chest pain

[Guest guest]

-yes, from sneezing or coughing.

i get spasms and they hurt bad.

i understand that some FMS victims

have had broken ribs from spasms!

my jaw spasms broke two teeth out

and my gold fillings. man! that

was a #10 on the pain scale. i

was in and out of my head, my hubby

had to stay up with me thru it.

oh man, like an invisable person

trying to break my jaw with one

hand.

my leg spasms caused my left leg

to be shorter than the right. thats

how bad they are.

but....check it out with your doc,

never can be too careful.

i was just giving my experience.

xoxoxoxxo

melody harris

so.calif.

-- In @y..., " amy evans " wrote:

> Any of you who have Fibromyalgia have chest pain?

>

>

> Re: What is dystonia?

>

> Hi Deanna.

>

> I asked Em the same thing last week. Here was the response that I

got. Hope

> this explains it a little bit better for you...My take on it is

that you are

> in alot of pain, and you don't control the movements in your

extremities.

>

> Read on!

> ~~~~

> I'm still in the midst of figuring it out! I cannot remember if I

posted

> this here or not -- my brain is so foggy it's like pea soup in

there.

>

> Here's the Dystonia Foundation description. " Dystonia is a

neurological

> movement disorder

> characterized by involuntary muscle contractions, which force

certain parts

> of the body into abnormal,

> sometime painful, movements or postures. Dystonia can affect any

part of

> the body including the arms and legs, trunk, neck, eyelids, face,

or vocal

> cords.

>

> " If dystonia causes any type of impairment, it is because muscle

> contractions interfere with normal function. Features such as

cognition,

> strength, and the senses, including vision and hearing are normal.

(EB:

> That's debatable IMO) While dystonia is not fatal, it is a chronic

> disorder and prognosis is difficult to predict.

>

> " It is the third most common movement disorder after Parkinson's

Disease

> and Tremor, affecting more than 300,000 people in North America.

Dystonia

> does not discriminate - affecting all races and ethnic groups. "

>

> I was waiting to go group therapy my first day in partial

hospitaliztion --

> I had just had a good lunch, was sitting down waiting for 1:00, and

I

> started to feel real funny. My doctor happened around at that time,

and

> said, " What's wrong? " I didn't know, I just felt all itchy and

> twitchy. My head started to bob, hands had this awful slow shake.

So we

> got up to go to the room, and I could not control my feet or knees

at

> all. They were going every which way, tripping me, spasming so bad

I could

> not walk. So a combo of my inpatient drs decided to send me to the

ER,

> where they diagnosed dystonia. Never heard of it. They gave me the

> antidote (Cogentin) and it didn't work. Gave me a big shot of

Valium --

> didn't even touch it.

>

> So I have been searching for answers. My neurologist diagnosed it as

> dystonia, but didn't tell me what kind, didn't order any tests. At

this

> point (roughly 3 weeks later) I am walker-dependent. My legs just

won't

> cooperate. I have fallen a great number of times, enough that my

dad is

> rumbling about getting someone to stay with me 24/7. (ugh) The best

thing

> for me is a wheelchair, but they are very expensive without a

prescription,

> so I'm making do. I'm on indefinite medical leave from work, but I

don't

> think I will be able to return to that job under the current

circumstances.

> When you add in the flare that started two weeks ago, you've

basically got

> me flat on my back. I can't really tell where my feet are unless I

look

> down at them -- if I look down, I get dizzy, so it's kind of a

rotten

> situation.

>

> >Ps. Sometimes crawling under the covers just feel good!!!

>

> You said it, girlfriend!

>

> Love,

> Em

>

>

>

>

>

>