Those of you going to the convention

[Guest guest]

I don't know how conventions work. I've never been to one. I would guess you

all file into an auditorium and listen to some dr speak.

I'm assuming it's all gonna be about every type of EDS except for they

hypermobile type. Nobody seems to care about it (dr's, I mean). From what Dr

Byers told me, there is no research going on about the hypermobile type.

You gals (and guys) should make a huge banner (like at baseball games) that says

" WHAT ABOUT US HYPERMOBILE EDSers?!?!?!?! " \

What are you doing for us? HU?!?!?!

Does anyone understand?

Is it cause you can't " fix " us?

Do you think we are all drug seekers?

Do you think we are all neurotic?

Do you think we are all complainers?

Do you think we have Munchausen's, or Munchausen's by proxy?

Do you realize the amount of pain we live in every day?

DO YOU CARE?!?!?!?!?!!?

Ha! there! I just had to get that off my back. I'm so frustrated right now.

I just want to get those dr's and shake them. (if I could).

I wish I'd win the lottery. I'd give a huge grant for research.

I'm just feeling like I'm stuck in this black hole, trying to climb out, and

there is no help (except you all), no explanation, no relief.

It's like my brain can't get around it.

Maybe you could all do a protest. Lay down on the ground outside the building -

do some performance art relating to pain. Don't let the dr's pass without

seeing you.

Hahahahahahaha!!!!

Just kidding. I'd actually love to see that though!!

Haha. Just trying to keep my sense of humor!!!!

Hugs,