Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 I have Itp. The dr.s tell us that fatigue has absolutly nothing to do with Itp. Ask any of us that have Itp and we will all tell you they are full of it! Fatigue seems to follow itp hand in hand. Also, it doesn't really matter much if your platelets are lower to feel fatigue, you still feel it either way, just more compounded when your platelets are lower. Deb, if you ever need to talk about this Itp thing, let me know, I have been dealing with it for 14 months now, and I know of a wonderful support group for it. When you are dealing with several auto-immune diseases, one support groupd jsut doesn't work..lol..you need one for each problem..good luck to you! > Debbie, nice to have you with us. Don't worry about forgetting names and > faces. Faces we don't have to worry about, names - most of us forget but do > our best not to get too confused. > > Yes, we are a very chatty bunch. There's days when we get a lot of > e-mails. If you are set up on individual e-mails, we can set up on a daily > digest. That would mean a few messages daily, compiling all messages into > one. Let me know whether you want to do this. > > Fatigue is so typical so most of us. I don't have problems with platelets, > but I do believe you feel even more tired when they are low, so you have all > the right to feel crappy. > > Hope you enjoy yourself with us. Please feel free to whine, cry, ask > questions or just have fun with us. > > Mojo > Thought I should say HI > > > > Hi, I am a newbie here. I am trying to read a lot of the past posts, > > but dang, y'all are a chatty bunch! > > I will introduce myself. > > My name is Debbie, but call me Deb. I am 34 yrs old, married 16 > > years to my high school sweetheart, I know, blech, its so cutsie its > > sickening. We live in a small town in central Illinois. Cornfields > > as far as the eye can see. > > I have 2 children. My dd is 11 and too smart for her own good. My > > son is 6 going on 50. Everyone says he is an old soul, I just say > > he's a littl s***. He has medical stuff of his own going on, but > > thats for a later day. > > About me, I have only been officially diagnosed with Lupus for about > > 2 years, but can trace symptoms back at least 15. My main symptoms > > are ITP, I have the worlds crappiest platelets. Last count they > > stood somewhere around 40. I also fight the fatigue terribly, but Im > > sure not as bad as some. I tend to get wicked migraines, and the > > typical lupie fog, gotta love that. > > Sometimes I feel guilty because I don't feel as bad as others. I was > > just put on Plaquenil 2 months ago, and have heard that it could take > > up to 6 months to really feel it. Kinda worried about its effect on > > my platelets, but I see the hemo this week, so we shall see. > > Bear with me if I forget names and " faces " Thats one of my worst > > problems. I always say I need to staple a note to my forehead to > > remember to do something, but most likely I would still forget, and > > wonder why in the heck my forehead hurts. > > Ok, I won't write a novel. Here's to getting to know some of you. > > Deb > > > > > > > > > > > > " The LUPIES Store " Come check out our store... > > http://www.cafepress.com/thelupies > > > > " The LUPIES Web Page " > > http://www.itzarion.com/lupusgroup.html > > > > " The LUPIES online photo albums! " > > Check out what your fellow Lupies look like... > > http://www.picturetrail.com/gallery/view?username=lupies > > Quote Link to comment Share on other sites More sharing options...
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