Re: bad genes

[Guest guest]

Betty - my thoughts and my prayers are with you - you certainly have

a heavy load to carry right now.

Do not blame yourself - it is not your fault. You know you did not

choose to give your son VEDS - matter of fact - you didn't give it to

him - it was a happenstance of nature - a really sucky one! It is

not your fault!

I have 4 children with EDS - and although I'm sad they all have it, I

am glad I didn't choose to not have them. Think about the gifts you

did give your son - I'm sure they are many and marvelous. Think of

all the good memories! Cherish those. Three of my children died

before I got to hold them in my arms - cherish the memories of your

son!

You reference God in your post so I'll assume you are a Christian -

God can provide a resting place for you if you turn to Him - even if

it's hard. I understand about your hopes and dreams being ripped

apart - look for the hopes and dreams God wants for you. My father

died when I was 9 - life goes on and hopes and dreams can and should

exist again.

I know how much it hurts - Sunday should have been my first child's

thirteenth birthday - I cried on Sunday. The grief will not ever go

away - but hopes and dreams should exist. Life is for the living and

you are alive and that means God has plans for you.

I hope and pray that God will carry you through your grief and

through the next several weeks as you fight to keep your health and

keep the memory of your son alive.

I will be praying for you!

> Hi all

> Well yesterday was the second worst day of my life (the first being

the death of our son 10 months ago) The results have finally come

back from Seattle and definitely my son was positive for VEDS as I

am, so of course that means that I had passed this terrible gene to

him and it was I who have torn this family apart and it was I who

ripped apart all our hope & dreams. When I heard this news I wanted

to die along with my boy How can I live with myself knowing this came

from me Whyu oh why did this happen??? I started to rebuild my faith

after Danny died and now it shot to hell again I pray to God fro help

and all I get is more grief and now something shows up on my CT of my

brain which I then have to have an MRI which I'll find the results

oin Thursday rightnow I hope there is something. How much more can I

take??

> Betty

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