Betty-

[Guest guest]

Your very welcome for the hugs Betty- and whenever you need one just

holler------- I am a huggyyyyyyyy person.......... LOL.

Hmmmmmmmmm , Seems the Genetecist would have preferred a specialist do the

testing not a family dr when it seems most family drs are so unaware of

it........... Just my opinion , maybe Im wrong but thats what I would have

thought mercyyyyyy..... My specialist did mine while I was in surgery..........

Am glad your son is coping well with this whole idea of being tested and

such........... I know what you mean about the kids being gone on band trips

and the house being too quiet.......... its a very strange feeling indeed.

Kenny had calls left and right............ the phone rang constant for

him.......... after he passed , no more calls............ I almost felt like the

phone was no longer a necessity in the house. Guess I didnt realize how many

calls were made here to Kenny until it got so quiet after.

Yes, Kenny played the sax......... and I still have it and always

will........... even though it was on payments and the band company knew Kenny

passed, they still charged the monthly payments or wanted the sax back- how rude

I thought............. In my case, I would have felt too bad to insist on the

payments and just let the parents keep the horn but they were all money money

money............ Oh well- cant go backwards- gotta go forwards........ I have

the horn and I'm very glad I do------ He played it so lovely............

Let us know how the trip goes..........

More Hugs-----------

TJ

Tj

Thanks for the hugs....as far as our son being tested ---the genetecist says

to go through the family doc and when we do that the family doc isn't sure

what to get re: type of tube, what test urrrrrrrrgh - what is so damn

difficult about this syndrome that everyone seems to never kbow whats going

on. My son is fine with being tested and of course he knows about me as

well --he took it very well - he's so logical and down to earth. He's been

away for 4 days on a school band trip and man is it ever quiet here. Thank

God I have been working. plays the clarinet and the tenor sax. Was it

Kenny that played sax?? loves it. Anyway better run as dinner is

ready. Please take care of yourself and yes I will be careful on the trip

Hope to have a reasonably good time ----you know what I mean.

Talk to you later.

Hugs

Betty

Re: Get this guys---------- unbelieveable

> Thanks Betty- hugssssss

>

> As for the drinking 2-4 glasses of water before the abdominal CT- that

one's beyond me- I had this test ran recently - well within 1 yr and they

didn't have the water regulation then....... but I was already in hospital

so not sure if that makes a big diff or not.....

>

> I think its great you are requesting all these tests- better to be safe

and knowledgeable than to be sorry...... How are things coming along with

getting your son tested..... You have mentioned that he will be tested-----

how and when will this all begin......... Am praying he doesnt have it as

well.......

>

> And thanks for saying Im not a fool but when you hurt that bad ---- I mean

, I have to hurt realllllly bad to even mention the possibility of going to

the hospital----- I hate it there------ not that it isn't a nice place- I

just prefer home and my own stuff....... and being around my own

family......... but it takes a heck of a lot of misery to get me

there........ ( finding morning dose still there was really a shocker- they

still aren't kicked in as should be- am so off track----- but hopefully it

won't take too long to get back on track as it was only a day that seemed

like a month) ---- am hoping with enough rest and catching back up today and

throwing in a few extra this or that- I'll be on the normal pain range again

instead of the full blown knock ya in the dirt pain range ..........

>