Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Crew- Most difficult news was learning (just yesterday) our 6 year old has a 4mm tumor in one ear and "suspicious" shadow in the other. Much conversation with team at Beth Israel. One doctor did not hesitate in saying we should be contacting House Ear Institute ASAP since they have the most experience in dealing with children having NF2. I had spoken to Steve Otto years ago regarding my wife so I will contact him again regardng my daughter Hannah. Living in Brooklyn, it is often difficult getting in and out of Manhattan for all of my wife's appointments. Hard to imagine (money, time off from work, etc) dealing with doctors on the other coast. Of course, if that is what is necessary we'll figure a way to do it. I do remember Massachucette's General having a large neuro program. Years ago exchanged some e-mails with Mia McCullum. I will do this again,. Has/does anyone have a child being treated there or any other large facility with much experience? Lots to do....and think about. Ceretti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Hi ! Just wanted to be sure your 4mm stated size was not a typo and you meant 4cm. Yes, I just reveiwed MGI's web site today and that sounds a viable option but believe HEI has upheld their reputation. If 4cm. I'd be headed for HEI. If 4mm, seems you can explore options with alittle bit more breathing room. Oh this disease ........ Russ Ceret1@... wrote: Crew-Most difficult news was learning (just yesterday) our 6 year old has a 4mm tumor in one ear and "suspicious" shadow in the other. Much conversation with team at Beth Israel. One doctor did not hesitate in saying we should be contacting House Ear Institute ASAP since they have the most experience in dealing with children having NF2. I had spoken to Steve Otto years ago regarding my wife so I will contact him again regardng my daughter Hannah.Living in Brooklyn, it is often difficult getting in and out of Manhattan for all of my wife's appointments. Hard to imagine (money, time off from work, etc) dealing with doctors on the other coast. Of course, if that is what is necessary we'll figure a way to do it. I do remember Massachucette's General having a large neuro program. Years ago exchanged some e-mails with Mia McCullum. I will do this again,. Has/does anyone have a child being treated there or any other large facility with much experience?Lots to do....and think about. Ceretti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Hi ! Just wanted to be sure your 4mm stated size was not a typo and you meant 4cm. Yes, I just reveiwed MGI's web site today and that sounds a viable option but believe HEI has upheld their reputation. If 4cm. I'd be headed for HEI. If 4mm, seems you can explore options with alittle bit more breathing room. Oh this disease ........ Russ Ceret1@... wrote: Crew-Most difficult news was learning (just yesterday) our 6 year old has a 4mm tumor in one ear and "suspicious" shadow in the other. Much conversation with team at Beth Israel. One doctor did not hesitate in saying we should be contacting House Ear Institute ASAP since they have the most experience in dealing with children having NF2. I had spoken to Steve Otto years ago regarding my wife so I will contact him again regardng my daughter Hannah.Living in Brooklyn, it is often difficult getting in and out of Manhattan for all of my wife's appointments. Hard to imagine (money, time off from work, etc) dealing with doctors on the other coast. Of course, if that is what is necessary we'll figure a way to do it. I do remember Massachucette's General having a large neuro program. Years ago exchanged some e-mails with Mia McCullum. I will do this again,. Has/does anyone have a child being treated there or any other large facility with much experience?Lots to do....and think about. Ceretti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Hi ! Just wanted to be sure your 4mm stated size was not a typo and you meant 4cm. Yes, I just reveiwed MGI's web site today and that sounds a viable option but believe HEI has upheld their reputation. If 4cm. I'd be headed for HEI. If 4mm, seems you can explore options with alittle bit more breathing room. Oh this disease ........ Russ Ceret1@... wrote: Crew-Most difficult news was learning (just yesterday) our 6 year old has a 4mm tumor in one ear and "suspicious" shadow in the other. Much conversation with team at Beth Israel. One doctor did not hesitate in saying we should be contacting House Ear Institute ASAP since they have the most experience in dealing with children having NF2. I had spoken to Steve Otto years ago regarding my wife so I will contact him again regardng my daughter Hannah.Living in Brooklyn, it is often difficult getting in and out of Manhattan for all of my wife's appointments. Hard to imagine (money, time off from work, etc) dealing with doctors on the other coast. Of course, if that is what is necessary we'll figure a way to do it. I do remember Massachucette's General having a large neuro program. Years ago exchanged some e-mails with Mia McCullum. I will do this again,. Has/does anyone have a child being treated there or any other large facility with much experience?Lots to do....and think about. Ceretti Quote Link to comment Share on other sites More sharing options...
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