Absorbed in my own problems.... sorry

[Guest guest]

Sorry everyone for " ignoring " you all. I've been reading things here and there,

but not responding.

I'm so self absorbed lately.

Like, I can't get past our own problems to even send off a kind word to anyone

else.

I'm sorry for not being a good correspondent. I know you are all struggling and

hurting.

I'm not a very good friend right now.

But, I do think of you all, and hope for good things to happen.

had an appt yesterday, and had lots of blood drawn. She has an appt to

see an oncologist next week.

It's all pretty upsetting. I'm trying not to think about " what if's " . I'm

probably the biggest worrier on earth. Got it from my grandma, I'm told.

We still don't know what's up with her ribs. They would do a rib scan if we

wanted, but she's had so many xrays, and the treatment wouldn't be any different

than what we are doing now.

So, her GP started with a bunch of blood tests, and says she will probably do

another xray in a month. And, the appt with the oncologist.

All her UTI's (with no explanation), migraines, catching every bug out there,

tired all the time, loosing weight even though she eats like a horse, bruising,

unexplained things left and right, her lung problem, low blood sugar even though

she eats like a horse, the list goes on and on. I know this could all be

explained by EDS, but Dr Byers didn't include her in his dx. She does have

joint problems - we think she is subluxing her shoulders when she sleeps. But,

she's not really hypermobile like me, and .

She doesn't seem worried at all, which is good. At least, she's not telling me

she's scared. She's not the kind of girl to not tell me things, so I think

she's ok, and not just protecting me.

Oh, the things that go through your head when you don't know what's around the

corner! It's torture!

We'll just take it as it comes, I guess. I just hope that sh'es ok to go to her

National Youth Forum on Medicine in Atlanta this July. She's really excited for

that. She was chosen as one of 360 teens in the world to go. It's an huge

honor. She gets to spend 10 days there at Emory University shadowing doctors

and surgeons (gets to watch surgeries), talking with patients, and going to

lectures about a career in the medical field. They even get a " test case " where

they try to figure out a course of treatment for a patient.

Of course, they don't know exacts, but it has to do with prioritizing and

organization, and leadership skills.

They get a day at the local amusement park, and have a formal dinner/dance at

the end.

She has to get all new business clothes (suits), and a gown for the dinner.

God, I just hope she's ok, and she can go.

Not knowing is the worst feeling.