Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 If the feet have been completely corrected, most babies don't have a lot of trouble getting used to the brace. Persistent problems often are a sign that the feet were not completely corrected in the first place, that they have relapsed, or that the brace and/or shoes were set up wrong. If that is the case, the shoes won't fit right, the feet will slip, blisters will happen, and the baby will be miserable. Don't assume misery in the shoes is normal or part of the deal. It's not. Brena, you are a wonderful grandmom to be helping your daughter .. I too would be concerned about being out of the brace so long.. and think it is indeed possible that he needs more casting. My daughter's foot looked corrected, " L shaped " , once Dr. Ponseti finished casting her, but with her previous doctor, it remained " lumpy " . I knew something was not right. Follow your instinct. Even if the doctor is listed on the site. (See the parent checklist mentioned below.) Would you be willing to consider getting another opinion, just to be sure? Some of the SoCal parents might be able to give you more suggestions. I know there is a very experienced Ponseti method doctor in the SF area, Dr. Colburn, whom you might want to contact. If you want his contact info let us know. Here is a website showing the progression of casting in another child, if that will help to see: http://hometown.aol.com/vc11/index.htm And here are some other key sites for information: http://www.global-help.org/publications/pdfs/PonsetiBook.pdf http://pages.ivillage.com/ponseti_links/ (See especially the parent checklist) and of course: http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Clubfeet.html Best of luck.. keep posting and asking.. and let us know what happens! Congratulations on your baby grandson! and Claire > That is a shame. Using a band-aid blister pad and some socks might have helped. It is a very challenging task initially fitting a child with the brace; children hate being placed in them. sandals (The Ponsetti Brace) seems to work very well, or the straight last, Markell Shoes with the plastizode insert. > From: yepizb > To: nosurgery4clubfoot > Sent: Thursday, May 13, 2004 1:15 PM > Subject: (unknown) > > > I am the grandmother of a beautiful 3 month old grandson. He was born > with bcf. He was casted at 6 days old by a doctor who told my > daughter that 100% needed surgery and casting alone would not work. > Well since we knew before he was born that he had cf we did reseach > on this website and other and decided to take him to Childrens > Hospital in San Diego where we live since Dr. Ponseti's website > listed a Dr. Mubarak in San Diego. Well my grandson received 7 more > castings and had the tenonomy procedure done and wore his last cast > for 3 weeks. After his last casting he was fitted with the white > open-toed shoes with the unadjustable bar attached. Within 1 week he > developed a severe blister and could not bare to be in his shoes. My > daughter called her doctor who instructed her to keep his shoes off > until the blister healed and she would be seeing him later that week > anyways. At his appointment they put in more padding (a felt pad) in > the rear heel of the shoe but the blister still was completely healed > and still needed to wait until it healed before putting him back in > the shoes. Well he has not wore his shoes for 10 days now! His > blister fell off and looked healed 2 days ago and my daughter put him > back in the shoes but he cried in great pain and just kept his leggs > straight and would not bend them like he used to. She removed the > shoes and the top of his feet already started to bruise again. I feel > that either his feet were never completely healed after the last > casting because he never had an L shaped foot where the heel would be > able to sit back into the shoe correctly. He foot always seems to be > swollen looking and quite rounded. She called his doctors office > today to see if she can be seen earlier than his next appointment on > the 27th and she has an appointment for next Thursday the 20th. I > will be going with her to make sure I ask the doctor the right > questions like - why are his feet so round? With this shape it's > impossible to fit in any shoe correctly. Also, should he have > another casting to correct what damage being out of his shoes for > this long may have caused. > I will also ask to have his shoes changed to the newer Markell shoes > that look a lot more comfortable than what was given him. > Has anyone in the San Diego area been treated by Dr. Mubarak at > Childrens Hospital? He was listed as a doctor trained in the San > Diego are on Dr. Ponseti's website, but so far he just seem to think > everything is going OK, but it doesn't seem that way to me. > Thank you to everyone on this site for being so informative and > helpful to everyone. You are truley a blessing from God. > Brena > > Quote Link to comment Share on other sites More sharing options...
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