Re: Support??

[Guest guest]

elizabeth...

I " m sorry hon.. but I don't normally post

here.... I just read.. as I'm sure many people

do.. and with xmas happening.. well a lot of

people have been busy... I am sorry but I don't

remember your original post.. my yahoo has been a

bit screwy.. and i am not getting all the posts..

but welcome to the group..

Serena

__________________________________________________

[Guest guest]

I'm so sorry - I haven't had time to read the list over the last

few days, but is it too late for me to welcome you now? I'm sure that your

introduction is somewhere in the 2000+ emails that have collected in my

inbox in the last few days :-( This group usually is pretty good about

support, but I'm sure with the holidays and everything, lots of people are

away from their computers. Did I read correctly that you are from TX? I'm

from Tennessee, so at least we're kinda from the same area of the

country . You sound like you have your share of stuff going on with you

- what type of treatments are you getting? I've got fibro, degenerative

disc disease, a spinal injury, osteoarthritis, possible CFS (the doctor's

reading up on it so she can make a dx ), several ruptured disks in both

my neck and lower back - I'm sure I'm forgetting something, but that should

give you an idea . I go to a wonderful pain specialist who sent me to

physical therapy for 3 months (I just finished my last appt yesterday),

gives me VERY effective epidurals whenever I need them (I've had two in the

last month and am scheduled for another next week), and prescribes my all

pain medications, anti-spasmodics, osteoarthritis meds, anti-depressants,

etc. After being on no medications and completely bedridden for almost 7

years, 4 months of treatment at the pain clinic has given me my life back.

I'm almost completely mobile again, can do housework, cook, drive, and am

actually considering asking my doctor for a work release in a few months

when my meds are all titrated to see if I can go back to work after 12

years of being unable to work because of my fibro!! I feel very lucky to

have done this well in treatment, but I was actually lucky in finding a

good doctor. He isn't afraid to treat my pain very aggressively and give

me the medication that I need to treat my pain (and he LISTENS to me when I

tell him what hurts and how much!). I hope that you do find the support

that you need here and soon find the same kind of relief that I have

found!! A belated, but very heartfelt welcome to you !!

-

At 08:33 PM 12/29/01 EST, you wrote:

>Hello everyone,

>

>I joined this group because I thought it was supposed to be a support group

>for those of us with FM/CFS. I sent an introduction some time ago. Then, I

>sent a post a couple of days ago. Not one single person responded. All

>these people writing about living in Texas, and no one even responded to the

>fact that I just moved here. I mentioned having fibro, CFS, diabetes, and

>peripheral neuropathy and no one said anything to me about that.

>

>I guess it's just a support group for people who already know each other.

As

>if those of us with fibro, etc. didn't feel disconnected and isolated enough

>already.

>

>