Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Welcome Ann, Sorry about your hospital experience! That was horrible. We have a nice friendly group here and I know you will like it. From: soteary122 Sent: Monday, May 03, 2004 4:16 PM To: LUPIES Subject: New member--i need to vent HI!! I wanted to thank everyone for the wonderful emails i've received so far. My name is Ann and i'm from RI. I'm a 23 yr. old who's been dealing with SLE since i was 17. I was in remission for about 3 yrs until 2 months ago it hit me like a train wreck. )The fevers, infection, fatigue, you know the usual.) I was trying not to admit myself to the hospital at least till April 1, 2004. That's when my health insurance would be effective. Since my fevers wouldn't go away, I decided to bite the bullet and go on March 29. Then I spent the next 12 hours in the ER until some numbskull decided to take me to my room (i can smell the steak and cheese on his clothes). As soon as i was in my room, i was on antibiotics. During my 12 day stay I was on some of the strongest antibiotics (zithromax, acyclovir, arithromycen, vancomycin). I didn't mind all the antibiotics except that they burned up my veins. My IV's kept infiltrating to the point where i was averaging two new IV's a day. It got to the point where none of the nurses would dare try sticking me. And that was only to try to get IV in...not to mention they jab at me to draw blood. At one point I had to get a lymphnode near my right arm pit removed to have biopsy done on it (of course it was negative as well as all the other CT scans, MRI's, chest x rays, spinal tap Quote Link to comment Share on other sites More sharing options...
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