Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi, I have not checked the alt.support.chronic-pain newsgroup for ages. I went to groups.google.com to have a look, and found this document there, which is their FAQ. It has a lot of useful links for resources, so I decided to paste it here, since some of you might be interested. If you are going to use the newsgroup, remember that it is a totally open forum, not moderated like a mailing list. If you are going to post there, use another e-mail address (set up one just for that purpose, and just delete all mail there) or use a spam blocker in your e-mail address, or you will get a lot of spam e-mail, which is so annoying!!! Aase Marit (who tries to type with Peanut nudging my arm while I am typing, she wants mom to cuddle her!!! Guess I will have to do that... Web Images Groups News FroogleNew! more » Search Advanced Groups Search Preferences Groups Search result 1 for chronic pain Back and Neck Pain * The " one " source for all back and neck total health care. * www.spinecenteratlanta.com Sponsored Links Original Golden Emu Oil * & amazing new Blue Active Gel Rub for muscles, joints & skin * www.pion-tc.co.uk/emuoil/ Solutions to chronic pain * Tried everything else? This heals. Hands-off personal therapy online. * www.therapysolutions.com Search Result 1From: Katharine (kathnews2@nospam,ta!optusnet.com.au) Subject: !ALT.SUPPORT.CHRONIC-PAIN FAQ 1/2 View: Complete Thread (2 articles) Original FormatNewsgroups: alt.support.chronic-pain Date: 2004-04-04 03:17:19 PST ALT.SUPPORT.CHRONIC-PAIN (ASC-P) NEWSGROUP FAQ PART 1/2 ____________ This FAQ is not official, it is my own opinion and is a guide only. Dr Work's information reproduced in part 2 with permission. FAQ available online at: http://www.members.optusnet.com.au/kathinternet/ASCP/index.htm Feel free to offer suggestions and additions either via this newsgroup or email. Remove spamblock from email to contact me. - Katharine ____________ UPDATES 04/04/04 (cool!) added some URLs and arranged them into categories. SECTIONS PART 1 1. General newsgroup information 2. ASC-P newsgroup information 3. Other newsgroups of interest 4. Useful websites PART 2 5. Medical issues frequently raised 6. Opiods and addiction/dependence/tolerance 7. Laxative Use in Conjunction with Chronic Opiates ____________ 1. GENERAL NEWSGROUP INFORMATION AND 'NETIQUETTE' This is a newsgroup. It is not a bulletin board, mailing list, emails or " the Internet " . It is not moderated - no one individual or group of people is in control. It's up to you whether you give out any personal information. Some people choose to remain completely anonymous, some people are open about who they are and where they're from. It's your choice, although it's generally not recommended to give out your personal details. As with any newsgroup, it's completely up to you what threads you read, what threads you ignore, and what threads you respond to. As with any newsgroup (and with life), if you are rude you will probably find people responding in kind. As with any newsgroup, often arguments and 'flame wars' erupt. As with any newsgroup, often discussions go 'off topic'. However, as this is a *support* newsgroup, it's not frowned on in the same way as with many other newsgroups. Sometimes people will disagree with what you say. This doesn't mean they dislike you, they just disagree with what you are saying, or perhaps how you are saying it. People who can't distinguish between these often end up attacking the person instead of dealing with what they've said (ad hominem attacks). As with all non-binary newsgroups, binary files (ie attachments), HTML posts and sales pitches (SPAM) are not allowed. Further to this, posts in all caps are not recommended as they are near impossible to read, are considered SHOUTING and poor form on the Internet. Crossposting to more than a couple of newsgroups is considered poor netiquette. Most newsgroups discourage top posting (where the reply appears above the post it's replying to), however, as many people in this newsgroup have physical limitations whereby a lot of scrolling can cause difficulties and/or pain, it is acceptable in this newsgroup. But for those who are able, it is strongly suggested that snipping portions of the post that aren't relevant to your reply is done, particularly when there is a long post to which you are replying with only a short amount of text, such as " I agree " ! Archives of newsgroups are kept at http://www.google.com or more specifically http://tinyurl.com/24q7a More information on posting DOs and DON'Ts, can be found at http://www.chronicpainfoundation.org/home/index.php?module=ascp ____________ 2. ASC-P NEWSGROUP INFORMATION If you want medical advice/suggestions, it's pretty hard to do so without giving at least some details about your medical condition. But you're certainly free to 'lurk' and read other people's posts, which may be helpful to you. It is possible to find some wonderful support, advice, friendship and a sense of community here. Many have found their participation in this newsgroup to be a life-changing experience when they find that there are people going through what they are going through, and are offered suggestions for how to deal with their condition that may not have considered before. Most people on this newsgroup aren't medical specialists, but have gained a lot of knowledge through their search for understanding about their own condition. Information here is given on good faith, but not to be taken as official medical advice, so *always* talk to your doctor about changing any aspect of your treatment. Medication such as opiods are often discussed in this newsgroup due to use in treating chronic pain. Inappropriate use of these or any other drugs is not condoned, and this newsgroup does not exist as a resource for those who wish to seek information on the illegal use of drugs, prescription or otherwise. ____________ 3. OTHER NEWSGROUPS OF INTEREST alt.support.chronic.pain ('dot' rather than 'dash'. Not on all newsservers) alt.support.headaches.migraine alt.support.arthritis alt.support.cancer alt.med.fibromyalgia alt.support.endometriosis alt.med.pain.rsd alt.support.lupus ____________ 4. USEFUL WEBSITES New user information, netiquette and how newsgroups operate http://www.faqs.org/faqs/by-newsgroup/news/news.announce.newusers.html http://www.faqs.org/faqs/usenet/writing-style/part1/ http://www.faqs.org/rfcs/rfc1855.html http://www.albion.com/netiquette/ http://kb.indiana.edu/menu/usenet.html http://www.landfield.com/usenet/ http://sunsite.unc.edu/usenet-i/ Spam blocking (munging) your email address for posting to public forums http://members.aol.com/emailfaq/mungfaq.html Sites specific to this newsgroup http://www.chronicpainfoundation.org/ascp.html http://alt.support.chronic-pain.ws/ Lists of links to pain related web sites http://painlinks.org http://www2.rpa.net/~lrandall/pmain.html http://www.cannylink.com/diseasechronicpain.htm Links, articles and resources http://vachss.com/help_text/pain.html http://www.pain.com/ http://www.partnersagainstpain.com/ Definitions of addiction, dependence and tolerance http://www.ampainsoc.org/advocacy/opioids2.htm Back Pain and Neck Pain for Patients-Spine Universe http://www.spineuniverse.com/ Pain and Palliative Care Reporter http://www.painlaw.org/index.html Intractable pain can have serious physiological consequences http://www.intractablepaindisease.com Excellent pain management page http://www.med.umich.edu/pain/apainmgt.htm pain treatment standards http://www.ipcaz.org./pages/new.html Pain and the Law (US) http://www.painandthelaw.org/ But You Look Good! http://www.invisibledisabilities.com/ P.A.I.N. - Pain-aide Information Network http://www.geocities.com/HotSprings/Villa/6413/helps.html Migraine FAQ http://www.meldrum.demon.co.uk/migraine/ Cancer pain management http://www.painresearch.utah.edu/cancerpain/ Arachnoiditis http://www.btinternet.com/~thinkback/arach.htm Neurology Information http://www.neuroland.com/ http://neuro-www.mgh.harvard.edu/ Resources for peripheral neuropathy http://www.neuropathy.org Education, resources and support for those with neuropathy http://www.canadianneuropathyassociation.org pain scales http://www.acs.ohio-state.edu/units/osuhosp/patedu/Materials/PDFDocs/procedure/p\ ain-log.pdf http://www2.rpa.net/~lrandall/painscale.html Pain organisations Chronic Pain Foundation http://www.chronicpainfoundation.org International Association for the Study of Pain http://www.iasp-pain.org/ Society for Ongoing Relief of Chronic Excruciating Pain http://www.sorcep.com/ The American Pain Foundation http://painaid.painfoundation.org/ American Academy of Pain Management http://www.aapainmanage.org/ The American Academy of Pain Medicine http://www.painmed.org/ American Pain Society http://www.ampainsoc.org/ American Pain Foundation http://painfoundation.org/ American Chronic Pain Association http://www.theacpa.org/ North American Chronic Pain Society http://www.nacps.us/ (USA) The National Foundation for the Treatment of Pain http://www.paincare.org/index.html (USA) National Pain Education Council http://www.npecweb.org/ Doctors for Pain http://www.doctorsforpain.com/patient/aboutpain.html Mayday Pain & Society Fellowship http://www.painandhealth.org/ Pain-aide information Network http://www.geocities.com/HotSprings/Villa/6413/ Medication Definitions of addiction, dependence and tolerance http://www.ampainsoc.org/advocacy/opioids2.htm Drugs Used to Treat Pain: Opioids - Narcotics (Overview) http://www.spineuniverse.com/displayarticle.php/article1345.html A guide to appropriate use of opiods http://www.jenniferschneider.com/articles/opiods.html World Health Organisation (WHO) Drugs documents http://www.who.int/medicines/library/docseng_from_a_to_z.shtml WHO: Achieving balance in national opioids control policy -- Guidelines for assessment http://www.who.int/medicines/library/qsm/who-edm-qsm-2000-4/who-edm-qsm-2000-4.s\ html Opioid conversion http://www.med.umich.edu/pain/apainmgt.htm#table http://adultpain.nursing.uiowa.edu/MedGen/EquAntt.htm http://www.globalrph.com/narcotic.htm http://www.globalrph.com/narcoticonv.htm The internet drug index http://www.rxlist.com/ Drug interactions guide http://www.drugs.com/data/channel/md/drkoop.cfm?int=0 Prescription drug patient assistance programs (USA only) http://www.needymeds.com/ http://www.phrma.org/ http://www.aegis.com/factshts/network/access/pa.html http://knox.nami.org/helpline/freemed.htm http://www.jackstem.com/free_medications.htm http://www.themedicineprogram.com/ http://www.thesojourners.org/FreeRxMedicine.htm http://users.erols.com/jones3745/free1b.htm http://www.medicare.gov/Prescription/Home.asp http://www.geocities.com/HotSprings/Spa/7379/freemeds.html Post a follow-up to this message ------------------------------------------------------------------------ Google Home - Advertising Products - Business Solutions - About Google ©2004 Google Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2004 Report Share Posted April 12, 2004 Hi, I have not checked the alt.support.chronic-pain newsgroup for ages. I went to groups.google.com to have a look, and found this document there, which is their FAQ. It has a lot of useful links for resources, so I decided to paste it here, since some of you might be interested. If you are going to use the newsgroup, remember that it is a totally open forum, not moderated like a mailing list. If you are going to post there, use another e-mail address (set up one just for that purpose, and just delete all mail there) or use a spam blocker in your e-mail address, or you will get a lot of spam e-mail, which is so annoying!!! Aase Marit (who tries to type with Peanut nudging my arm while I am typing, she wants mom to cuddle her!!! Guess I will have to do that... Web Images Groups News FroogleNew! more » Search Advanced Groups Search Preferences Groups Search result 1 for chronic pain Back and Neck Pain * The " one " source for all back and neck total health care. * www.spinecenteratlanta.com Sponsored Links Original Golden Emu Oil * & amazing new Blue Active Gel Rub for muscles, joints & skin * www.pion-tc.co.uk/emuoil/ Solutions to chronic pain * Tried everything else? This heals. Hands-off personal therapy online. * www.therapysolutions.com Search Result 1From: Katharine (kathnews2@nospam,ta!optusnet.com.au) Subject: !ALT.SUPPORT.CHRONIC-PAIN FAQ 1/2 View: Complete Thread (2 articles) Original FormatNewsgroups: alt.support.chronic-pain Date: 2004-04-04 03:17:19 PST ALT.SUPPORT.CHRONIC-PAIN (ASC-P) NEWSGROUP FAQ PART 1/2 ____________ This FAQ is not official, it is my own opinion and is a guide only. Dr Work's information reproduced in part 2 with permission. FAQ available online at: http://www.members.optusnet.com.au/kathinternet/ASCP/index.htm Feel free to offer suggestions and additions either via this newsgroup or email. Remove spamblock from email to contact me. - Katharine ____________ UPDATES 04/04/04 (cool!) added some URLs and arranged them into categories. SECTIONS PART 1 1. General newsgroup information 2. ASC-P newsgroup information 3. Other newsgroups of interest 4. Useful websites PART 2 5. Medical issues frequently raised 6. Opiods and addiction/dependence/tolerance 7. Laxative Use in Conjunction with Chronic Opiates ____________ 1. GENERAL NEWSGROUP INFORMATION AND 'NETIQUETTE' This is a newsgroup. It is not a bulletin board, mailing list, emails or " the Internet " . It is not moderated - no one individual or group of people is in control. It's up to you whether you give out any personal information. Some people choose to remain completely anonymous, some people are open about who they are and where they're from. It's your choice, although it's generally not recommended to give out your personal details. As with any newsgroup, it's completely up to you what threads you read, what threads you ignore, and what threads you respond to. As with any newsgroup (and with life), if you are rude you will probably find people responding in kind. As with any newsgroup, often arguments and 'flame wars' erupt. As with any newsgroup, often discussions go 'off topic'. However, as this is a *support* newsgroup, it's not frowned on in the same way as with many other newsgroups. Sometimes people will disagree with what you say. This doesn't mean they dislike you, they just disagree with what you are saying, or perhaps how you are saying it. People who can't distinguish between these often end up attacking the person instead of dealing with what they've said (ad hominem attacks). As with all non-binary newsgroups, binary files (ie attachments), HTML posts and sales pitches (SPAM) are not allowed. Further to this, posts in all caps are not recommended as they are near impossible to read, are considered SHOUTING and poor form on the Internet. Crossposting to more than a couple of newsgroups is considered poor netiquette. Most newsgroups discourage top posting (where the reply appears above the post it's replying to), however, as many people in this newsgroup have physical limitations whereby a lot of scrolling can cause difficulties and/or pain, it is acceptable in this newsgroup. But for those who are able, it is strongly suggested that snipping portions of the post that aren't relevant to your reply is done, particularly when there is a long post to which you are replying with only a short amount of text, such as " I agree " ! Archives of newsgroups are kept at http://www.google.com or more specifically http://tinyurl.com/24q7a More information on posting DOs and DON'Ts, can be found at http://www.chronicpainfoundation.org/home/index.php?module=ascp ____________ 2. ASC-P NEWSGROUP INFORMATION If you want medical advice/suggestions, it's pretty hard to do so without giving at least some details about your medical condition. But you're certainly free to 'lurk' and read other people's posts, which may be helpful to you. It is possible to find some wonderful support, advice, friendship and a sense of community here. Many have found their participation in this newsgroup to be a life-changing experience when they find that there are people going through what they are going through, and are offered suggestions for how to deal with their condition that may not have considered before. Most people on this newsgroup aren't medical specialists, but have gained a lot of knowledge through their search for understanding about their own condition. Information here is given on good faith, but not to be taken as official medical advice, so *always* talk to your doctor about changing any aspect of your treatment. Medication such as opiods are often discussed in this newsgroup due to use in treating chronic pain. Inappropriate use of these or any other drugs is not condoned, and this newsgroup does not exist as a resource for those who wish to seek information on the illegal use of drugs, prescription or otherwise. ____________ 3. OTHER NEWSGROUPS OF INTEREST alt.support.chronic.pain ('dot' rather than 'dash'. Not on all newsservers) alt.support.headaches.migraine alt.support.arthritis alt.support.cancer alt.med.fibromyalgia alt.support.endometriosis alt.med.pain.rsd alt.support.lupus ____________ 4. USEFUL WEBSITES New user information, netiquette and how newsgroups operate http://www.faqs.org/faqs/by-newsgroup/news/news.announce.newusers.html http://www.faqs.org/faqs/usenet/writing-style/part1/ http://www.faqs.org/rfcs/rfc1855.html http://www.albion.com/netiquette/ http://kb.indiana.edu/menu/usenet.html http://www.landfield.com/usenet/ http://sunsite.unc.edu/usenet-i/ Spam blocking (munging) your email address for posting to public forums http://members.aol.com/emailfaq/mungfaq.html Sites specific to this newsgroup http://www.chronicpainfoundation.org/ascp.html http://alt.support.chronic-pain.ws/ Lists of links to pain related web sites http://painlinks.org http://www2.rpa.net/~lrandall/pmain.html http://www.cannylink.com/diseasechronicpain.htm Links, articles and resources http://vachss.com/help_text/pain.html http://www.pain.com/ http://www.partnersagainstpain.com/ Definitions of addiction, dependence and tolerance http://www.ampainsoc.org/advocacy/opioids2.htm Back Pain and Neck Pain for Patients-Spine Universe http://www.spineuniverse.com/ Pain and Palliative Care Reporter http://www.painlaw.org/index.html Intractable pain can have serious physiological consequences http://www.intractablepaindisease.com Excellent pain management page http://www.med.umich.edu/pain/apainmgt.htm pain treatment standards http://www.ipcaz.org./pages/new.html Pain and the Law (US) http://www.painandthelaw.org/ But You Look Good! http://www.invisibledisabilities.com/ P.A.I.N. - Pain-aide Information Network http://www.geocities.com/HotSprings/Villa/6413/helps.html Migraine FAQ http://www.meldrum.demon.co.uk/migraine/ Cancer pain management http://www.painresearch.utah.edu/cancerpain/ Arachnoiditis http://www.btinternet.com/~thinkback/arach.htm Neurology Information http://www.neuroland.com/ http://neuro-www.mgh.harvard.edu/ Resources for peripheral neuropathy http://www.neuropathy.org Education, resources and support for those with neuropathy http://www.canadianneuropathyassociation.org pain scales http://www.acs.ohio-state.edu/units/osuhosp/patedu/Materials/PDFDocs/procedure/p\ ain-log.pdf http://www2.rpa.net/~lrandall/painscale.html Pain organisations Chronic Pain Foundation http://www.chronicpainfoundation.org International Association for the Study of Pain http://www.iasp-pain.org/ Society for Ongoing Relief of Chronic Excruciating Pain http://www.sorcep.com/ The American Pain Foundation http://painaid.painfoundation.org/ American Academy of Pain Management http://www.aapainmanage.org/ The American Academy of Pain Medicine http://www.painmed.org/ American Pain Society http://www.ampainsoc.org/ American Pain Foundation http://painfoundation.org/ American Chronic Pain Association http://www.theacpa.org/ North American Chronic Pain Society http://www.nacps.us/ (USA) The National Foundation for the Treatment of Pain http://www.paincare.org/index.html (USA) National Pain Education Council http://www.npecweb.org/ Doctors for Pain http://www.doctorsforpain.com/patient/aboutpain.html Mayday Pain & Society Fellowship http://www.painandhealth.org/ Pain-aide information Network http://www.geocities.com/HotSprings/Villa/6413/ Medication Definitions of addiction, dependence and tolerance http://www.ampainsoc.org/advocacy/opioids2.htm Drugs Used to Treat Pain: Opioids - Narcotics (Overview) http://www.spineuniverse.com/displayarticle.php/article1345.html A guide to appropriate use of opiods http://www.jenniferschneider.com/articles/opiods.html World Health Organisation (WHO) Drugs documents http://www.who.int/medicines/library/docseng_from_a_to_z.shtml WHO: Achieving balance in national opioids control policy -- Guidelines for assessment http://www.who.int/medicines/library/qsm/who-edm-qsm-2000-4/who-edm-qsm-2000-4.s\ html Opioid conversion http://www.med.umich.edu/pain/apainmgt.htm#table http://adultpain.nursing.uiowa.edu/MedGen/EquAntt.htm http://www.globalrph.com/narcotic.htm http://www.globalrph.com/narcoticonv.htm The internet drug index http://www.rxlist.com/ Drug interactions guide http://www.drugs.com/data/channel/md/drkoop.cfm?int=0 Prescription drug patient assistance programs (USA only) http://www.needymeds.com/ http://www.phrma.org/ http://www.aegis.com/factshts/network/access/pa.html http://knox.nami.org/helpline/freemed.htm http://www.jackstem.com/free_medications.htm http://www.themedicineprogram.com/ http://www.thesojourners.org/FreeRxMedicine.htm http://users.erols.com/jones3745/free1b.htm http://www.medicare.gov/Prescription/Home.asp http://www.geocities.com/HotSprings/Spa/7379/freemeds.html Post a follow-up to this message ------------------------------------------------------------------------ Google Home - Advertising Products - Business Solutions - About Google ©2004 Google Quote Link to comment Share on other sites More sharing options...
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