Re: ear tubes

[Guest guest]

Matt, is your hearing okay? If you get to the point that even with tubes your hearing is poor, ask your doctor about a temporal bone implant. This is not like the cochlear implant, which is much more major surgery. For this a small implant is screwed into the bone, but not all the way through, then an amplifier is attached. The amplifier can be removed & the screw capped off to allow swimming. They can test you to see if this will work by using a headband device. They tested Brad & he was amazed by how well he could hear. His ENT wants to get the best results he can with reconstruction first, then go to the implant. One big advantage of the implant is that his insurance would cover it, while not covering hearing aids. Also, hearing aids don't help him a lot because of all the scarring in his ears.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: ear tubesDate: Mon, 19 Sep 2005 21:49:46 -0700 (PDT)--- Rose wrote:---------------------------------Matt, did this problem just start as an adult? My sonBrad, who is 29, has had middle ear problems since age4. At first they put tubes in & said he would outgrowit. By age 10, the ENT he saw said that he wouldnever outgrow it, that the Eustachian tubes werenonfunctioning & he would always need tubes. Thatdoctor was right. Brad is a big boy now, 6'5" andabout 240# and still has tubes in his ears! Plus, hehas had 2 major reconstructions on his right ear andwill soon need one on his left. He didn't have thetypical childhood ear infections, with fever & pain. He just got a thick, glue-like stuff in the middleear. He didn't have significant hearing loss untilyoung adulthood. At some point he will need a boneimplant to condult the sound, avoiding the middle earsentirely. Anyway, a long story to say that adults canhave middle ear problems requiring tubes that aren'tsarc-related. Again, living up to my name. . . .Ramblin' RoseModeratorHi Rose- i have had problems with my ears since i wasa young boy- i have had two operations on them butthey have only slightly made it better- The tubes theyput in help a little but i still have problems. Theyhave told me that my echstation tubes have collaspedand that this is the best they can do- Matt---------------------------------Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: ear tubesDate: Sun, 11 Sep 2005 22:50:47 -0700 (PDT)--- tiodaat@... wrote:> > > > > I had tubes put into my right ear today to correct> my air pressure problem. > > they will do the > > left ear on tues. I am doing ok overall- still> cant get rid of my headaches > > but at least i > > seem to have some days where they are not present> all day. > > > > matt,> I wonder if the air pressure problem is part of the> deafness that many of us > seem to deal with. I know that the last year, my> hearing has become so much > worse. What have your MD's explained about this> part of the disease? Do take > care of yourself, I know that anything going on with> our ears can throw a huge > monkey wrench into how we feel. > > Tracie> Tracie- thanks for the info- I will ask my ear docabout this- This has been a problem for several yearsnow- this is the third time that they have put tubesin my ears-have wodered if it is sarc connected. Theykeep saying they dont know- Matt__________________________________________________