > >

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lol i wasnt reading it wrong after all then was i lol

(unknown)

>

>

> Lesley,

>

> Since this is your first month of charting it could be anything.

> It could be ovulation or maybe even a temp change in the house or

> your weather, or even sickness can affect temps. Just watch to see

> if temp jumps back up tomorrow, and if it stays there and get even

> higher it could be ovulation.

>

> I hope this helps!

>

> HUGS,

>

> Tracie & Steve (35)

> Marina (12)

> Dylan (9)

> Noah (4)

> (3)

> TL 6/00

> TR 11/15/01

> 3 m/c's 12/92, 4/02, and 11/02

> ectopic 3/5/03

>

>

>

>

>

> > Hey Ladies. I have a question. I have just started charting this

> month and I am on CD 13. My temps have been staying between 97.48

> and 97.77. This morning it was only 97.01. Can anyone tell me what

> may have caused it to drop like that? I take it at the same time

> each morning and have been doing everything I am suppose to as far

> as I can tell. This just seemed like a big drop to me and I am

> curious.

> >

> > TIA,

> > Lesley

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > Lesley 34

> > Jim 33

> > Amber 13

> > 9

> > Charlene 8

> >

> > TL 12/9/93

> >

> > One day at a time, we CAN do it!

> > Sometimes, hour by hour.

> > Cyrstle Keller

> >

> >

> > -------------------------------------------------------------------

> -------------

> >

> >

> >

> >

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Welcome rebecca

(unknown)

> I've been reading the post and I have been registered on here for

> awhile now, but I have just never posted anything. Not really sure

> why not. But I wanted to say hello to everyone and I hope that all

> goes well for all of us.

>

>

>

>

>

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  • 2 weeks later...

Jogging I heard but lets be real who wants to jog at a time like this.

Please know you are in our prayers and keep us posted.... Thanks

(unknown)

> To all,

> I am still hanging in there. I am still contracting about every 10 -

> 15 minutes. The percocet has helped me to get some rest. My dh will

> post (I hope) when she arrives. I am hoping thatwhen I go to the DR

> tomorrow morning that he will say lets just get this over with. And

> help us out. They said she is not in any distress so as long as she

> looks good they would rather me try to just wait it out without any

> help. Hopefully these contractions will get closer and stronger so I

> can just hold my new baby girl. The nurse told me to go home and

> have sex that it would help. Well it didn't help. Anybody know any

> other suggestions to speed labor along? I also tried going down

> bumpy roads.

>

>

>

>

>

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  • 4 months later...

Hi,

First, check for anemia with all that bleeding you're doing. Slow FE iron and

vitamin C will get your counts back up.

I had my myo last Aug.. I went home the day after. Periods are no longer heavy.

It's been a big change for the better. I had horrendous bleeding and severe

anemia before surgery.

I took Lupron to shrink my fibroid before surgery. It didn't work and I suffered

from terrible side effects. Not everyone does. Many docs here don't use this

drug. They feel it just turns the fibroid to mush. They feel it's unneccessary.

Remember to take calcium with it, if you chose to take it.

Ask your doc how many myos she has done. Ask her if there were any problems like

excessive blood loss or need to convert to hyst. Ask if it's necessary for you

to take this drug before.

Good luck!

Ku

rosha_uk rosha_uk@...> wrote:

Hi

I'm 34 years old would like to have a baby within the next two years,

live in England and I'm new to this group. I was diagnosed with 3

fibroids (2 large 6x8cm and 1 small) about 5 months ago, I'm having

problems with my bladder and bowel, along with the usual horrendous

periods and bloating. Due to the size and situation of these awful

things my doctor has said that she feels a myo will be my best way to

get rid of them. She has said that i will need an injection of

Zoladex once a month prior to surgery to try to shrink them, thus

hopefully eliminating problems with heamoraging etc.

I would love to hear from any of you gals who have had myos how you

felt after, recovery periods, advise, questions to ask my doc when I

next see her etc.

Also anyone who has had the injections of Zoladex or an equivalent

did you experience menopausal symptoms and if so how bad and for how

long?

Kind regards

Sharon

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  • 3 months later...
Guest guest

Hi Shaunah,

I have been seeing my regular GYN for awhile she is the one that wants me to see

someone else. I need to have an idea of some treatments so I will know what's

in store for me. Lately I have been missing work with my problems. I am so

tired of bleeding and the pain. I eat tylenol and advil like it's candy.

Thanks for the info on the heating pads.

What treatment do you suggest? I'm 39 and have two wonderful boys. I think I'm

too old to have any more children. So, a hyst. isn't out. Would you mind

giving me a few ideas?

thanks stacey

myrtle9e6 myrtle9e6@...> wrote:

Hi Stacey,

My first symptom was extreme back pain. I used heating pads nad

heating strips on my back and night in order tone down the pain so I

can get a good night's rest. When you say you are going to a new gyn

to take care of this matter....exactly what do you mean by that?

Well good luck and I hope everything works out well for you.

Shaunah

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Guest guest

Stacey,

Many of the women of this group consider myomectomy or UFE (uterine

fibroid embolization) as an alternative to hysterectomy. UFE does not

have as much proven research behind it preserving fertility, but

since that's not a concern of yours...both options are open to you.

Interventional Radiologists are the one's that perform UFE. If you

try to look back on past posts you'll see that many of the woman have

had success w/those procedures. You can email them and I'm sure

they'd be able to assist u better than myself.

I'm 26 and having a myomectomy on June 1st. I have no children but I

would like to whenever I find someone to marry and do all that fun

stuff with.

Glad to help!

Shaunah :)

> Hi Stacey,

> My first symptom was extreme back pain. I used heating pads nad

> heating strips on my back and night in order tone down the pain so

I

> can get a good night's rest. When you say you are going to a new

gyn

> to take care of this matter....exactly what do you mean by that?

> Well good luck and I hope everything works out well for you.

>

> Shaunah

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  • 8 months later...

Thank you, .. I know there were a few people from Southern NJ that were trying the treatments.. I have not heard recently how they are faring.. hopefully, the are the success stories.

If this treatment is one that your Dr. and you are comfortbable with, it certainly sounds like it would be worth a try.. I am at a stage with my RSD that I consider "tolerable" and will not try any different treatments right now, but the minute I feel I need more aggressive treatment I will be discussing this with my Dr!

Hugs,

Jo

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Thanks for the information. I copied/pasted it and sent it to a lady that had been in our local support group. She was interested in these treatments. This will help her I'm sure, and I appreciated it for myself.

N.__________________________________________________

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  • 4 months later...
Guest guest

You do have to drink alot of water with the pills but that's MUCH better than

the white stuff. ~Dianna

Donna Wilkinson wilkinsondjm@...> wrote:Ditto, I just had someone tell me

that rather than the gallon of liquid I had to drink, they had 3 drinks on Thurs

and 3 drinks on Friday followed by the colonoscopy Fri afternoon. Was also told

that another person had pills only, like Dianna. You don't even know what is

going on - please be safe rather than sorry.....donna

Dianna Brendle jasonsmom285@...> wrote:I took the pills to clean out for

the colonoscopy, it was great and easy. And yes, the procedure itself is a

breeze. A piece of cake. ~~Dianna

Hil hilsshop@...> wrote:I did not find a colonoscopy painful at

all. Actually the cleaning out stuff did not taste that bad just the idea of it

I think. You are given a IV and with me it just relaxes me. Some people go to

sleep with it and don't even know they had a colonoscopy. I watch mine on the

monitor and talk to the Dr while he is doing it:)

With the CT scan you also need to drink some stuff which is not a laxative and

have a IV with the dye.

A Pet scan you are given radioactive stuff through a IV and have to sit for it

to go through your system then spend a hour getting scanned inside a tube. The

CT is more expensive then the colonoscopy and the PET Scan is extremely

expensive and I doubt any insurance company would pay for it without a good

reason. They probably would not pay for a CT without a good reason. I personally

feel the best way to detect colon cancer or to prevent it by removing any polyps

found is with the colonoscopy. They have a better view of your colon then

anything else. With your CT or PET scan they would not be able to remove any

polyps which could be cancer or precancer. If they find any and remove it you

won't feel a thing or maybe a slight pinch. The thought of having it done is

worse then the actual procedure. Please get one done ASAP. I really did not have

any symptoms except occasional constipation I was not even mentioning to my Dr.

Thankfully one day I casually mentioned it and a colonosopy was

ordered. It saved my life as it caught it at stage 2. I have been scared silly

of all these tests but now had them all I worried for nothing.

Hil

(unknown)

A question please.

Why does one have a colonoscopy and have to drink the awful solution. Would

it be appropriate to have a PET and/or CT scan which is a lot less painful.

However, I do want to do what is best to determine if there is a cancer. Also,

would blood work show the cancer.

Thank you - Bonnie

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Guest guest

MY LORD...........WHAT KIND OF CT SCAN IS THAT? NEVER HEARD OF ALL THAT

HAPPENING. YOU MUST HAVE BEEN MISERABLE, JOLENE.

Jolene Ehret jehret@...> wrote:My CT scan was most miserable experience

in my life. Way more invasive

and humiliating than my colonoscopy...

I had to clean out ahead of time, drink this crap, and then he had to

give me an enema and hold it.. Once I got off the table

literally shit all over the floor and myself, and then had to leave that

room, wrapped in a shitty sheet go across the hall

to the bathroom to clean up and get dressed... Colonoscopy had to clean

out, and and drink one little bottle of stuff to make me clean out...

Was not near as troublesome. LOL... Thankfully my next CT scan is for my

back so don't have to go through any prep.

Jolene

Retirement2004@... wrote:

> A question please.

>

> Why does one have a colonoscopy and have to drink the awful solution.

> Would it be appropriate to have a PET and/or CT scan which is a lot

> less painful. However, I do want to do what is best to determine if

> there is a cancer. Also, would blood work show the cancer.

>

> Thank you - Bonnie

>

>

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Guest guest

I got some pills like dulcolax or something similar, and also something

for gas. Would you believe when I took mine, thought I took the

dulcolax but

actually took the gas pills, and drank that little bottle of soda

something and cleaned out just fine. I mentioned it to them and they

said don't worry about it, your as clean as you needed to be. Why some

still make people drink that gallon of stuff is beyond me when it so

unnecessary.

Jolene

Nonnie wrote:

> what kind of pills was it? You didn't have to drink a disgusting liquid?

>

> Nonnie

>

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