Do you need a support group in OHIO??

[Guest guest]

Hi, My name is Gretchen Fox. I am the newest group leader of the

state of OHIO and Northern West Virginia for the Ehlers Danlos

National Foundation. I am currently trying to establish a database

of EDS/HMS patients, their family, their friends or even people that

are just interested in learning more about EDS/HMS. I am in the

process of trying to locate where the majority of people with EDS are

living in the Oh or WV area so that I can schedule group support

meetings and information sessions that will be accessible to most

people that would be interested in attending. I have a growing list

and would like to invite any one here that is interested to please e-

mail me and I will get back to you ASAP. If you are not comfortable

doing alot of typing please leave your phone number in your e-mail

and I will contact you by phone or if you are not comfortable giving

out your number please ask for mine in your initiall reply. My group

has some wonderful things planned to gain awareness in our states, to

educate doctors and to raise money for research for this debilitating

disorder, most importantly though my goal is to be there for support

for any one who may need it. I am a 32 year old wife and mother of

four children. Myself and three of my children have

EDS/POTS/Dysautonomia. Please contact me if you are interested.

Thank you, Gretchen Fox

gretchenmfox@...

or

foxitv@...