Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hi All, Well got in to see my old DO on Friday morning after the moron ortho dropped me like a hot potato! I had been to that orthos 1x seven years ago and never went again so whoever I saw I didn't like - my initial impression was valid! Anyway after listening to me and then getting copies of my blood work and looking up info on EDS he came back and said he thought I had a C1 subluxation. Basically a rotary/twist sublux which doesn't show on x-rays. He said it is clinically dx'd by the symptoms you present with (my research since then has found out you can see it with specific CT scans but even then it may be missed). He said the subluxed vertebre caused the muscle next to it to spasm which created a self feeding circle - sublux causes spasm then spasm keeps sublux from going back in and back and forth. He also said I had Neuritis which is a damaged or inflammed nerve. This was what was causing such severe agonizing pain. The nerve could have been inflammed by the sublux or the muscle spasm. He wanted to try the conservative treatment first rather than chiro me in cause he was afraid of causing more damage due to my EDS. Basically the conservative way is pressure or ice on the muscle spasm/inflammed nerve area till the area " falls asleep " . He had me do this in the office with a broom handle while lying on the floor. This hopefully will eventually allow the subluxation to slip back in if the muscle stops spasing. Between that and the pressure he also placed on it I actually got 3 hours sleep when I got home! I continued over the weekend using both ice and various things to put pressure on the area to numb it. Slowly but surely it has worked! As of this morning I only have a light headache on the back right side and minor neck muscle soreness!! I actually slept in my own bed for the first time in over a week last night. So I am hoping that the sublux has worked it's way back in. That's the one good thing about my joints - they are so loose they tend to go back in all by themselves. Just wanted to let you all know that I am okay now - almost 100%. Scarey though that since this happened in my sleep it could happen again anytime, no way to avoid it. At least I now have some tools to work with if it should happen again. Hugs, B. HEDS, New Jersey, USA Quote Link to comment Share on other sites More sharing options...
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