Re: scalenes - also Stacey re TOS Tests

[Guest guest]

> Not ignoring you - I have just been tied up with some other posts

> this afternoon and ....>

Hey - no problem - I've been gone all afternoon and evening - just

getting back here now.

I've been diagnosed with TOS before. Did the tests just now and

's Hyperabduction Test for Pectoralis Minor Syndrome is the

only possible postitive - and only on the left side (yes the problem

side) I won't say for sure, because I might have just lost the pulse

on the left side, but I do say maybe because I did it several times -

I didn't lose the pulse when I did it on the right side. Also, this

is the test that was used when I was previously diagnosed. And golly

gee - I know I have problems with tight pectoralis minor and work

trigger points for those.

Tonight I had some pretty major trigger points causing pain in my

shoulder down the arm to my wrist. Some were on the subscapularis

under my armpit, and there was another one, but I'm not sure exactly

where it was (on my body I know exactly where it was, but I'm not

sure what part of the body it was) From the pictures it looks like

it could be on the backside of the subscapularis - if that is

possible, or perhaps the Latissimus dorsi. It might have even been

serratus anterior - I've had problems with that before, but I think

it was too far back. I have a hard time seeing myself and figuring

out where my fingers really are. Practice, practice, practice. -

BTW I did get a copy of Trail Guide to the Body - pretty good book.

I'd like to see the new release and give it a try - esp since it will

work the fascia. I'm begining to think that it's the shoulder area

somewhere that's the source of the problem (through overuse and

injury - imagine that with my life) and that the scalenes are being

pulled on because of the shoulder. Hmmm.

Had x-rays done on Monday - neck curve wasn't what it's suppose to

be - but I knew that. Curve is actually starting to reverse in one

place - I'm wondering if I fix the muscle problem the curve will just

fix itself. That's what I'm hoping anyway. Bones go where the

muscles put them. On a side note - my chiro who diagnosed the

ligament laxity and knows my body well was shocked at how far I can

bend my head back and forward. She'd never seen anyone who could do

it that far. My kids promptly showed off that they could do it,

too. Isn't EDS unusual and interesting.

[Guest guest]

Hi Mike,

Thanks a lot for listing these tests... I talked to the rare diseases

center at a rehab hospital, which is the center which is supposed to

have the most knowledge about EDS, Marfan's, OI, AMC, Spina Bifida,

" Dwarfism " (don't know the PC word in English) with skeletal

dysplasia and dysmelia in this country. I asked their help first and

foremost in getting X-rays and an MRI of my SI joints done before I

go to the US, so that I could bring the films.

But as I learned that one of their docs now is taking a special

interest in neurological symptoms (Neuropathy, muscle cramps/spasms

etc.) amongst EDSers, I also asked for help in looking into what is

going on in my upper back and neck. While I was talking to them

today, I said that it might be a good idea to have X-rays and an MRI

done of my upper back and neck also before I go to the US, because

then I can bring these too, and hopefully get some input on that too.

And I would have to have the referrals in not that long, so that I

can also get the reports translated to bring.

They had thought of taking me in for a couple of days this spring,

for an individual stay, and appointments with the doctor etc. I am

going in for a group stay in Aug/Sept, so I said that I really don't

need to go in now, if they can just give me the necessary referrals.

That is what is important to me right now. I told her what you had

suggested too, and she was very interested, and asked me to e-mail

the correct spelling of it, since she wasn't familiar with this

English term (TOS). They'll of course know what it is when they read

about it. I just don't know the name in Norwegian, so I could not

help there. It would also be a lot easier for them to take the

individual consultations, testing etc., by extending my stay after

the group stay. They work in " multidiciplinary " teams (doc, nurse,

social worker, PT, OT, psychologist, pedagog etc), and they would

discuss my case in the team just after the Easter holiday. The doc

who takes a special interest in neurological effects of EDS, has been

on a long sick leave. He is now just back part time, but will be back

full time this fall. So if they can do it the way I suggested, it may

be great for me and for them...

It would really be interesting trying to gain some knowledge about

what is going on with the SI joints, the upper back and the neck.

That could be of a lot of help...

Talk to you later!

Aase Marit

[Guest guest]

Hi Mike,

Thanks a lot for listing these tests... I talked to the rare diseases

center at a rehab hospital, which is the center which is supposed to

have the most knowledge about EDS, Marfan's, OI, AMC, Spina Bifida,

" Dwarfism " (don't know the PC word in English) with skeletal

dysplasia and dysmelia in this country. I asked their help first and

foremost in getting X-rays and an MRI of my SI joints done before I

go to the US, so that I could bring the films.

But as I learned that one of their docs now is taking a special

interest in neurological symptoms (Neuropathy, muscle cramps/spasms

etc.) amongst EDSers, I also asked for help in looking into what is

going on in my upper back and neck. While I was talking to them

today, I said that it might be a good idea to have X-rays and an MRI

done of my upper back and neck also before I go to the US, because

then I can bring these too, and hopefully get some input on that too.

And I would have to have the referrals in not that long, so that I

can also get the reports translated to bring.

They had thought of taking me in for a couple of days this spring,

for an individual stay, and appointments with the doctor etc. I am

going in for a group stay in Aug/Sept, so I said that I really don't

need to go in now, if they can just give me the necessary referrals.

That is what is important to me right now. I told her what you had

suggested too, and she was very interested, and asked me to e-mail

the correct spelling of it, since she wasn't familiar with this

English term (TOS). They'll of course know what it is when they read

about it. I just don't know the name in Norwegian, so I could not

help there. It would also be a lot easier for them to take the

individual consultations, testing etc., by extending my stay after

the group stay. They work in " multidiciplinary " teams (doc, nurse,

social worker, PT, OT, psychologist, pedagog etc), and they would

discuss my case in the team just after the Easter holiday. The doc

who takes a special interest in neurological effects of EDS, has been

on a long sick leave. He is now just back part time, but will be back

full time this fall. So if they can do it the way I suggested, it may

be great for me and for them...

It would really be interesting trying to gain some knowledge about

what is going on with the SI joints, the upper back and the neck.

That could be of a lot of help...

Talk to you later!

Aase Marit

[Guest guest]

Hi Mike,

Thanks a lot for listing these tests... I talked to the rare diseases

center at a rehab hospital, which is the center which is supposed to

have the most knowledge about EDS, Marfan's, OI, AMC, Spina Bifida,

" Dwarfism " (don't know the PC word in English) with skeletal

dysplasia and dysmelia in this country. I asked their help first and

foremost in getting X-rays and an MRI of my SI joints done before I

go to the US, so that I could bring the films.

But as I learned that one of their docs now is taking a special

interest in neurological symptoms (Neuropathy, muscle cramps/spasms

etc.) amongst EDSers, I also asked for help in looking into what is

going on in my upper back and neck. While I was talking to them

today, I said that it might be a good idea to have X-rays and an MRI

done of my upper back and neck also before I go to the US, because

then I can bring these too, and hopefully get some input on that too.

And I would have to have the referrals in not that long, so that I

can also get the reports translated to bring.

They had thought of taking me in for a couple of days this spring,

for an individual stay, and appointments with the doctor etc. I am

going in for a group stay in Aug/Sept, so I said that I really don't

need to go in now, if they can just give me the necessary referrals.

That is what is important to me right now. I told her what you had

suggested too, and she was very interested, and asked me to e-mail

the correct spelling of it, since she wasn't familiar with this

English term (TOS). They'll of course know what it is when they read

about it. I just don't know the name in Norwegian, so I could not

help there. It would also be a lot easier for them to take the

individual consultations, testing etc., by extending my stay after

the group stay. They work in " multidiciplinary " teams (doc, nurse,

social worker, PT, OT, psychologist, pedagog etc), and they would

discuss my case in the team just after the Easter holiday. The doc

who takes a special interest in neurological effects of EDS, has been

on a long sick leave. He is now just back part time, but will be back

full time this fall. So if they can do it the way I suggested, it may

be great for me and for them...

It would really be interesting trying to gain some knowledge about

what is going on with the SI joints, the upper back and the neck.

That could be of a lot of help...

Talk to you later!

Aase Marit