help please

[Guest guest]

Hi Lorra,

I'm not on prednisone, but have major problems sleeping too. Have you

ever tried Ambien? I use it every night and it has been a miracle for

me. It shuts your brain off so you can sleep plus it lets me sleep

through my husband's snoring. See if your rheumy will let you try it.

Good luck

Tana

> Hi to everyone!!! I have not had a major problem in a while with

my

> lupus, just little things. Now everything seems to be falling

apart.

> My doc. just increased my predisone to 40mg a day plus changed 3

> other meds. He did this on Friday and I thought my sleeping habits

> were bad before. I was up all night fri. slept 3 hours sat

afternoon,

> went to bed 5am this morning and was up at 10. and still cant

sleep.

> I know I am tired but I cant get myself to sleep. Toss and turn and

> it feels like I am on speed as far as my brain goes. I take my

> sleeping pills sometimes and they dont seem to help alot. They just

> make me groggy the next day. I have had this for 12yrs and you

would

> think I would be used to all the mess, but when I have been half

way

> ok and then boom it hits. It has really gotten to me. So I guess I

> thought I was Super Woman and Super MOM all in one and now it

trying

> to slow me down and I feel like I just cant. I guess I think if I

do

> I wont get going again. My 2 boys are really getting to me and I

> know that most of it is the meds. I feel like I just want to run

and

> run far and the funny thing is I want to run to the beach. LOL I

> love the ocean. It is so peaceful to sit and just watch the tide

and

> be in complete awe of Gods wonders. But I also know that I cant do

> that, cause I take me with me. I could really use some input on

> getting a hold on the predisone and the weight gain that has came

> with it. No to mention the shortness of breath and no enegry.

> love to all Lorra

[Guest guest]

Hi all,

I don't post much here,but I read all that's posted. Mostly,

because I'm not sure I have neurosarc. Was diagnosed with regular

sarc 5 years ago through tests, but not biopsy. The pulmonary doc I

saw then is actually listed as a sarc specialist too, but didn't

order a biopsy!! Anyway, initially it was in lymph nodes,lungs and

one eye. My eye never really went into any long remission until

lately. Muscles and joint pain started after 6-8 months. Worse now.

Started having mobility problems somewhere there in the first year

with feeling unsteady when walking my main symptom. Had the ususal

testa, everything okay. About then, I decided to forget medical help,

because, as we all know, you start to get frustrated with the same

old rhetoric that everhthing is fine when you can't do what you

normmally could before!!

I lived with just over the counter pain meds then and now, mostly

just focus on eating healthy and lots of denial!! Hah!! Well, back in

the summer, I had a bad case of vertigo to the point where I fell

down trying to stand up. Went to my PCP, lovely man. He thought it

was cerebellar and sent me to this neuro, who sent me for mri.

Normal. Went back to neuro, whose main test was seeing how fast I

could turn my hands right side up, right side down> Impressive, huh??

Bozo. So back on my own, took pills for dizziness, kept one eye

closed while driving. Had two bouts. Now, the other day, I ironed my

hand and ironed my index finger pretty good,all shiny and a couple of

small blisters, about 2 1/2 " x 1 " . I had NO PAIN at all.

My doctor at work suggested that with muscle fatigue, pain response

is diminished but I dont know. Anybody else have this happen?? I dont

know whether I need to address this or not but Ive burned myself

before and it usually hurts like heck. I am so tired of the whole

deal and really feel that medicine does'nt have any good choices out

there for me. My rheumo doc is okay but I haven't been going there

either. Nothing changes,know what I mean??

Thanks,

Bonnie