Ciara Shelby

[Guest guest]

Wow, I can't believe how fast time flies....seems like yesterday sometimes,

that we went through the pressure sore incident and the " up-all-night "

crying....the worry about Ciara not getting into the DBB when she was

supposed to etc. She has been wearing the DBB 16hrs a day for about 6 weeks

now and she is doing AWESOME!!! She pulled to stand a week ago and now does

it constantly. She just turned nine months on Sat. She crawls so fast in the

DBB that is amazes me.

I was concerned though, that I was going to be getting up at night for the

rest of my life..................ha ha ha because Ciara ALWAYS wakes up

screaming. I say always, but really that has only been going on for a few

months. Well we had our check up at Shriners and she got TWO shoes sizes

larger for new shoes (the new straight last Markell) YAY and she ended up

with a new bar because the one we had didn't have enough room to make it

larger!?! <----waste of money for Shriners SO!! Her bar width was not equal

to her shoulders and I asked if that was bad that she had that for awhile

and the brace shop guy said no, but it would make it uncomfortable for her.

I WOULD SAY SO!!! So since she has had her new shoes/bar for the last week

and 4 days, she has slept through the night!!!! FINALLY!!!!! YAAAAAAAAAY!!!!

Previously, when she would wake up crying or screaming loudly like she does,

I would nurse her back to sleep because that was the only way to get her to

go back to sleep and not scream! My husband works 60+ hrs a week and I hate

for her to wake him with her crying. That is all in the past. Matter of

fact, these new shoes are so great that I can't begin to tell you!!

Thanks for the tips on how to put on the DBB Kori, because now that I have

new shoes I " get it " when you talk about knotting the laces. Before I

couldn't figure it out but that is because I had very small shoes and the

laces were SHORT and I had to relace and unlace them all the way EVERY

time!! Now that she is in a size 1 Markell, the laces are extra long and I

can tie the knots as you describe and make it easier on myself. THANK YOU SO

MUCH!!

I thank God everyday for Dr. Ponseti, Dr. Dobbs, and all of you for your

continued support, educational information, and all the shoulders to lean on

when I had problems. THANK YOU ALL!!

Gia Shelby, momma to Ciara 8/1/03 DBB 16hrs