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[Guest guest]

I am the grandmother of a beautiful 3 month old grandson. He was born

with bcf. He was casted at 6 days old by a doctor who told my

daughter that 100% needed surgery and casting alone would not work.

Well since we knew before he was born that he had cf we did reseach

on this website and other and decided to take him to Childrens

Hospital in San Diego where we live since Dr. Ponseti's website

listed a Dr. Mubarak in San Diego. Well my grandson received 7 more

castings and had the tenonomy procedure done and wore his last cast

for 3 weeks. After his last casting he was fitted with the white

open-toed shoes with the unadjustable bar attached. Within 1 week he

developed a severe blister and could not bare to be in his shoes. My

daughter called her doctor who instructed her to keep his shoes off

until the blister healed and she would be seeing him later that week

anyways. At his appointment they put in more padding (a felt pad)in

the rear heel of the shoe but the blister still was completely healed

and still needed to wait until it healed before putting him back in

the shoes. Well he has not wore his shoes for 10 days now! His

blister fell off and looked healed 2 days ago and my daughter put him

back in the shoes but he cried in great pain and just kept his leggs

straight and would not bend them like he used to. She removed the

shoes and the top of his feet already started to bruise again. I feel

that either his feet were never completely healed after the last

casting because he never had an L shaped foot where the heel would be

able to sit back into the shoe correctly. He foot always seems to be

swollen looking and quite rounded. She called his doctors office

today to see if she can be seen earlier than his next appointment on

the 27th and she has an appointment for next Thursday the 20th. I

will be going with her to make sure I ask the doctor the right

questions like - why are his feet so round? With this shape it's

impossible to fit in any shoe correctly. Also, should he have

another casting to correct what damage being out of his shoes for

this long may have caused.

I will also ask to have his shoes changed to the newer Markell shoes

that look a lot more comfortable than what was given him.

Has anyone in the San Diego area been treated by Dr. Mubarak at

Childrens Hospital? He was listed as a doctor trained in the San

Diego are on Dr. Ponseti's website, but so far he just seem to think

everything is going OK, but it doesn't seem that way to me.

Thank you to everyone on this site for being so informative and

helpful to everyone. You are truley a blessing from God.

Brena