To Robyn: Re: Update on me and question.

[Guest guest]

-Hey girls-- I have tummy problems too---prilosec was expensive so my

doc gives me prevacid (I take twice a day) it is prescription, so all

I pay is a copay. You might ask about it, as it has totally helped

me!!! Good luck

-- In LUPIES , barb holkins wrote:

>

> Robyn, I have been seeing my Rhuemy for over a year and it has only

been the last few weeks that I seem to be getting relief. I too am

on Plaquenil and when she prescribed that she told me to take

Prilosec every morning becase it was going to be hard on my

stomache. If I run out of Prilosec and don't take it for a couple of

days I get the world's greatest heartburn. (This was new to me as I

have always had my dad's cast iron stomache.) I usually get at

supply of the Prilosec from either my Rhuemy or my family doctor.

They had a lot of samples and it saves me a ton of money as the

Prilosec is expensive. You might ask for some samples and give it a

try and see if it helps with your stomach problems.

>

> barb

>

>

>

> jrtrobyn wrote: Hi, this is Robyn, Have you

experienced any side effects from the

> Avinza? I posted a few times that I had bad, bad intestinal cramps,

> nausea, etc from the Plaquenil. I hear it has helped others, but I

> don't know if I can trade the pain for the stomach problems. I was

> only diagnosed with Lupus a few months ago and I have not had a

pain

> free day yet. I am grateful for the days with less pain. I know

that

> the more I exert myself, the more pain I have. Fatigue turns to

pain

> for me. Please tell me more about Avinza. Thanks so much, take

care,

> Robyn

>

>

>

> > In a message dated 5/14/2004 1:29:28 PM US Mountain Standard

Time,

> > katebird01@y... writes:

> >

> >

> > , I don't know about anyone else, but I never had pain

> free days for

> > a few years and then a couple of months ago they started me on a

> new med

> > called Avinza. That keeps me pain free, not just the fibro and

> lupus, but also the

> > migraines I used to get. that's about it for me!

> > a

> >

> > > I don't post much but I read all the messages. I've been to my

> new rheumy

> > > a couple of times now and have been having tests, all results

> are not in yet.

> > > However, he told me on Monday that in addition to the lupus I

> have

> > > fibromyalgia. I am just beginning to learn about that

diagnosis

> as it was not

> > > something I expected or knew anything about. Heck, after more

> than four years, I'm

> > > still learning about lupus.

> > >

> > > I see that y'all sometimes wish each other more pain free days

> and my

> > > question is do you really have pain free days? I don't know

> what that feels like,

> > > I can't remember pain free days. I have days of more pain and

> less pain but

> > > can't imagine no pain. I sure hope to get some soon.

> > >

> > > I know that many of you have gone through very trying

> > >

> > >

>

>

>

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