Re: So how's 's family...

[Guest guest]

Hi ..

I have 6 sons and a married daughter.

You're so right. All kids are different. They mature at different rates, and

have different plans for school, marriage, and work. A couple of the boys

have come and gone more than once, though two of them bought a home a few

weeks ago. I don't mind them living at home at all, and miss the ones who

have moved. It is quieter, though..and the grocery bill isn't $400 a week

anymore, lol!

I'm very close to my daughter. Had she not married, she would still be at

home when not at school. She lives in town, about an hour from here, but

visits often. Physically we share a lot, and are each other's support.

Growing up, they didn't know what was wrong with me. I had repeated

surgeries that all failed..and was told that I wouldn't pass it on, whatever

" it " was. I'm glad I have a name for it, and have counseled the kids not to

have surgery unless it's unavoidable, and shown them how to care for

dislocations. Things have changed for the better, but there are still far

too many MDs who don't know much about EDS.

One son had open heart surgery, another part of a lung removed..both as

infants. It's always interesting to compare notes with others, and this List

is a great example of something the NET is good for. I know it's hard having

a child with health issues..the one with lung problems also had a

non-functioning immune system for 2yrs after I stopped nursing. I can't

count the times he was in the hospital. I've also sat bedside, planning a

funeral in my mind. I learned just how precious every moment is.

We are our childrens' advocates in the health care system..It's important to

show them how to handle MDs, and those receptionists, lol..because when

they're 18 the doctors stop talking to parents! Like the kids can handle it

all on their own! Hopefully our children and grandchildren will have an

easier time than many of us have had finding good doctors.

[Guest guest]

Hi ..

I have 6 sons and a married daughter.

You're so right. All kids are different. They mature at different rates, and

have different plans for school, marriage, and work. A couple of the boys

have come and gone more than once, though two of them bought a home a few

weeks ago. I don't mind them living at home at all, and miss the ones who

have moved. It is quieter, though..and the grocery bill isn't $400 a week

anymore, lol!

I'm very close to my daughter. Had she not married, she would still be at

home when not at school. She lives in town, about an hour from here, but

visits often. Physically we share a lot, and are each other's support.

Growing up, they didn't know what was wrong with me. I had repeated

surgeries that all failed..and was told that I wouldn't pass it on, whatever

" it " was. I'm glad I have a name for it, and have counseled the kids not to

have surgery unless it's unavoidable, and shown them how to care for

dislocations. Things have changed for the better, but there are still far

too many MDs who don't know much about EDS.

One son had open heart surgery, another part of a lung removed..both as

infants. It's always interesting to compare notes with others, and this List

is a great example of something the NET is good for. I know it's hard having

a child with health issues..the one with lung problems also had a

non-functioning immune system for 2yrs after I stopped nursing. I can't

count the times he was in the hospital. I've also sat bedside, planning a

funeral in my mind. I learned just how precious every moment is.

We are our childrens' advocates in the health care system..It's important to

show them how to handle MDs, and those receptionists, lol..because when

they're 18 the doctors stop talking to parents! Like the kids can handle it

all on their own! Hopefully our children and grandchildren will have an

easier time than many of us have had finding good doctors.