Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Shauna - We have the shoe and LOVE it. I've never had to deal with the Markell shoe because my daughter has atypical feet and we knew it wouldn't work so I can't compare but to me the price was well worth it. We are attempting to get insurance to reimburse us for the cost even though it is " out of network " . Even if they don't we're set to order another pair. Chris Shoes Hi - I wrote a few weeks ago because my 16 month old son had been released from the DBB at 10 months of age and now his clubfoot is recurring. We saw one of Dr. Ponseti's specialists in Cincinnati and she agrees that he must go back in the brace, and gave us a website of a new shoe that Dr. Ponseti has approved for the DBB. It is made by a man who works with Dr. Ponseti named . It is a sandal with open toes and heels and looks like it would be A LOT EASIER to get on than the current Markell laced shoes. Has anyone tried the new shoe, and if so, how is it? I am thinking of ordering it because my son just will not sit still to let me lace up his DBB shoes. It is a lot more expensive ($350.00) but I am wondering if it might be worth it? Thanks, Shauna mom to Sammy, bilateral CF 4/25/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Hi Shauna, It shouldn't take long to lace the Markell's up. Try this in the meantime (till you get your 's if you do decide to); tie a knot in the center of each lace (undo them first) so you always know where the center is. Then lace the shoes up and tie another knot in each end. This way, you can pull them out very loose but they don't ever come out of the holes. Then the lacing takes all of about 20 seconds, all you do is tighten them and then tie. Also, if you've got the new style Markell's you know the strap is very short (grrrr....). Punch a hole at the end of the strap so that you can put it into the buckle in that last hole when you put his foot into the shoe (so it doesn't pull the strap out). Not ideal, a longer strap would be ideal... but it works. Also, I put her on her back with her feet towards me to put them on, maybe it's because she's used to it but she mostly just lets me put them on. If she sits up it's more difficult but if she's lying there like she's getting her diaper change it's usually pretty smooth. Once I get the straps buckled I can keep her in place because the bar is on and I have leverage for twisty girl lol. A lot of people here have the shoes, personally I'd love a pair but they're too expensive when the Markell's work just fine. I finally saw with my own eyes Kai's 's last week when Angel was here in Portland (I have pics, I will send to the pics list soon, I promise!) and they are very cool. The thing I noticed about them that I really liked was that they're flat on the bottom and when he stands in them his feet or rather the soles of the shoes are flat on the floor rather than balancing on the bar only. I don't think the 's would work for us because Darbi's feet grow very fast. She is at the end of her 3.5's right now and has only had them a couple of months! She's 17mo as of a couple days ago and wears a size 4.5-5 in regular shoes. At that rate I'd be spending $1100/year in 's! I'm good with the Markell's. I think they're a good shoe for those of us who don't have issues with atypical CF and they're very heavy duty which is good with toddlers. Personally, if there are no issues other than the laces I wouldn't spend the $ but that's just me. There is also the issue with babies with larger feet. had to special make Kai's shoes because he didn't have a mold set up for his size feet. And that was sometime around when Kai was a year old IIRC. He *may* have come up with larger sizes by now, you'll have to give him a call and ask. Do you need his contact information? There's a picture on the CFPics website of a baby wearing 's. They're very cute. Glad to hear you're getting back on track. Was this same Ponseti trained Dr. the one who released him at 10 mo or did you take him out yourself? ( I remember a parent saying recently that for personal reasons the baby didn't wear the FAB, was that you?) Also, since he's relapsing has he been casted, or are you trying to use the brace to correct? If so, I hope you will consider a second opinion because the shoes do not correct, they only maintain correction and relapses should absolutely be casted again. Please don't rely on the brace to correct, your son is still young enough to be able to work with the casting now but if you just try the shoes and 6 mo's down the road you find that it isn't working his feet are older and will be more difficult to correct with casting. Hoping for the best for you and your little guy! Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 10:00 AM 8/30/2004, you wrote: >Hi - >I wrote a few weeks ago because my 16 month old son had been released >from the DBB at 10 months of age and now his clubfoot is recurring. >We saw one of Dr. Ponseti's specialists in Cincinnati and she agrees >that he must go back in the brace, and gave us a website of a new >shoe that Dr. Ponseti has approved for the DBB. It is made by a man >who works with Dr. Ponseti named . It is a sandal with >open toes and heels and looks like it would be A LOT EASIER to get on >than the current Markell laced shoes. Has anyone tried the new shoe, >and if so, how is it? I am thinking of ordering it because my son >just will not sit still to let me lace up his DBB shoes. It is a lot >more expensive ($350.00) but I am wondering if it might be worth it? > >Thanks, >Shauna >mom to Sammy, bilateral CF 4/25/03 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 no, that wasn't me that took the FAB off for personal reasons. We took it off because our ortho surgeon said he didn't need it anymore. We did get second opinion from a doctor trained by Dr. Ponseti. She said the correction is still good, it's just the forefoot that is turning in and therefore the FAB will definitely work. As for the shoes, it takes me 20 minutes to put on the Markells because of kicking and squirming, no matter what position we use. I think I will try the s. -- In nosurgery4clubfoot , " frogabog " wrote: > Hi Shauna, > > It shouldn't take long to lace the Markell's up. Try this in the meantime > (till you get your 's if you do decide to); tie a knot in the > center of each lace (undo them first) so you always know where the center > is. Then lace the shoes up and tie another knot in each end. This way, > you can pull them out very loose but they don't ever come out of the > holes. Then the lacing takes all of about 20 seconds, all you do is > tighten them and then tie. Also, if you've got the new style > Markell's you know the strap is very short (grrrr....). Punch a hole at > the end of the strap so that you can put it into the buckle in that last > hole when you put his foot into the shoe (so it doesn't pull the strap > out). Not ideal, a longer strap would be ideal... but it works. Also, I > put her on her back with her feet towards me to put them on, maybe it's > because she's used to it but she mostly just lets me put them on. If she > sits up it's more difficult but if she's lying there like she's getting her > diaper change it's usually pretty smooth. Once I get the straps buckled I > can keep her in place because the bar is on and I have leverage for twisty > girl lol. > > A lot of people here have the shoes, personally I'd love a pair > but they're too expensive when the Markell's work just fine. I finally saw > with my own eyes Kai's 's last week when Angel was here in Portland > (I have pics, I will send to the pics list soon, I promise!) and they are > very cool. The thing I noticed about them that I really liked was that > they're flat on the bottom and when he stands in them his feet or rather > the soles of the shoes are flat on the floor rather than balancing on the > bar only. I don't think the 's would work for us because Darbi's > feet grow very fast. She is at the end of her 3.5's right now and has only > had them a couple of months! She's 17mo as of a couple days ago and wears > a size 4.5-5 in regular shoes. At that rate I'd be spending $1100/year in > 's! I'm good with the Markell's. I think they're a good shoe for > those of us who don't have issues with atypical CF and they're very heavy > duty which is good with toddlers. Personally, if there are no issues other > than the laces I wouldn't spend the $ but that's just me. There is also > the issue with babies with larger feet. had to special make Kai's > shoes because he didn't have a mold set up for his size feet. And that was > sometime around when Kai was a year old IIRC. He *may* have come up with > larger sizes by now, you'll have to give him a call and ask. Do you need > his contact information? > > There's a picture on the CFPics website of a baby wearing > 's. They're very cute. > > Glad to hear you're getting back on track. Was this same Ponseti trained > Dr. the one who released him at 10 mo or did you take him out yourself? ( > I remember a parent saying recently that for personal reasons the baby > didn't wear the FAB, was that you?) Also, since he's relapsing has he been > casted, or are you trying to use the brace to correct? If so, I hope you > will consider a second opinion because the shoes do not correct, they only > maintain correction and relapses should absolutely be casted again. Please > don't rely on the brace to correct, your son is still young enough to be > able to work with the casting now but if you just try the shoes and 6 mo's > down the road you find that it isn't working his feet are older and will be > more difficult to correct with casting. > > Hoping for the best for you and your little guy! > > > > > > Kori > Mama of > Kenton 6/98 > Merek 3/00 > Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ > > > > At 10:00 AM 8/30/2004, you wrote: > > >Hi - > >I wrote a few weeks ago because my 16 month old son had been released > >from the DBB at 10 months of age and now his clubfoot is recurring. > >We saw one of Dr. Ponseti's specialists in Cincinnati and she agrees > >that he must go back in the brace, and gave us a website of a new > >shoe that Dr. Ponseti has approved for the DBB. It is made by a man > >who works with Dr. Ponseti named . It is a sandal with > >open toes and heels and looks like it would be A LOT EASIER to get on > >than the current Markell laced shoes. Has anyone tried the new shoe, > >and if so, how is it? I am thinking of ordering it because my son > >just will not sit still to let me lace up his DBB shoes. It is a lot > >more expensive ($350.00) but I am wondering if it might be worth it? > > > >Thanks, > >Shauna > >mom to Sammy, bilateral CF 4/25/03 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 P.S. In regards to the price, it wouldn't cost you that much more because when they go up a size, you just buy the shoes only, which you can attach on and off yourself. You don't buy the whole FAB, thank goodness. > > >Hi - > >I wrote a few weeks ago because my 16 month old son had been released > >from the DBB at 10 months of age and now his clubfoot is recurring. > >We saw one of Dr. Ponseti's specialists in Cincinnati and she agrees > >that he must go back in the brace, and gave us a website of a new > >shoe that Dr. Ponseti has approved for the DBB. It is made by a man > >who works with Dr. Ponseti named . It is a sandal with > >open toes and heels and looks like it would be A LOT EASIER to get on > >than the current Markell laced shoes. Has anyone tried the new shoe, > >and if so, how is it? I am thinking of ordering it because my son > >just will not sit still to let me lace up his DBB shoes. It is a lot > >more expensive ($350.00) but I am wondering if it might be worth it? > > > >Thanks, > >Shauna > >mom to Sammy, bilateral CF 4/25/03 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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