Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Fay, I am so sorry to hear of your loss - you and Simon must be devastated, and rightly so! The heparin used for this purpose is not a high dose, There are other EDS'rs who have used this - including one with vascular type EDS that I know of, who carried successfully where they could not before. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Fay, I am so sorry to hear of your loss - you and Simon must be devastated, and rightly so! The heparin used for this purpose is not a high dose, There are other EDS'rs who have used this - including one with vascular type EDS that I know of, who carried successfully where they could not before. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Fay, I am so sorry to hear of your loss - you and Simon must be devastated, and rightly so! The heparin used for this purpose is not a high dose, There are other EDS'rs who have used this - including one with vascular type EDS that I know of, who carried successfully where they could not before. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi Fay, I am so sorry to hear of you loss, my thoughts adn prayers are with you and your husband at this difficult time. I'm afriad I can't give any real advice on the Heparin, only that as Jill says it is a very small dose and you would be very closely monitored throughout the dosage. I know it's not quite the same, but I have a friend with Vascular EDS who has to take Warfarin for DVT complications and with careful monitoring he is managing that well, so hopefully if it is necessary the Heparin might be workable for you. I very much hope so. Please take care and I hope you will find some peace and comfort from the hugs and warm thoughts ccoming form your CEDA family. Thinking of you. Love and hugs....Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi Fay, I am so sorry to hear of you loss, my thoughts adn prayers are with you and your husband at this difficult time. I'm afriad I can't give any real advice on the Heparin, only that as Jill says it is a very small dose and you would be very closely monitored throughout the dosage. I know it's not quite the same, but I have a friend with Vascular EDS who has to take Warfarin for DVT complications and with careful monitoring he is managing that well, so hopefully if it is necessary the Heparin might be workable for you. I very much hope so. Please take care and I hope you will find some peace and comfort from the hugs and warm thoughts ccoming form your CEDA family. Thinking of you. Love and hugs....Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi Fay, I am so sorry to hear of you loss, my thoughts adn prayers are with you and your husband at this difficult time. I'm afriad I can't give any real advice on the Heparin, only that as Jill says it is a very small dose and you would be very closely monitored throughout the dosage. I know it's not quite the same, but I have a friend with Vascular EDS who has to take Warfarin for DVT complications and with careful monitoring he is managing that well, so hopefully if it is necessary the Heparin might be workable for you. I very much hope so. Please take care and I hope you will find some peace and comfort from the hugs and warm thoughts ccoming form your CEDA family. Thinking of you. Love and hugs....Jo xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Fay, I'm sorry to hear about this sad news for you and your husband! I will pray that you are guided through this and that some answers can be gained so that you can have a successful pregnancy and healthy baby if this is what you desire! You will be in my thoughts. Sending healing energy your way. Love Lana Quote Link to comment Share on other sites More sharing options...
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