Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Were you Her2 positive on the IHC test? If so was it 2 or 3 +? If it was 2 that is a weak positive and should be confirmed be a FISH test. That is something to ask your onc about. Also, find out if he uses adjuvantonline.com This is a shared decision making tool that can give you the percentages on the benefits of different therapies. Ruth > > Dear ladies, > > > > Wow, so many ideas of what doctors have suggested for the skin > damage from radiation. That's the beauty of a group like this- you > get so many brains working on the same problem. > > > > Sandy, I just wanted to ask for more details on the " boob tube " . I > have been to the pharmacy and gotten some special burn dressings for > my armpit, but they didn't have anything circular/tubelike for the > boob. I have been taping the dressings under the arm when I sleep, > but it's rather uncomfortable....I have to sleep with my arm > stretched out over my head then. But it's better than taping it into > immobilization during the day. At any rate, it is helping. I would > like to find something to use on the breast itself though, as I > suspect that it's not far behind in the peeling. > > > > Thanks, > > > > > > only 15 more radiation treatments left!!! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Ask about all the treatments available for your stage etc. Why did he choose the particular one he chose for you. Ask about risks and benefits. Will you be getting a port. Will you need hormone treatment. What exact drugs will you be getting and for how long. What are the side effects. How long will you have chemo. How will it affect me. Hope this helps. You will be in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: Re: Day 5 Radiation/sandy " Dale bra " where did you buy a dale bra? I am facing reconstructive surgery again in January. Sounds like it is something that might work for me. I had radiation a year ago. never knew anything to use topically to ease the pain and discomfort either. My radiation oncologist told me to use nothing on my skin and it was a horrible experience. It was also summer time too. I have learned so much after finding this website a couple of weeks ago. I was diagnosed 18 months ago and have felt so alone and no knowledge of anything. nelsons3460 <no_reply > wrote: I had radiation via Mammosite, went only 2x a day for 5 days, but they recommended I purchase a " dale bra " that had velcro in the front and enabled the dressings to stay in place without use of tape (also gently held the catheter tucked in under the bra so it didn't flop around during my sleep or other movements). While it's not the most supportive bra, it's very lightweight and rather gauze-like. Cost over $30, but despite that I bought a second one midweek because I didn't like not having the use of it while handwashing it and drying it. Following treatment, once in a while I still wear a dale bra under a more normal, supportive bra just to keep the incision from my sentinal node biopsy protected a little bit more.....the Dale bra has higher sides than a normal bra. While at first I somewhat grumbled at the cost of one bra for only a week of treatment, I am quite glad to have purchased two for that week as well as use following radiation. It protected me without being irritating. It didnt' bother my slightly red skin. I also bought extra surgical dressings/gauze from the local drugstore because sometimes I just wanted/needed a little more padding and protection than what the nurses sent me home with following the radiation doses via Mammosite...I tended to ooze/leak a bit more fluid from the catheter site than the normal dressing handled, so I reinforced it a bit and was fine. The Dale Bra is an easy bra to sleep in also. I plan to use it as a night-time bra under my jammies when visiting relatives this Xmas....nice to get cozy in PJ's with no bathroom and not have to worry about gravity's impact on my breasts if I have a little support from my new friend, " Dale. " My breast is still a little pink in one area and the areola is still swollen looking compared to the other one, but this is supposed to subside with time, reportedly. Good luck with everything! Suzanne > Dear ladies, > > Wow, so many ideas of what doctors have suggested for the skin damage from radiation. That's the beauty of a group like this- you get so many brains working on the same problem. > > Sandy, I just wanted to ask for more details on the " boob tube " . I have been to the pharmacy and gotten some special burn dressings for my armpit, but they didn't have anything circular/tubelike for the boob. I have been taping the dressings under the arm when I sleep, but it's rather uncomfortable....I have to sleep with my arm stretched out over my head then. But it's better than taping it into immobilization during the day. At any rate, it is helping. I would like to find something to use on the breast itself though, as I suspect that it's not far behind in the peeling. > > Thanks, > > > only 15 more radiation treatments left!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Ask about all the treatments available for your stage etc. Why did he choose the particular one he chose for you. Ask about risks and benefits. Will you be getting a port. Will you need hormone treatment. What exact drugs will you be getting and for how long. What are the side effects. How long will you have chemo. How will it affect me. Hope this helps. You will be in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: Re: Day 5 Radiation/sandy " Dale bra " where did you buy a dale bra? I am facing reconstructive surgery again in January. Sounds like it is something that might work for me. I had radiation a year ago. never knew anything to use topically to ease the pain and discomfort either. My radiation oncologist told me to use nothing on my skin and it was a horrible experience. It was also summer time too. I have learned so much after finding this website a couple of weeks ago. I was diagnosed 18 months ago and have felt so alone and no knowledge of anything. nelsons3460 <no_reply > wrote: I had radiation via Mammosite, went only 2x a day for 5 days, but they recommended I purchase a " dale bra " that had velcro in the front and enabled the dressings to stay in place without use of tape (also gently held the catheter tucked in under the bra so it didn't flop around during my sleep or other movements). While it's not the most supportive bra, it's very lightweight and rather gauze-like. Cost over $30, but despite that I bought a second one midweek because I didn't like not having the use of it while handwashing it and drying it. Following treatment, once in a while I still wear a dale bra under a more normal, supportive bra just to keep the incision from my sentinal node biopsy protected a little bit more.....the Dale bra has higher sides than a normal bra. While at first I somewhat grumbled at the cost of one bra for only a week of treatment, I am quite glad to have purchased two for that week as well as use following radiation. It protected me without being irritating. It didnt' bother my slightly red skin. I also bought extra surgical dressings/gauze from the local drugstore because sometimes I just wanted/needed a little more padding and protection than what the nurses sent me home with following the radiation doses via Mammosite...I tended to ooze/leak a bit more fluid from the catheter site than the normal dressing handled, so I reinforced it a bit and was fine. The Dale Bra is an easy bra to sleep in also. I plan to use it as a night-time bra under my jammies when visiting relatives this Xmas....nice to get cozy in PJ's with no bathroom and not have to worry about gravity's impact on my breasts if I have a little support from my new friend, " Dale. " My breast is still a little pink in one area and the areola is still swollen looking compared to the other one, but this is supposed to subside with time, reportedly. Good luck with everything! Suzanne > Dear ladies, > > Wow, so many ideas of what doctors have suggested for the skin damage from radiation. That's the beauty of a group like this- you get so many brains working on the same problem. > > Sandy, I just wanted to ask for more details on the " boob tube " . I have been to the pharmacy and gotten some special burn dressings for my armpit, but they didn't have anything circular/tubelike for the boob. I have been taping the dressings under the arm when I sleep, but it's rather uncomfortable....I have to sleep with my arm stretched out over my head then. But it's better than taping it into immobilization during the day. At any rate, it is helping. I would like to find something to use on the breast itself though, as I suspect that it's not far behind in the peeling. > > Thanks, > > > only 15 more radiation treatments left!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Ask about all the treatments available for your stage etc. Why did he choose the particular one he chose for you. Ask about risks and benefits. Will you be getting a port. Will you need hormone treatment. What exact drugs will you be getting and for how long. What are the side effects. How long will you have chemo. How will it affect me. Hope this helps. You will be in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: Re: Day 5 Radiation/sandy " Dale bra " where did you buy a dale bra? I am facing reconstructive surgery again in January. Sounds like it is something that might work for me. I had radiation a year ago. never knew anything to use topically to ease the pain and discomfort either. My radiation oncologist told me to use nothing on my skin and it was a horrible experience. It was also summer time too. I have learned so much after finding this website a couple of weeks ago. I was diagnosed 18 months ago and have felt so alone and no knowledge of anything. nelsons3460 <no_reply > wrote: I had radiation via Mammosite, went only 2x a day for 5 days, but they recommended I purchase a " dale bra " that had velcro in the front and enabled the dressings to stay in place without use of tape (also gently held the catheter tucked in under the bra so it didn't flop around during my sleep or other movements). While it's not the most supportive bra, it's very lightweight and rather gauze-like. Cost over $30, but despite that I bought a second one midweek because I didn't like not having the use of it while handwashing it and drying it. Following treatment, once in a while I still wear a dale bra under a more normal, supportive bra just to keep the incision from my sentinal node biopsy protected a little bit more.....the Dale bra has higher sides than a normal bra. While at first I somewhat grumbled at the cost of one bra for only a week of treatment, I am quite glad to have purchased two for that week as well as use following radiation. It protected me without being irritating. It didnt' bother my slightly red skin. I also bought extra surgical dressings/gauze from the local drugstore because sometimes I just wanted/needed a little more padding and protection than what the nurses sent me home with following the radiation doses via Mammosite...I tended to ooze/leak a bit more fluid from the catheter site than the normal dressing handled, so I reinforced it a bit and was fine. The Dale Bra is an easy bra to sleep in also. I plan to use it as a night-time bra under my jammies when visiting relatives this Xmas....nice to get cozy in PJ's with no bathroom and not have to worry about gravity's impact on my breasts if I have a little support from my new friend, " Dale. " My breast is still a little pink in one area and the areola is still swollen looking compared to the other one, but this is supposed to subside with time, reportedly. Good luck with everything! Suzanne > Dear ladies, > > Wow, so many ideas of what doctors have suggested for the skin damage from radiation. That's the beauty of a group like this- you get so many brains working on the same problem. > > Sandy, I just wanted to ask for more details on the " boob tube " . I have been to the pharmacy and gotten some special burn dressings for my armpit, but they didn't have anything circular/tubelike for the boob. I have been taping the dressings under the arm when I sleep, but it's rather uncomfortable....I have to sleep with my arm stretched out over my head then. But it's better than taping it into immobilization during the day. At any rate, it is helping. I would like to find something to use on the breast itself though, as I suspect that it's not far behind in the peeling. > > Thanks, > > > only 15 more radiation treatments left!!! > > Quote Link to comment Share on other sites More sharing options...
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