RE: Mad as heck at the treatments

[Guest guest]

Oh my god Kori, I'm so sorry to hear your going through this. I too would really

like to have help on all the needed info for a Beginners manual of sorts for

moms, and for other Dr. that think this is a crock!!! Look at all those

beautiful baby feet!!! There all Diff. some small, some long some pudgy:) But

ALL just Beautiful!! And there feet have come such a long way without getting

cut up and having to face other pains and problems in the future. Sure they go

into relapse, but that dose not mean you give up, it means you have to step back

and follow steps that have been done already one more time. But, if the Dr. is

not concerned or has given up due to complaints from moms about what there going

through and not following the procedures, then he should be screaming for help

from others to help the moms that are having problems NOT GIVE UP!

Look at all the moms that have had to start from scratch because the Dr. they

were seeing did not correct the problem, or made things worse!

I hope you can get him to set his sights back on what Dr. Ponseti has taught

him, and ask if it's because he is out numbered by patients moms giving up on

the method, that he has just thrown his hands up and said the heck with it?

Sorry, I must be getting my monthly or something...heheh Does this make any

sense?

Also, PLEASE I really need help organizing any form of information booklet to

start helping on our Island baby's and getting more Dr. to practice this method.

If you look on the website we only have one. Also..I don't have a clue on how

something like that is put together!!!

Sorry so long.... If anyone would help, please if you want to contact me

direct it is fine:)

cfhawaii50@... of cfhawaii50@...

Thank you so much Carole

mom to Kristopher born 6-11-02 bilateral cf treated from 7 days old, recasted

5-04 now in dbb/fab 12 to 14hrs also has AFO's but for help in keeping his frt

toes from curling. not for treatment of clubfoot correction.

Kris has a bad habit of curling his frt toes inward and this causes him to twist

the feet upward and inward. because he does it so often we are trying to see if

the HABIT will break by wearing the AFO's just when he is out and about running

to the store with me or stuff like that. Otherwise we let him run without

anything:) I was a little scared when I was told to be fitted for these AFO's

but I talked to Dr. and we agree that it's worth a try to break a habit, not for

correction, because he too feels they are not able to correct a darn thing. But

as for him being strapped in and not able to curl the toes, so far it has

helped:) BY NO MEANS are we in these to change any of the methods we are on. I

would be a tiger in a cornered cage if anyone were to take away any of the

proper steps Dr. P. has set forth:)

oh here i go again!!! sorry:) Bye Carole