Thanks Darcy...questions

[Guest guest]

Hi again Darcy,

Glad you posted so much, seriously. I think, like a lot of fibro

patients, I just need to hear someone else is feeling something that

is so bizarre and alien to me.

The disability thing freaks me out. I should think we'd all need

reams of paper to explain how we're limited, but I think the

limitation that's most prominent is " I have absolutely no control

over my own body " Sure, you can manage pain and fatigue to some

extent, but you can't make it ever go away. And the twitches and

spasms? Never in my wildest dreams did I think it would be this

angering not to be able to make my fingers and legs answer to my

brain. I'd rather take on a little extra pain than to not be able to

control how my body moves. It seems sooo simple to see how fibro

just disables and limits a person, and so utterly sad the specifics

have to be explained. And you're right Darcy, how does one prove

fatigue? I have only managed that by nodding off at work, have a

VERY understanding boss, so it was ok, but other people might

interpret it as laziness.

As for the choking, yeah my spit seems thicker now, especially at

night when I try to sleep. It seems to linger in the back of my

throat and in the back of my mouth. Yuck! Also sometimes my tongue

feels " Weird " and of course, there's the jaw pain, and yippee, the

jaw spasms. When people refer to speech problems, what do you mean?

I have found over the past months, I trip over words or can't get

them off my tongue. God I hate that, that and having things jump out

of my hands or fumbling for cash in a store.

Stacey: Darcy is right. Let it all out, Vent a nice long post. I

don't think it's losing control, I think it's taking control! Take

control of your emotions, put them on the screen, don't let them

take over you!

Shandi