Newbie says thanks for the welcomes

March 11, 2004

Hi ya'll,

I didn't expect to see 12 emails waiting for me today after only

joining the group last night. A nice surprise. I have belonged to

other groups (not lupus related) that were a bit snooty. This is a

nice change.

Some of your emails asked me to tell you about myself so here goes...

I live in a tiny town south of Rochester NY. I am a transplanted

Florida cracker and actually like it here in the north. We've been

here 25 years so I guess I'm use to it by now.

I have 3 grown daughters and 4 grandbabies. My husband and I have a

music ministry, mostly southern gospel music but I like to sing many

other styles as well. I am also a freelance writer but do not have

much time for it these days as I am babysitting 3 grandsons (4, 3 and

18mos.) Most of the time I am about one brick shy of a load, a

couple fries short of a Happy Meal, the elevator not making it quite

to the top, if you know what I mean.

I can trace lupus activiity in myself back to the age of 20 when I

went through a hugely stressful time in my life. Didn't get a

diagnosis until 10 years later which I understand is not all that

long compared to some folks. My symptoms are mainly joints and

central nervous system (lots of migraines). I have fibromyalgia,

degen. disc problems (have had c5,6,7 fused) knees scoped, Arnold

Chiari Syndrome, interstitial cystitis, oh a whole bunch of other

boring stuff.

I am being interviewed for the lymphostat-B research that is

currently beginning in the Rochester area. But I have a few

questions that I'd like answered first before I agree to do the

guinea pig thing.

Well enough about me. And thanks againg for the welcome.

Gloria aka. cheesyflasouvenir

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