SV: OT DOC Band

[Guest guest]

Hello

How flat of a back-head are we talking about here. Our son is also pretty

flat in the back of his head because he has been lying to much on his back.

I thought this was a normal condition when using the DBB. We have startet

now trying to make our son to lie on his side and stomach more often.

Hopefully this will help on the shape of the head.

Is this a condition that is normal for these kids. Is this something we

should check out. I mean my head is not perfectly round eather but it

doesn't seem that I have got to much problems due to my head :-)

Morten

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Fra:

Sendt: 20. august 2004 21:06

Til: nosurgery4clubfoot

Emne: Re: OT DOC Band

Well, the neurosurgeon said that he thought was a healthy little

boy and that his head was mild to moderate. He said we could get the band

if we wanted to, but he would recommend repositioning. He even said if it

were his child, he would do the repositioning. He did point out that if we

went to 10 different neurosurgeons, 5 would say get it and 5 would say he

didn't need it. So, it's basically up to us. Since the doc said it was

mild to moderate and he would treat it with repositioning, even if it were

his own child, that's what we're going to do....at least at this point.

The doc said it's a slow process since the growth of the brain is the

driving force, but his head should round out and anything that might left

will be hidden by his hair. This all should happen over the next year or

so. I've noticed some improvement over the last 2 weeks or so since he's

not spent as much time on his back and has been out of swings and bouncy

chairs, so I'm sure he will continue to improve. The doc even said that

they often times recommend a second band after the first one, and that even

though he's friends with the woman who does the band, she has a vested

interest in this and recommends that everyone she evaluates gets the band.

If it's not necessary, we aren't going to put him through having the casting

done on his head and then wearing the band 23 hours a day for 3 months. So,

basically, the physical therapist that evaluated him first made his

condition sound a lot worse than it really is.

and

BCF 03/25/2004

DBB 23/7

OT DOC Band

> Thank you to everyone who replied to my question about the DOC band. I

> talked to 's pediatrician today and she even wants us to get a

> second opinion with a neurosurgeon, so we are in the process of getting an

> appointment at the Cleveland Clinic for him. She wants to make sure that

he

> really needs it, and if so, is this a good time to do it, if there's

> anything else we can do that doesn't involve the band, etc. When I

called,

> the first available appointment was in October, but the pediatrician is

> supposed to call because she should be able to get us in a lot sooner than

> that.

>

> I'll let you all know what we find out. I'm hoping that they'll try

> something else, like waiting to see if it does improve on its own. I

really

> don't want to have him put in this band, but I will if its the best thing

> for him. The woman at the clinic said his face is asymmetrical from it

and

> that can cause sinus, jaw, and teeth problems, which scares me. I'm kind

of

> hoping that she is just trying to scare me into getting it done, but we'll

> see what the neurosurgeon says.

>

> and

> BCF 03/25/2004

> DBB 23/7

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